Reading your post almost made me cry, our situations are so similar albeit yours is worse. There is nothing more cruel and unfair than a happy life being snatched away from someone who is doing well, out of nowhere. Just from reading your post, it sounds like there is some inner ear and surrounding area pathology, and when it comes to neurological symptoms like tinnitus and autonomic nervous system dysfunction, most doctors are painfully clueless.
I really feel for you. Having an illness of unknown etiology that is not understood by current medical science is one of the worst things that can happen to a person in my honest opinion, because not only does the outside world not give you the proper support and advocacy that one needs (which common, more documented conditions tend to evoke conscientiousness in others by default because they believe the seriousness of something when it is recognized by a professional or authority) but doctors do not take your suffering seriously and shrug their shoulders once traditional avenues of testing show nothing. They don't realize that these sorts of ailments can be life ruining. Medical gaslighting and disbelief is unfortunately far too common.
I can understand your mindset of self-love and feeling like it's disrespecting your body once you have put up with this type of condition long enough. My symptoms started 7 years ago when I was a teenager, and it has just been trainwreck after trainwreck ever since.
There are people who have a firm conviction that if they can hold out long enough there will be a treatment or cure for them, and we are making leaps and bounds in certain fields, but in my own personal situation I don't even remember who I was as a person hardly before this happened. The gaslighting and invalidation from others that made me question my own reality permanently changed me for the worst, alongside the symptoms themselves.
We share many symptoms, though mine was not triggered by a plane and I believe my issues were caused by a combination of genetics, stress, and viral infections that weakened me. I have had chronic fatigue for 7 years now alongside a host of other neurological symptoms like tinnitus, hyperacusis that can make me want to tear my hair out if I even hear singing or humming, poor circulation and Raynaud's in my feet, burning pain and tingling from the knee down, headaches and fever like feeling, inability to regulate temperature, severe brainfog and cognitive impairment including permanently blurred vision, and then things like a poor appetite/sensitive stomach and sciatica which has caused me 24/7 discomfort alongside my leg pain.
Like you, nothing has showed up in tests in the past few years I've been having them done, except rogue autoimmune marker that were flagged negative the second time I had them tested. I've tried loads of different medications and supplements and had no results. I have PTSD and get triggered in medical environments and the stress of all of these tests and dealing with doctors has made my life worse because they don't treat you with compassion and hate making adjustments. I was told by one doctor that I just need to deal with the fact that I have something which will never have a definitive diagnosis or treatment plan for the rest of my life. How does someone accept that?
In the past few years I have lost so much dignity because I was forced to keep trying to push in spite of the symptoms, only to get worse over time. My IQ dropped significantly, my hair falls out, my speech is significantly worse because I can't think of words and can't hold a conversation well, my attention span and memory is atrocious, I got hit by a car while driving because my vision is so blurry I am hardly aware of my surroundings (opthalmology shrugged their shoulders too, they don't know why) multiple friendships, jobs, and relationships have been ruined because people resent me because I don't get better or think I must be this way on purpose.
I feel like a hollow shell of a person. Being younger as well, I can relate a lot to the fact that people don't take your pain seriously due to your age, or they think you're being dramatic and that it will fade with time. Years of humiliation and embarrassment have culminated in the strong urge to die, for me, especially because people already treat me badly due to having what are considered "mental illnesses" like PTSD and autism. Multiple people in my family suffered for years and years with autoimmune diseases and even a brain tumor that was misdiagnosed, so I know good and well that ill health can strike a person at any age and does not discriminate.
When it comes to neurological issues, we are unfortunately living in the dark ages. MRIs can only really pick up on very large, visible injuries and damage, if there's some dysfunction going on a smaller scale that's not caused large lesions and swelling then traditional imaging methods won't detect it. I really wish there was something that could be done to help you, but I know personally that modern medicine has so many failings and shortfalls. No matter what happens, I hope that you know that you are heard here, your pain is palpable and it is so heartbreaking that it has lead to this point of no relief. I wish you the very best.