Incurable neuro problem leading to my suicide…

[strangelife]

I am actively looking for ways that are from self-love. The way I've been having to treat my body to keep going is disrespectful and unfair. I've thought it through, read books, carefully considered the consequences to my friends and family but my body is unfit for this life and will not give me a moment of peace. I drove from Florida to Montana.. had to sleep in my car cause I was too weak to leave it but finally got to see the mountains up there. I did my rally & I'm ready. I'd rather go sooner than drag this out and stoop down to levels I don't want to know exist. I'd say you can msg me but…

I have similar thoughts that ending your life without pushing yourself to the extreme is the act of a brave man. We do not deserve such suffering, because life in suffering has no meaning.

 

[hopeforafterlife]

I am actively looking for ways that are from self-love. The way I've been having to treat my body to keep going is disrespectful and unfair. I've thought it through, read books, carefully considered the consequences to my friends and family but my body is unfit for this life and will not give me a moment of peace. I drove from Florida to Montana.. had to sleep in my car cause I was too weak to leave it but finally got to see the mountains up there. I did my rally & I'm ready. I'd rather go sooner than drag this out and stoop down to levels I don't want to know exist. I'd say you can msg me but…

i'm in the mountains, it's where i live and have my whole life. i'm planning on going on the hillside overlooking my farm soon and shooting myself in the head. I have the gun. I just need to do it. I am looking at it as an act of mercy to myself. it's too cruel and I know i will never heal what's happened. it's so cruel and unfair.

i wanted to live too. but ths is not life. it's something else. i didn't want to end this way. it's cruel.

how many messages do i have to post before i can message you? does anyone know? i want to talk privately with people like me

are you in MT now? that is where I live. honest to god. what are the odds.

i'm probably not supposed to ask. i just wonder the coincidence. i have no access to gas method, i think the gunshot is best, and over fast. i hate what happened to us. but i know there is no other option to end the horror for me personally.

 

[fantastic_unicorn]

i'm in the mountains, it's where i live and have my whole life. i'm planning on going on the hillside overlooking my farm soon and shooting myself in the head. I have the gun. I just need to do it. I am looking at it as an act of mercy to myself. it's too cruel and I know i will never heal what's happened. it's so cruel and unfair.

i'm probably not supposed to ask. i just wonder the coincidence. i have no access to gas method, i think the gunshot is best, and over fast. i hate what happened to us. but i know there is no other option to end the horror for me personally.

Please carefully research using a gun. Especially a hand gun. So sorry for you.. I hope you find peace as well. I am not in Montana anymore. Was beautiful though.

I have similar thoughts that ending your life without pushing yourself to the extreme is the act of a brave man. We do not deserve such suffering, because life in suffering has no meaning.

I agree. This is not a life.

 

[hopeforafterlife]

Please carefully research using a gun. Especially a hand gun. So sorry for you.. I hope you find peace as well.

I agree. This is not a life.

idk what other choice i have. i am serious about ending this. i wish I had someone to go with that understood is all. but i will be alone, above my farm and all those i loved who will continue to live there. i have no connection to any of it anymore. i'm already dead in the ways that matter in this life.

 

[fantastic_unicorn]

I also have a terribly painful neurological problem. I get this immense pain in the back of my head as if it got struck by lightning or if I got hit with an axe in the back of my head. It's horrifically painful, never felt anything that hurts more than that, and causes me to go blind, dizzy, pass out, feel severely cold and hot, have a major headache afterwards and have an increased heart rate. Overall I still don't know what exactly causes it. It started when I was a teenager playing in a trampoline and has been happing regularly since then.

Since I started getting that I've been going to doctors almost all the time and still don't have a specific reason for why it happens. Doctors found a benign tumor in my head and I've been diagnosed with a few heart, immune-system, and auto-dysfunction illnesses and they think that it's all (or some of these things) are working together and causing this to happen. But everything that they've tried that commonly works for those individual illnesses does not seem to actually make it happen less or make it hurt less either, so I don't really know if it does have something to do with my other diagnoses or if it's something else entirely.

I completely understand why you'd want to CTB due to this because it's my main reason as well. It's such immense pain, happening a few times a day to the point that it makes doing anything at all incredibly painful. Living itself is torturous.

Good grief.. this sounds like occipital neuralgia? I'm so incredibly sorry. How awful

 

[hopeforafterlife]

Please carefully research using a gun. Especially a hand gun. So sorry for you.. I hope you find peace as well. I am not in Montana anymore. Was beautiful though.

I agree. This is not a life.

Please carefully research using a gun. Especially a hand gun. So sorry for you.. I hope you find peace as well. I am not in Montana anymore. Was beautiful though.

I agree. This is not a life.

i got really bad in november too. i was fighting it for 3 years, then november was the beginning of the very end. i feel be continuing to make my body go on like this that i am doing wrong in a spiritual sense. i haven't been able to talk to anyone about it. no one really understands what happened to me, and i'm already gone in the ways that mattered. i can't take care of my animals, I can't enjoy anything, it's 24/7 cruelty. what method have you looked at for self love death? i don;t know what else to do but the gun. i think with a 357 and hollow points, pointed in my mouth to the brain stem, i think it will be fast. i looked at hemlock, but it seems like it would be drawn out and i don't know that i can find any.

 

[fantastic_unicorn]

i got really bad in november too. i was fighting it for 3 years, then november was the beginning of the very end. i feel be continuing to make my body go on like this that i am doing wrong in a spiritual sense. i haven't been able to talk to anyone about it. no one really understands what happened to me, and i'm already gone in the ways that mattered. i can't take care of my animals, I can't enjoy anything, it's 24/7 cruelty. what method have you looked at for self love death? i don;t know what else to do but the gun. i think with a 357 and hollow points, pointed in my mouth to the brain stem, i think it will be fast. i looked at hemlock, but it seems like it would be drawn out and i don't know that i can find any.

I understand the spiritual sense aspect. I feel the same way. I wish I had the technical expertise to do nitrogen. I just don't trust myself enough. I am thinking SN.

 

[hopeforafterlife]

I understand the spiritual sense aspect. I feel the same way. I wish I had the technical expertise to do nitrogen. I just don't trust myself enough. I am thinking SN.

how soon do you think you will go? i'm days, if that. i have a letter written, i signed over all my vehicles to a friend and made a will, though that was 3 years ago when I knew i was in trouble with the neuro issues. i have a letter written to the first responders for when they show up, apologizing for the mess, and a letter to those who cared about me, though i know my words are futile to describe what happened to me and why. normal people don;t understand central nervous system problems. many will be shocked to learn of it including my dad. idk what to do about that though. i can't keep living in this nightmare.

do you know how many messages i have to post before i can send private messages?

 

[fantastic_unicorn]

how soon do you think you will go? i'm days, if that. i have a letter written, i signed over all my vehicles to a friend and made a will, though that was 3 years ago when I knew i was in trouble with the neuro issues. i have a letter written to the first responders for when they show up, apologizing for the mess, and a letter to those who cared about me, though i know my words are futile to describe what happened to me and why. normal people don;t understand central nervous system problems. many will be shocked to learn of it including my dad. idk what to do about that though. i can't keep living in this nightmare.

do you know how many messages i have to post before i can send private messages?

I will try to message you. I am going through the motions with my family and letting them try to help… in a helpless situation. Feels wrong when they think I haven't explored all options but in my opinion.. I have considering all the doctors and the best hospital I could possibly go to. I will probably know once I somehow get access to SN. I don't see myself holding on for another month though.

 

[hopeforafterlife]

I understand the spiritual sense aspect. I feel the same way. I wish I had the technical expertise to do nitrogen. I just don't trust myself enough. I am thinking SN.

have you gotten the SN yet? before the gun decision, i was looking also at charcoal in my suburban, but i couldn't get a good answer about how much and i can't read through the mega thread on it, it doesn't have good clarity. i can't believe my life came to this, that it will end this way. i had so much to live for like you describe. an whole life, gone in moments.

I will try to message you

thank you

 

[strangelife]

It's such a pity that terrible things happen to us so young, These are such rare diseases and they become the reason that gathers us here. Healthy people can't understand us, They can't understand our suffering and why we want CTB. They just don't understand our suffering.

 

[hopeforafterlife]

I will try to message you. I am going through the motions with my family and letting them try to help… in a helpless situation. Feels wrong when they think I haven't explored all options but in my opinion.. I have considering all the doctors and the best hospital I could possibly go to. I will probably know once I somehow get access to SN. I don't see myself holding on for another month though.

i haven't got any messages. i would really like to talk to you one on one. the fact that you came to my home state and that we have similar reasons and are both so young.

 

[strangelife]

Do relatives know about thoughts about CTB?

I am going through the motions with my family and letting them try to help… in a helpless situation

 

[fantastic_unicorn]

It's such a pity that terrible things happen to us so young, These are such rare diseases and they become the reason that gathers us here. Healthy people can't understand us, They can't understand our suffering and why we want CTB. They just don't understand our suffering.

No this is one thing that I've come to find out. Friends are like "well they're gonna run more tests, right" or "you can't give up."

I can. And people who have cancer, neuro degenerative diseases, chronic pain, etc, need to have the option to exit peacefully. We should be able to decide when enough is enough. Having this kind of respect for an animal and not a human is ridiculous.

 

[hopeforafterlife]

Do relatives know about thoughts about CTB?

no relatives. they will try to interfere. 2 trusted people know however and condone it fully as they see what's become of the person they once knew. idk if you were asking me though

 

[fantastic_unicorn]

Do relatives know about thoughts about CTB?

Yes albeit not in the way it should've been.

i haven't got any messages. i would really like to talk to you one on one. the fact that you came to my home state and that we have similar reasons and are both so young.

It seems I'm not able to. Wish there was a way

 

[hopeforafterlife]

No this is one thing that I've come to find out. Friends are like "well they're gonna run more tests, right" or "you can't give up."

I can. And people who have cancer, neuro degenerative diseases, chronic pain, etc, need to have the option to exit peacefully. We should be able to decide when enough is enough. Having this kind of respect for an animal and not a human is ridiculous.

i agree. there is nothing to do about my situation. no more tests, nothing. the only thing that could help would be if there was a way for my central nervous system to regenerate, and there isn't. i was never able to kill one of my animals when their suffering was permanent, terminal, i had to always have someone else step in, now I am having to kill myself bc no one will do it for me. i have to though. i have to be so brave.

 

[fantastic_unicorn]

i agree. there is nothing to do about my situation. no more tests, nothing. the only thing that could help would be if there was a way for my central nervous system to regenerate, and there isn't. i was never able to kill one of my animals when their suffering was permanent, terminal, i had to always have someone else step in, now I am having to kill myself bc no one will do it for me. i have to though. i have to be so brave.

I was able to message you

 

[strangelife]

No this is one thing that I've come to find out. Friends are like "well they're gonna run more tests, right" or "you can't give up."

I can. And people who have cancer, neuro degenerative diseases, chronic pain, etc, need to have the option to exit peacefully. We should be able to decide when enough is enough. Having this kind of respect for an animal and not a human is ridiculous.

Yes, it is true, my relatives also say that it is possible to live, that disabled people also live, but they are not in our place.

i agree. there is nothing to do about my situation. no more tests, nothing. the only thing that could help would be if there was a way for my central nervous system to regenerate, and there isn't. i was never able to kill one of my animals when their suffering was permanent, terminal, i had to always have someone else step in, now I am having to kill myself bc no one will do it for me. i have to though. i have to be so brave.

I feel so sorry for you, but what kind of violations do you have?

 

[fantastic_unicorn]

Yes, it is true, my relatives also say that it is possible to live, that disabled people also live, but they are not in our place.

Exactly. Until someone is in this position should they have the ability to have a respectable opinion on it.

 

[Final_Choice]

Good grief.. this sounds like occipital neuralgia? I'm so incredibly sorry. How awful

I've never heard of that before, and after reading about it for a bit there's a chance that it is because I feel a lot of the same symptoms. I'll have to take a look at my MRIs and see if it I see anything and bring it up with my neurologist in my next appointment. Since it seems it's related to the upper cervical spine and other occipital nerves, my tumor is in the front of my head so that shouldn't be contributing to that (from what I've read at least). Not sure if it truly is that but it's worth checking out at least. I've kind of given up but I'll keep trying to get better while I'm still here.

 

[fantastic_unicorn]

I've never heard of that before, and after reading about it for a bit there's a chance that it is because I feel a lot of the same symptoms. I'll have to take a look at my MRIs and see if it I see anything and bring it up with my neurologist in my next appointment. Since it seems it's related to the upper cervical spine and other occipital nerves, my tumor is in the front of my head so that shouldn't be contributing to that (from what I've read at least). Not sure if it truly is that but it's worth checking out at least. I've kind of given up but I'll keep trying to get better while I'm still here.

Anti convulsant drugs,
Botox & nerve blocks seem to be effective at treatment for some people. Please also look into NUCCA doctor. Hope you find answers

 

[callincards]

i can't message anyone, but i need to go too bc of severe nervous system damage also. how serious about suicide are you? do people on here suicide together?
i'm planning shooting self in head, almost did it this past week, but didn't, i'm scared to go alone. but i will because i'm already dead. central nervous system damage is permanent bc it doesn't regenerate. it's horror beyond comprehension for me. i need to kill what's left because all that is left is unnatural evil tbh and suffering

I'm In the same boat I wish I had a gun to be able to do it my only method available is jumping or trying to hang which isn't 100 percent but I need 100 percent because I can't live like this

 

[theboy]

I'm sorry that happened to you. how unfair life is sometimes.

 

[fantastic_unicorn]

I'm sorry that happened to you. how unfair life is sometimes.

Very unfair

 

[KuriGohan&Kamehameha]

Reading your post almost made me cry, our situations are so similar albeit yours is worse. There is nothing more cruel and unfair than a happy life being snatched away from someone who is doing well, out of nowhere. Just from reading your post, it sounds like there is some inner ear and surrounding area pathology, and when it comes to neurological symptoms like tinnitus and autonomic nervous system dysfunction, most doctors are painfully clueless.

I really feel for you. Having an illness of unknown etiology that is not understood by current medical science is one of the worst things that can happen to a person in my honest opinion, because not only does the outside world not give you the proper support and advocacy that one needs (which common, more documented conditions tend to evoke conscientiousness in others by default because they believe the seriousness of something when it is recognized by a professional or authority) but doctors do not take your suffering seriously and shrug their shoulders once traditional avenues of testing show nothing. They don't realize that these sorts of ailments can be life ruining. Medical gaslighting and disbelief is unfortunately far too common.

I can understand your mindset of self-love and feeling like it's disrespecting your body once you have put up with this type of condition long enough. My symptoms started 7 years ago when I was a teenager, and it has just been trainwreck after trainwreck ever since.

There are people who have a firm conviction that if they can hold out long enough there will be a treatment or cure for them, and we are making leaps and bounds in certain fields, but in my own personal situation I don't even remember who I was as a person hardly before this happened. The gaslighting and invalidation from others that made me question my own reality permanently changed me for the worst, alongside the symptoms themselves.

We share many symptoms, though mine was not triggered by a plane and I believe my issues were caused by a combination of genetics, stress, and viral infections that weakened me. I have had chronic fatigue for 7 years now alongside a host of other neurological symptoms like tinnitus, hyperacusis that can make me want to tear my hair out if I even hear singing or humming, poor circulation and Raynaud's in my feet, burning pain and tingling from the knee down, headaches and fever like feeling, inability to regulate temperature, severe brainfog and cognitive impairment including permanently blurred vision, and then things like a poor appetite/sensitive stomach and sciatica which has caused me 24/7 discomfort alongside my leg pain.

Like you, nothing has showed up in tests in the past few years I've been having them done, except rogue autoimmune marker that were flagged negative the second time I had them tested. I've tried loads of different medications and supplements and had no results. I have PTSD and get triggered in medical environments and the stress of all of these tests and dealing with doctors has made my life worse because they don't treat you with compassion and hate making adjustments. I was told by one doctor that I just need to deal with the fact that I have something which will never have a definitive diagnosis or treatment plan for the rest of my life. How does someone accept that?

In the past few years I have lost so much dignity because I was forced to keep trying to push in spite of the symptoms, only to get worse over time. My IQ dropped significantly, my hair falls out, my speech is significantly worse because I can't think of words and can't hold a conversation well, my attention span and memory is atrocious, I got hit by a car while driving because my vision is so blurry I am hardly aware of my surroundings (opthalmology shrugged their shoulders too, they don't know why) multiple friendships, jobs, and relationships have been ruined because people resent me because I don't get better or think I must be this way on purpose.

I feel like a hollow shell of a person. Being younger as well, I can relate a lot to the fact that people don't take your pain seriously due to your age, or they think you're being dramatic and that it will fade with time. Years of humiliation and embarrassment have culminated in the strong urge to die, for me, especially because people already treat me badly due to having what are considered "mental illnesses" like PTSD and autism. Multiple people in my family suffered for years and years with autoimmune diseases and even a brain tumor that was misdiagnosed, so I know good and well that ill health can strike a person at any age and does not discriminate.

When it comes to neurological issues, we are unfortunately living in the dark ages. MRIs can only really pick up on very large, visible injuries and damage, if there's some dysfunction going on a smaller scale that's not caused large lesions and swelling then traditional imaging methods won't detect it. I really wish there was something that could be done to help you, but I know personally that modern medicine has so many failings and shortfalls. No matter what happens, I hope that you know that you are heard here, your pain is palpable and it is so heartbreaking that it has lead to this point of no relief. I wish you the very best.

 

[roku6]

I also have severe tinnitus, 3 different high frequency tones, induced by medication. At night it is loud as a train breaking.
During day I cannot concentrate or immerse in any activity.
Doctors could not help, they don't even understand the mechanism, at worse some even deny such thing could happen.
Family thinks I am over reacting and I just have to live with it.

I understand your situation, life is just too miserable to live in this state.

 

[waiting93]

Hello all,

Never been suicidal… until 7 months ago. Crazy how one thing can change your life. I was on an airplane when my face felt like it exploded. Severe nerve & head pain. Then severe body burning once on the ground. Ever since then I've been living in some neurological nightmare with symptoms that are truthfully unbearable. Absolutely nothing has shown the fuck up on any test. Something really fucking weird happened to me. I had a great life, career, friends, boyfriend, family. No history of anxiety or depression. No complaints. I was very happy. Now, I am in an untenable body without a moment of peace. I've been to the hospital 8x, multiple doctors, Mayo Clinic, and no answers. Being youngish (29) and a woman has its drawbacks. But even with the support of my family, no one has found what is happening to me.

Have tried multiple drugs but nothing is helping. Sleep - even with the help of Xanax - is almost impossible. I had a rapid onset of 10/10 pain, floaters, excruciating tinnitus with Hyperacusis, muscle twitching, feeling like I'm wading through cement, blurred and jumpy vision, exhaustion, hot and cold; severe right side head pain, a static sensation on my head, eye issues .. honestly the list goes on. I am miserable 24/7. I have trauma from being medically gaslit and the extreme way these symptoms came on. Lost it all. I find Joy in nothing. My body is withering away.. I am skin and bones. People called me 5th gear before and now I can barely leave my bed. I needed to vent. I'm getting worse and I have no reprieve - last night I almost threw up from the burning pain in my back. I'm over it and I need to get out of here before I lose more of my dignity. Mayo thinks it's a virus reactivated but in my soul it feels much worse and permanent. It's a horrible feeling. This is not a way to live. I can barely tolerate each day without spiraling into a complete mess before I become someone I'm totally not. I've got to go but I wish it wasn't so complicated inert gas seems to be the way to do it but so much prep and I am so weak ..

I'm in a similar boat . Been the better part of 18 months that I've been dealing with severe nerve pain on my shoulder that travels up the left side of my head causing severe headaches and eye issues . I've been to chiropractor, physio, neurologist , pain specialists , nearly every doctor there is . I've done Botox , nerve blockers , cortisone shots, all kinds of different techniques and I am always in severe pain . It is ruining my life and idk how much longer I can do this

 

[fantastic_unicorn]

Reading your post almost made me cry, our situations are so similar albeit yours is worse. There is nothing more cruel and unfair than a happy life being snatched away from someone who is doing well, out of nowhere. Just from reading your post, it sounds like there is some inner ear and surrounding area pathology, and when it comes to neurological symptoms like tinnitus and autonomic nervous system dysfunction, most doctors are painfully clueless.

I really feel for you. Having an illness of unknown etiology that is not understood by current medical science is one of the worst things that can happen to a person in my honest opinion, because not only does the outside world not give you the proper support and advocacy that one needs (which common, more documented conditions tend to evoke conscientiousness in others by default because they believe the seriousness of something when it is recognized by a professional or authority) but doctors do not take your suffering seriously and shrug their shoulders once traditional avenues of testing show nothing. They don't realize that these sorts of ailments can be life ruining. Medical gaslighting and disbelief is unfortunately far too common.

I can understand your mindset of self-love and feeling like it's disrespecting your body once you have put up with this type of condition long enough. My symptoms started 7 years ago when I was a teenager, and it has just been trainwreck after trainwreck ever since.

There are people who have a firm conviction that if they can hold out long enough there will be a treatment or cure for them, and we are making leaps and bounds in certain fields, but in my own personal situation I don't even remember who I was as a person hardly before this happened. The gaslighting and invalidation from others that made me question my own reality permanently changed me for the worst, alongside the symptoms themselves.

We share many symptoms, though mine was not triggered by a plane and I believe my issues were caused by a combination of genetics, stress, and viral infections that weakened me. I have had chronic fatigue for 7 years now alongside a host of other neurological symptoms like tinnitus, hyperacusis that can make me want to tear my hair out if I even hear singing or humming, poor circulation and Raynaud's in my feet, burning pain and tingling from the knee down, headaches and fever like feeling, inability to regulate temperature, severe brainfog and cognitive impairment including permanently blurred vision, and then things like a poor appetite/sensitive stomach and sciatica which has caused me 24/7 discomfort alongside my leg pain.

Like you, nothing has showed up in tests in the past few years I've been having them done, except rogue autoimmune marker that were flagged negative the second time I had them tested. I've tried loads of different medications and supplements and had no results. I have PTSD and get triggered in medical environments and the stress of all of these tests and dealing with doctors has made my life worse because they don't treat you with compassion and hate making adjustments. I was told by one doctor that I just need to deal with the fact that I have something which will never have a definitive diagnosis or treatment plan for the rest of my life. How does someone accept that?

In the past few years I have lost so much dignity because I was forced to keep trying to push in spite of the symptoms, only to get worse over time. My IQ dropped significantly, my hair falls out, my speech is significantly worse because I can't think of words and can't hold a conversation well, my attention span and memory is atrocious, I got hit by a car while driving because my vision is so blurry I am hardly aware of my surroundings (opthalmology shrugged their shoulders too, they don't know why) multiple friendships, jobs, and relationships have been ruined because people resent me because I don't get better or think I must be this way on purpose.

I feel like a hollow shell of a person. Being younger as well, I can relate a lot to the fact that people don't take your pain seriously due to your age, or they think you're being dramatic and that it will fade with time. Years of humiliation and embarrassment have culminated in the strong urge to die, for me, especially because people already treat me badly due to having what are considered "mental illnesses" like PTSD and autism. Multiple people in my family suffered for years and years with autoimmune diseases and even a brain tumor that was misdiagnosed, so I know good and well that ill health can strike a person at any age and does not discriminate.

When it comes to neurological issues, we are unfortunately living in the dark ages. MRIs can only really pick up on very large, visible injuries and damage, if there's some dysfunction going on a smaller scale that's not caused large lesions and swelling then traditional imaging methods won't detect it. I really wish there was something that could be done to help you, but I know personally that modern medicine has so many failings and shortfalls. No matter what happens, I hope that you know that you are heard here, your pain is palpable and it is so heartbreaking that it has lead to this point of no relief. I wish you the very best.

Just speechless. This is the most heartbreaking but helpful words I've read so far to know I'm not alone.

I'm in a similar boat . Been the better part of 18 months that I've been dealing with severe nerve pain on my shoulder that travels up the left side of my head causing severe headaches and eye issues . I've been to chiropractor, physio, neurologist , pain specialists , nearly every doctor there is . I've done Botox , nerve blockers , cortisone shots, all kinds of different techniques and I am always in severe pain . It is ruining my life and idk how much longer I can do this

Gosh I'm so sorry

 

[Catch-22]

I'm not sure if anyone have mentioned this because I'm too sick to read everyone's reply but look up Lyme disease and Co infections. I have everyone of the symptoms you talk about. I've been sick with them for decades.. Decades of hell. They can cause all kinds of neurological problems. Western medicine will get you nowhere.. you're still young and have a chance. Go on FB and join a support group tell them your symptoms and they will lead you in the right direction. I never remembered being bit by a tick... I was diagnosed with all kinds of things including fibromyalgia and chronic fatigue syndrome but there is a root cause to everything.. found out my root cause last year. Just a thought..

I'm not sure if anyone have mentioned this because I'm too sick to read everyone's reply but look up Lyme disease and Co infections. I have everyone of the symptoms you talk about. I've been sick with them for decades.. Decades of hell. They can cause all kinds of neurological problems. Western medicine will get you nowhere.. you're still young and have a chance. Go on FB and join a support group tell them your symptoms and they will lead you in the right direction. I never remembered being bit by a tick... I was diagnosed with all kinds of things including fibromyalgia and chronic fatigue syndrome but there is a root cause to everything.. found out my root cause last year. Just a thought..

I wanted to add on to what I wrote previously. I'm so sorry for your pain.. I understand this kind of pain all the neurological crap. I also have occipital neuralgia and trigeminal neuralgia. And although I'm sure there can be many causes for these conditions I believe Bartonella is the driving force behind a lot of the neurological. I either had these infections passed to me from my mother when she was pregnant or I contracted them when I was a very young child. And when I say you might have these it's just a possibility I'm no expert but since you're on this site I figured I had nothing to lose to tell you maybe just maybe that these things are possible.. I hope you find answers to your pain .