Venting I've never felt worse

[Moroze]

I have CFS. Every day I just lie in bed in pain. I'm tired and miserable. I know I'm not the only one, but today is the worst day of my life.

 

[unluckysadness]

I'm sorry for your situation. CFS is just like hell. And most of people don't understand this disease. I have a rare disease called cervical dystonia and I can't do anything. I can't do anything with my life (if you can call it a life). People like us should have access to euthanasia if it's our choice.
I send you a lot of hugs

 

[Moroze]

I'm sorry for your situation. CFS is just like hell. And most of people don't understand this disease. I have a rare disease called cervical dystonia and I can't do anything. I can't do anything with my life (if you can call it a life). People like us should have access to euthanasia if it's our choice.
I send you a lot of hugs

I just researched it and it looks absolutely devastating. Is there a way to manage it? I assume it's just daily unbearable pain?

 

[unluckysadness]

Here is a documentary which talks about CFS (i don't have it personally). Sorry it's only in french (swiss broadcast) but you can see the pain of these young persons. Before watching it, I didn't realize it can be so cruel. Most people think it's just fatigue, but It's awful Like fibromyalgia, Lyme and all these shitty diseases. My disease already caused a suicide on the dystonia french Facebook forum. All these neurological diseases should not exist.