I don't like not being able to fend for myself at all, it hurts me to be dependent on others... and my physical and mental health keeps getting worse and worse. I want to work even though I know that I may not be able to stand the pace they put me at... the disability pension makes me angry even though I need it, it bothers me to have to receive it.
It hurts me that they have raised my degree of disability above 75% (I am waiting for them to tell me the definitive degree).
A few weeks ago I was told that I could ask for the orphan's pension for the disabled, but after thinking about it I have decided not to ask for it because it implies that a judge will disqualify you from working (I would only need that they would not allow me to work under any circumstances).
There are too many things... I have renounced to the inheritance that corresponded to me from my father but I had to ask for a medical report that accredited that I was in full mental faculties before processing it.
On the other hand, I am waiting for a medical report that says that despite my disability, it does not prevent me from performing the tasks required for the position I am applying for (it would be my first job in 13 years).
I find everything very difficult in my day to day life, and the obstacles they put in my way to do anything... I often think about the CTB, but I keep fighting and fighting, I am very tired... I do not know if I will ever dare to do the CTB (I see it quite far away). I don't know.
I do not sleep well since February 3 (no day), very hot and nervous... and my head is spinning non-stop....
I have contact with my mother (I live with her), my sister (from time to time), a friend from the neighborhood (I talk to him on the phone sometimes) and a SaSu member with whom I communicate on a regular basis... and still I feel very lonely, very lonely, incredibly lonely....
... I feel really helpless... I am worried about the new grade evaluation, I am worried that I am not allowed to work, I am worried that I am not allowed to make decisions freely... I do not understand this control over me, I do not understand it at all, it hurts me a lot that my criteria to decide freely about any transcendental matter for my life is doubted, that my mental capacity to make decisions is questioned...
... this goes far beyond freely deciding how to die, it is that I am not allowed to freely decide how to live!
//
No m'agrada pas gens no poder valdre'm per mi mateix, em fa mal ser dependent dels altres... i la salut física i mental no para d'empitjorar. Vull treballar tot i saber que potser no podré suportar el ritme que em possin... es que la pensió de discapacitat em fa rábia tot i necessitar-la, em molesta haver-la de percebre.
Em fa mal que m'hagin apujat el grau de discapacitat per sobre del 75% (estic esperant que em diguin el grau definitiu)
Fa poques setmanes em van comentar que podía demanar la pensió d'orfandat per discapacitats, però després de rumiar-m'ho he decidit que no la demanaré pas perquè implica que un jutge t'incapaciti per treballar (només em faltaría que no em permetissin treballar en cap concepte).
Són masses coses.. he renunciat a l'herència que em corresponía del meu pare però he hagut de demanar un informe médic que acredités que em trobaba en plenes facultats mentals abans de tramitar-la.
D'altra banda estic esperant un dictamen facultatiu que digui que tot i la meva discapacitat aquesta no impedeix desenvolupar les tasques que es demanen a una plaça per a la qual oposito (sería la meva primera feina en 13 anys).
Em costa tot molt en el meu día a día, i les traves que em posen per fer qualsevol cosa.. penso sovint en el CTB, però no deixo de lluitar i lluitar, estic mot cansat.. no se si mai m'atreviré a fer el CTB (ho veig força lluny). Ves a saber.
No dormo bé desde el 3 de febrer (cap día), molta calor i nervis.. i el cap dona voltes sense parar...
Tinc contacte amb ma mare (visc amb ella), ma germana (de quant en quant), un amic del barri (parlo amb ell per telèfon de vegades) i un membre de SaSu amb el qual em comunico de forma habitual... i tot i així em sento molt sol, molt sol, increïblement sol...
.. em sento impotent de debó... em preocupa la nova valoració del grau, em preocupa que no em permetin treballar, em preocupa que no em permetin prendre decisions lliurement... no entenc aquest control sobre la meva persona, no l'entenc gens ni mica, em fa molt mal que es dubti del meu criteri per decidir lliurement sobre qualsevol assumpte trascendental per a la meva vida, que se'm qüestioni la meva capacitat mental per prendre decisions...
.. això va molt més enllà de decidir lliurement com morir, es que no em deixen pas decidir lliurement com viure!