Chronic Illnesses and Physical Diseases Megathread

[PhDone]

ME/CFS here. 30 years.

Just joined, have ME too. Absolutely hideous disease. Cant imagine 30yrs of it.

 

[wanttodie12345]

I have multiple chronic physical and mental conditions that have been mostly ignored since childhood. Doctors tend to think it can't be that bad or I'm making it up. Neurological symptoms, joint pain, spine degeneration, cardiac issues. My careers are not accessible to me any longer and I've been hospitalized against my will while psychotic from lack of sleep, so have difficulty accessing ctb resources. Can't drive and even if I wanted to try, my car has fallen into disrepair while my health has been majorly declining. I want a peaceful way out, I'm so tired of watching my hydration and food and sleep trying to get back to a state of health I'll never achieve. It's terrible, but I find myself wishing my diagnoses were terminal so I could access palliative care and medical aid in dying. Though I fear people with those kinds of diagnoses are suffering in a way I can't imagine.

 

[TheFallen]

I have multiple chronic physical and mental conditions that have been mostly ignored since childhood. Doctors tend to think it can't be that bad or I'm making it up. Neurological symptoms, joint pain, spine degeneration, cardiac issues. My careers are not accessible to me any longer and I've been hospitalized against my will while psychotic from lack of sleep, so have difficulty accessing ctb resources. Can't drive and even if I wanted to try, my car has fallen into disrepair while my health has been majorly declining. I want a peaceful way out, I'm so tired of watching my hydration and food and sleep trying to get back to a state of health I'll never achieve. It's terrible, but I find myself wishing my diagnoses were terminal so I could access palliative care and medical aid in dying. Though I fear people with those kinds of diagnoses are suffering in a way I can't imagine.

I feel you my friend

 

[dr18]

Hi all, I would like to share my struggles with you all, about my lung troubles! I am a mid 20's woman, UK.

Late April this year my right lung collapsed spontaneously while I was at work (I work in drug development), searing shoulder and collar bone pain on my right side coupled with sweating, and an impending sense of doom appeared out of nowhere. I brushed it off at first as an anxiety attack but I felt a sudden urge to seek help. Paramedics arrived and assumed I was having a blood clot ,as I am on birth control, but an ECG/Blood Oxy/Pulse came back all normal. I was sent to hospital in an ambulance for further tests. A chest X-ray was peformed at hospital and I was discharged with 'muscle sprain' by the doctor. I returned home and went to work the next day with major breathlnessness and could hardly hold a conversation. Even coworkers noted it was odd. I felt pretty silly, I just went in an ambulance at my bloody work only to be discharged with a muscle spasm!? Well, I got a call later on in that day from the hospital apologising over and over again and that I do infact have a 'primary spontaneous pneumothorax' and I need to return immediately (they didnt check the xray results the day prior lololol). No chest drain was placed into my chest and treatment was to rest at home but I was cautioned to return once a week to monitor if the tear in my lung was healing. It was and I was seen by a lung specialist who told me this may reoccur and that it could be related to my period cycle (Catamenial Pneumothorax) as it happened on the first day of my menstruation.

Two months after, my second pneumothorax occured after I picked up my bath mat after showering. Same impending sense of doom, searing pain and the feeling of air bubbles rippling against my rib cage. I was kept in overnight at hospital with oxygen and scheduled for a pleurodesis surgery the week after. This surgery staples the troublesome right lung to the chest cavity wall via chemical means (talc) to prevent any more major pneumothorax. My period also started immediately after my second tear.

Surgery was fine but I am yet to even have my follow up appointment with a specialist to confirm that the surgery worked and to address my current issues. The woes of the NHS waiting list : (

Current issues being, I haven't felt the same since my collapses and surgery. Everyday my chest is in immense pain, on both sides, and when I am on my period these feelings are heightened. My anxiety is also extreme which is common place for pneumothorax sufferers. I haven't left my home in 8 weeks post surgery due to fear of it happening again. I'm on long term sick from my job that I absolutely adored as I cannot even commute to work without intense pain. If my lung collapses are related to my period (which I'm sure they are) that means I have endometrium tissue piercing into my chest cavity and threatening my heart and other major organs.

I have a silly logic. I don't want to suffer or be in pain. So I'll prolly CTB after I talk to my specialist and question him on my concerns of it being catamenial. I've been brushed off by the NHS medical system, misdiagnosed and not believed. I have a feeling it's because I'm a young woman and they couldn't care less or just have no clue about this lung stuff. When I bring up my concern of it being related to my period I genuinely get a zombie like stare from the doctors and no response...I feel like I'm fucking crazy.
My GPs are at a loss on how to help, I ring them about once a week telling them the pain is increasing. I also feel my right lung spasm inside of my chest cavity every few minutes and my surgery scars, especially where the post surgical chest drain sat, burn at night. I haven't had a decent sleep since they put me under for the surgery lol ! If death could be like being put under for surgery I'd be a very happy lady. God knows when I will next see a specialist, I've been told I'm on a waiting list for the actual waiting list itself so it could be years. I expect my left lung will collapse by then as the pain on that side of my body is increasing every day. Knowing I will have another medical emergency (statisically it's a guarantee) that might snuff me out is agonising. I would rather have control over my own death and via lung collapse is...not pleasant ! With each collapse the chance of it becoming fatal is pretty high, my right lung should hold up due to surgery but smaller tears can still occur even post surgery lol.

 

[lizzywizzy09]

Hi all, I would like to share my struggles with you all, about my lung troubles! I am a mid 20's woman, UK.

Late April this year my right lung collapsed spontaneously while I was at work (I work in drug development), searing shoulder and collar bone pain on my right side coupled with sweating, and an impending sense of doom appeared out of nowhere. I brushed it off at first as an anxiety attack but I felt a sudden urge to seek help. Paramedics arrived and assumed I was having a blood clot ,as I am on birth control, but an ECG/Blood Oxy/Pulse came back all normal. I was sent to hospital in an ambulance for further tests. A chest X-ray was peformed at hospital and I was discharged with 'muscle sprain' by the doctor. I returned home and went to work the next day with major breathlnessness and could hardly hold a conversation. Even coworkers noted it was odd. I felt pretty silly, I just went in an ambulance at my bloody work only to be discharged with a muscle spasm!? Well, I got a call later on in that day from the hospital apologising over and over again and that I do infact have a 'primary spontaneous pneumothorax' and I need to return immediately (they didnt check the xray results the day prior lololol). No chest drain was placed into my chest and treatment was to rest at home but I was cautioned to return once a week to monitor if the tear in my lung was healing. It was and I was seen by a lung specialist who told me this may reoccur and that it could be related to my period cycle (Catamenial Pneumothorax) as it happened on the first day of my menstruation.

Two months after, my second pneumothorax occured after I picked up my bath mat after showering. Same impending sense of doom, searing pain and the feeling of air bubbles rippling against my rib cage. I was kept in overnight at hospital with oxygen and scheduled for a pleurodesis surgery the week after. This surgery staples the troublesome right lung to the chest cavity wall via chemical means (talc) to prevent any more major pneumothorax. My period also started immediately after my second tear.

Surgery was fine but I am yet to even have my follow up appointment with a specialist to confirm that the surgery worked and to address my current issues. The woes of the NHS waiting list : (

Current issues being, I haven't felt the same since my collapses and surgery. Everyday my chest is in immense pain, on both sides, and when I am on my period these feelings are heightened. My anxiety is also extreme which is common place for pneumothorax sufferers. I haven't left my home in 8 weeks post surgery due to fear of it happening again. I'm on long term sick from my job that I absolutely adored as I cannot even commute to work without intense pain. If my lung collapses are related to my period (which I'm sure they are) that means I have endometrium tissue piercing into my chest cavity and threatening my heart and other major organs.

I have a silly logic. I don't want to suffer or be in pain. So I'll prolly CTB after I talk to my specialist and question him on my concerns of it being catamenial. I've been brushed off by the NHS medical system, misdiagnosed and not believed. I have a feeling it's because I'm a young woman and they couldn't care less or just have no clue about this lung stuff. When I bring up my concern of it being related to my period I genuinely get a zombie like stare from the doctors and no response...I feel like I'm fucking crazy.
My GPs are at a loss on how to help, I ring them about once a week telling them the pain is increasing. I also feel my right lung spasm inside of my chest cavity every few minutes and my surgery scars, especially where the post surgical chest drain sat, burn at night. I haven't had a decent sleep since they put me under for the surgery lol ! If death could be like being put under for surgery I'd be a very happy lady. God knows when I will next see a specialist, I've been told I'm on a waiting list for the actual waiting list itself so it could be years. I expect my left lung will collapse by then as the pain on that side of my body is increasing every day. Knowing I will have another medical emergency (statisically it's a guarantee) that might snuff me out is agonising. I would rather have control over my own death and via lung collapse is...not pleasant ! With each collapse the chance of it becoming fatal is pretty high, my right lung should hold up due to surgery but smaller tears can still occur even post surgery lol.

I felt this deep inside. Doctors don't give a shit about women. I swear their eyes all glaze over and they're half falling asleep if you even bring up periods. If we're not actively trying to concieve they don't wanna hear about you or know about you, even if your quality of life is severely impacted, even if the health repercussions are dire. It is neglect and if there was any justice in the world they'd lose their license or get sued to kingdom come for medical malpractice. I like to imagine there's at least a special place in Hell for them if it exists.

I am so sorry. My Dm's are always open if you want to talk.

 

[dr18]

I felt this deep inside. Doctors don't give a shit about women. I swear their eyes all glaze over and they're half falling asleep if you even bring up periods. If we're not actively trying to concieve they don't wanna hear about you or know about you, even if your quality of life is severely impacted, even if the health repercussions are dire.

I am so sorry. My Dm's are always open if you want to talk.

Exactly!! I got lucky my first lung collapse as the lung specialist who helped me, was a woman! Thank god because she was ever so caring and lovely and prompted me to get on other doctors butts if another collapse happens, due to her suspecting its relation to my periods. As it is a matter of emergency, if there is tissue threatening my chest cavity I will need literal sections of lung removed alongside other parts of my chest cavity (diaphragm).

This condition is rare and my heart sunk when I read it's relation to periods...Because I knew from that day on I would never be taken seriously ever again. Compared to other health issues I've had (Eczema, ptsd) this is going to be tough to be 'believed'. I try to push it from my mind til I speak again with a specialist to address my fears of this. For now, all I know is my lung might of just collapsed randomly...! Ugh I just remember I went A&E two weeks ago due to intense pain again and my GP wanting an X-Ray to confirm no new collapse and the A&E doctor's face just ... glazed over and he looked 'through' me as soon as I said "I'm on my period and these chest pains reoccur stronger on the first day of my period". He said nothing at all. Just offered morphine...Wonderful.

Thank you love, same to you if you'd like to chat.

 

[yellowjester]

@dr18
I'm sorry you're not being taken serious snough. Medicine has a history of... not being exactly kind to women. I know how doctors talk about their female patients behind their backs and it f--ing disgusts me.

The best advice I can give you is to bring someone with you to the appointment. It would make things a lot easier for you. It doesn't have to be a man, just another pair of eyes and ears to make sure they're not dismissing your pain.

 

[NikolaiK]

I have social anxiety and feel depressed whenever i am around people but feel happy when im on my own, i think i am possibly autistic. Despite my mental health problems my serious suicidal thoughts didn't occur until my chronic health problems started, i could've lived with my mental health problems as i had many goals and hobbies but my chronic health problems are making life not worth living.

I have arthritis, gut problems, chronic knee pain from an old inury that won't heal, vision problems (keratoconus, lots of floaters, light sensitivity), and worst of all my teeth keep rotting despite always brushing twice day, eating no sugar, and not smoking. I spend so much time looking after my teeth cleaning them with dental appliances, taking loads of supplements, mouth wash etc but the tartar and decay keeps coming back no matter what i do, i won't be able to keep up my health routines for ever because its so tiring. I am 26 and having degenerative health problems at this age means i have a long life of pain to look forward to. Also exercise is one of the things that keeps me motivated and mentally healthy so having joint problems is a big problem for me.

Thinking about suicide is so comforting for me, already secured my SN.

 

[HD72]

I have social anxiety and feel depressed whenever i am around people but feel happy when im on my own, i think i am possibly autistic. Despite my mental health problems my serious suicidal thoughts didn't occur until my chronic health problems started, i could've lived with my mental health problems as i had many goals and hobbies but my chronic health problems are making life not worth living
I have arthritis, gut problems, chronic knee pain from an old inury that won't heal, vision problems (keratoconus, lots of floaters, light sensitivity), and worst of all my teeth keep rotting despite always brushing twice day, eating no sugar, and not smoking. I spend so much time looking after my teeth cleaning them with dental appliances, taking loads of supplements, mouth wash etc but the tartar and decay keeps coming back no matter what i do, i won't be able to keep up my health routines for ever because its so tiring. I am 26 and having degenerative health problems at this age means i have a long life of pain to look forward to. Also exercise is one of the things that keeps me motivated and mentally healthy so having joint problems is a big problem for me.

Thinking about suicide is so comforting for me, already secured my SN.

U r blessed to find a way out. I can't use SN. I wish a u peaceful departcher. I'm sorry this life was not good to you.

 

[WholeHereafter]

Most debilitating and unbearable physical dxs are mitochondrial dysfunction and severe CFS/ME. Other known dx is small fiber neuropathy, potential autoimmune. There are others, but mitochondrial dysfunction and CFS/ME are what brought me to feel as though life isn't worth living.

 

[Catch-22]

Most debilitating and unbearable physical dxs are mitochondrial dysfunction and severe CFS/ME. Other known dx is small fiber neuropathy, potential autoimmune. There are others, but mitochondrial dysfunction and CFS/ME are what brought me to feel as though life isn't worth living.

I was diagnosed with the same chronic fatigue syndrome and fibromyalgia And then they sent me to a terrible neurologist that said I had peripheral neuropathy but never did a biopsy to see if it was small fiber. And because other issues I was having I went to a private doctor and she thought she would test me for Lyme disease and co-infections and I was positive for several things. Western medicine is clueless on these things so it's something to look into. Lyme disease is a lot of time the root cause for chronic fatigue fibromyalgia MS and several autoimmune diseases. I've had it for around 5 decades so it's taken over every part of my body. I don't know what country you live in but if you can find a functional doctor they can do the proper testing. A lot of people are exposed to Lyme disease bacteria but the reason why some people get really sick from it is because of different factors including genetics exposure to mold and other things that suppress your immune system. It gets complicated but if you're young hopefully you can turn things around for me it's too late.

 

[PhDone]

Most debilitating and unbearable physical dxs are mitochondrial dysfunction and severe CFS/ME. Other known dx is small fiber neuropathy, potential autoimmune. There are others, but mitochondrial dysfunction and CFS/ME are what brought me to feel as though life isn't worth living.

I goddam hate ME/CFS. So sorry you have this shit. Its utterly disgusting. I have a few other co-morbidities too. Theres actually no life in this illness.

 

[WholeHereafter]

I goddam hate ME/CFS. So sorry you have this shit. Its utterly disgusting. I have a few other co-morbidities too. Theres actually no life in this illness.

Truly. I'm sorry this is also your reality. So many people have no idea. It is literally a living death.

 

[PhDone]

Truly. I'm sorry this is also your reality. So many people have no idea. It is literally a living death.

It absolutely is. I sit in constant state of disbelief that this is what I am in. That there is no way out. How can you walk into this trap? Once you're in the trap, you look around and there is no way back. Its like a door slammed shut behind me and I'm locked in here with nothing. Wtaf. Ive scoured around the darkness for something, anything, to help me sit here. But I am tormented and tortured by this realisation. Somewhere deep into the trap there is a small, almost imperceptible, door. Will be painful to find and worse to get through. But looking for it is all I have now. I spend my days looking for it in the dark. Fortunately there are other darkened souls on this hunt too. They are actually some of the most wise and compassionate people Ive ever met.

Interestingly of course the trap and the hunt are something my family dont have any understanding of. Its like Ive fallen into an alternative Universe, where I'm living alongside them but not of their world anymore.

 

[sunbleachedfliess]

i just wanted to say thank you for making this megathread, this space is very needed

 

[benjamind2020]

Already planning if I have another major episode with my hearing. Trying to get hold of barbiturates. With any luck I'll get hold of the vinylbital that I had back in 2015 but mistakenly threw away and it's now in landfill. Hopefully that was just a bad dream and I still have it somewhere...I doubt it, reality says it's gone and never be found again, but I've been turning my place inside out for a long time and still not vinylbital, still no cigar...shit out of luck. Apparently it's more deadly than Nembutal, so I'd be happy if I found it.

 

[chocolocothechocobo]

I have suspected Fibromyalgia, Autism, type 1 Diabetes and a few other illnesses that I am not comfortable with sharing. I have been suicidal for years and the main thing as to why I cant get rid of this idea is because of my chronic illnesses. It's hard to accept that my baseline pain level will most likely never be 0 again, that my hba1c levels have been so fucking terrible the past 16 years that in a couple of years I will also suffer the physical consequences of that and due to fatique and pain I often wont leave the house.
instead of suffering for the next few decades I could also just ctb and not suffer anymore.
I think the next flare up will be the time where the decision of ctb is final and where I will go through with it.

 

[supergold#2]

hi (again) friends, was on here a while back before my nearly succesful attempt (TECHNICALLY it was successful for, like, 15 minutes when i didn't have a pulse), but I'm back again for another go eventually.

i'm diagnosed bipolar 1, bpd, ptsd, mdd, and anxiety (plus some other non-situationally-pertinent others).
currently dealing with month 3 of CONSTANT psychosis, where i hear the two voices of my old upstairs neighbors either criticizing or telling me to do things (some good, most bad), which is ️cool️ and ️fun️, and I'm pretty sure that's gonna be a permanent fixation until i finally figure out a way to ctb that actually works.

i've ALSO got the fun repurcussions of hypoxia-induced brain damage (every doctor, including er, i've seen says it's "outside of [their] practice", so no formal diagnosis) added to the mix because of my last attempt (900mg temazapam, oral, and 3 blue fent press pills, smoked), where i was discovered by hikers who gave me cpr/narcan/called emts despite not having a pulse (or breathing) for an unknown amount of time prior (+ the 15 minutes it took between discovery and arriving at the hospital)

all that aside, im in limbo for a bit. i don't know really know when i'm gonna ctb, but my minds been made up for a while, just hanging around until it feels right lol

 

[CatLvr]

I have suspected Fibromyalgia, Autism, type 1 Diabetes and a few other illnesses that I am not comfortable with sharing. I have been suicidal for years and the main thing as to why I cant get rid of this idea is because of my chronic illnesses. It's hard to accept that my baseline pain level will most likely never be 0 again, that my hba1c levels have been so fucking terrible the past 16 years that in a couple of years I will also suffer the physical consequences of that and due to fatique and pain I often wont leave the house.
instead of suffering for the next few decades I could also just ctb and not suffer anymore.
I think the next flare up will be the time where the decision of ctb is final and where I will go through with it.

Man, I could have written this. I rarely have no pain at all. It is so rare, in fact, that I think "Man I feel weird" and then realize it's because I'm not hurting. Too bad it never lasts more than a half hour or so ... And I kinda remember it happening sometime at the first of this year ...

Lots and lots of time the fatigue is actually worse than the pain. I can deal with the pain -- but the fatigue. God the fatigue is just unbearable. And like you, every time I flare I start gauging staying here and dealing with this another 10-15 years or just checking out now and get it over with.

I'm almost 70 now, and have adult children I don't want to hurt, so I can see me just gutting it out until I get some kind of terminal diagnosis and then talking to the kids about taking a trip to country that will let me ctb after spending some time with the kids. That way they can come to terms with their mom leaving them without their mom abandoning them. I dunno if that makes any sense, or if I'm just a weirdo. They had a rough childhood. We were financially insecure -- dad never paid any child support, no one in either family helped us out. We lived in the projects and I worked ALL the time. Poor kids kinda had to raise themselves. I really feel guilty about that but I had to keep a roof over our heads and food on the table. Still, we got it done and they are good kids. I'm proud of the adults they are now. A lot smarter than I was at their ages.

 

[chocolocothechocobo]

Man, I could have written this. I rarely have no pain at all. It is so rare, in fact, that I think "Man I feel weird" and then realize it's because I'm not hurting. Too bad it never lasts more than a half hour or so ... And I kinda remember it happening sometime at the first of this year ...

Lots and lots of time the fatigue is actually worse than the pain. I can deal with the pain -- but the fatigue. God the fatigue is just unbearable. And like you, every time I flare I start gauging staying here and dealing with this another 10-15 years or just checking out now and get it over with.

I'm almost 70 now, and have adult children I don't want to hurt, so I can see me just gutting it out until I get some kind of terminal diagnosis and then talking to the kids about taking a trip to country that will let me ctb after spending some time with the kids. That way they can come to terms with their mom leaving them without their mom abandoning them. I dunno if that makes any sense, or if I'm just a weirdo. They had a rough childhood. We were financially insecure -- dad never paid any child support, no one in either family helped us out. We lived in the projects and I worked ALL the time. Poor kids kinda had to raise themselves. I really feel guilty about that but I had to keep a roof over our heads and food on the table. Still, we got it done and they are good kids. I'm proud of the adults they are now. A lot smarter than I was at their ages.

I totally get this. It feels like waiting for a "valid" reason to ctb so the family can have an easier grieving process and maybe it doesnt leave a big hole in their lives all of the sudden. it also gives them time to say goodbye properly.

 

[benjamind2020]

I'm waiting in terror for my next major blow-up. I'm not looking forward to it, but I just know it's gonna happen because doctors just don't want to do anything about it really. So I have to end things soon most likely. At the end/start of every year in summer around December/January/February something major happens and I get a big blow up, then I got them mid-year around early to mid July, and then sometimes around September/October I get them again, randomly. Big blow ups, leaving permanent damage.

I made a decision whilst I was in the hospital after my brain surgery that there was to be no more of this and that if it ever happened again that I would end it. It's funny having more than most people I know but wishing that this shit would stop so that I can actually enjoy what I have without any fear without any anxiety without any depression and without any rage attacks where I nearly break things or scream my lungs out with every 4 letter word under the sun. So I had to make a decision and it was a hard one. There is to be no more of these attacks. If one happens again that would be the end. I hate to say this, I really hate to say it, but things are not looking good because at this point no one in a position of medical authority has really addressed this problem (eg. prescribe immuno drugs, blood thinners, etc) anything that could at least potentially stop this bullshit, would ease my mind. They don't want to, so I guess I'll have to kill myself. I keep advocating for myself but it seems that doing so pushes away those who have the ability to actually help me. Again, I guess I'll have to kill myself because I can't get anything that might help me. All I have are steroids and they are fucking my bones to the point where a simple fall would land me in hospital for potentially months depending on what bones get broken. I know it isn't too far off where I'm going to end up with osteoporosis, fucked up vision, and lots of other ailments, all because I couldn't PREVENT this fucking bullshit from happening and THEREFORE not requiring pumping myself full of huge fucking doses of prednisone to fix a problem that could have been PREVENTED in the first fucking place.

I guess that's all I have to say, that's really all I can say.

 

[benjamind2020]

Oh, and people telling me to "live with it"...Really? Yeah, nah. I'm not putting up with this bullshit when I know there is a chance it could have been prevented. No way am I living with that knowledge. No chance. I repeat, no chance. My hearing was precious to me, but I'm not really thinking of it as precious anymore because I know it is going to get destroyed by whatever is constantly trying to rape it. At this point it isn't even going to matter what the underlying problem or cause is because my hearing is already fucked. I'd suggest that anyone who has this problem should either make peace with their condition or find a sympathetic doctor who will give them what they need.

With my case, I cannot find peace with this bullshit because it is destroying the essence of whoever the fuck I am. So I am counting myself out, and I don't care if someone gets upset at my decision. To me it's an unwanted medical condition, and the remedy is suicide. It's really no different to an unwanted pregnancy, and you will have choices depending on whether or not you live in a country governed by nutters. Suicide is a valid remedy for an unwanted medical condition that cannot be cured, especially where that condition has destroyed the essence of who you are, one that has destroyed your identity. Bilateral hearing damage where everything sounds like a very bad MP3 file is WORSE than losing your sexual function which alone is utterly devastating. So it should be easy to imagine just how bad this is.

I consider myself lucky I can communicate speech, because it isn't hard to imagine this getting so fucking bad that I will need cochlear implants just to be able to talk to someone.

 

[benjamind2020]

I have set boundaries. Bright lines were drawn. The camel has enough straw on its back for now. Those lines can't be crossed, no more straw on that camel's back for it would break.

And my body will never betray me ever again. For it it does, it suffers the ultimate penalty. Death. Yes, it's hard to believe that. But my body doesn't get to decide what I do. It is the other way around. I get to decide what my body does. I also get to decide whether my life is still exist or whether it ends. That's on me and nobody else. It's not up to my body as to what quality of life I will endure. That is entirely up to me.

 

[littleearthquakes]

I'm sorry so many here can relate. I've been feeling very alone and hopeless. I just had yet another close friendship fall apart because the person couldn't accept my depression and the hopeless nature of my chronic illnesses and pain. People say they can then try to fix me, give advice, force me to be positive or hopeful despite me saying from day one that doesn't work for me and isn't relevant to my situation.

I've never been believed or taken seriously. Almost no one truly accepts me. My pain is out of control, doctors are assholes, I can't find people who will even hold space for me. I'm so tired of it. It makes this all so much worse.

If anyone wants someone to talk to who gets it, my messages should be open. I'd appreciate it a lot too.

 

[nogods4me]

I will throw in my voice to keep this megathread going because people need to realize that the health care system is totally failed. There are people who have conditions that were not properly diagnosed and/or could have been prevented if the doctors and health care administrators did things properly. I will now almost certainly have to kill myself due to having a spinal disorder that could have been prevented if its early manifestation had been operated on long ago. Now I am forced to "live" with chronic pain, along with all my other problems, while being lied to and disrespected by medical doctors on a regular basis. Having to deal with their attitudes and bullshit only adds to my misery.

 

[PhDone]

Having to deal with their attitudes and bullshit only adds to my misery.

So bloody true. And people around us in general too. We have a daily fight that is disgraceful. And people then assert our mental health is problematic to healing. Omfg it makes me so triggered to have to even justify answers to their bs. I can even imagine the bs said after I die: "oh see, I knew it was mostly mental health"….thereby belittling mental health AND the reality of my physical health experience.

 

[littleearthquakes]

I'm sorry so many here can relate. I've been feeling very alone and hopeless. I just had yet another close friendship fall apart because the person couldn't accept my depression and the hopeless nature of my chronic illnesses and pain. People say they can then try to fix me, give advice, force me to be positive or hopeful despite me saying from day one that doesn't work for me and isn't relevant to my situation.

I've never been believed or taken seriously. Almost no one truly accepts me. My pain is out of control, doctors are assholes, I can't find people who will even hold space for me. I'm so tired of it. It makes this all so much worse.

If anyone wants someone to talk to who gets it, my messages should be open. I'd appreciate it a lot too.

Btw, for whatever reason I can't see private chats or the chatroom so please do a conversation if you message. Not sure what the issue is.

 

[PhDone]

I cannot find peace with this bullshit because it is destroying the essence of whoever the fuck I am.

Omg yes. I have hideous weird noises in my right ear constantly, cant sleep, got ME becoz of it. So i get your story. "Whoever the fuck i am" is exactly right. None of this bs is me. Done with it. Thanks for your honesty and open emotions around this.

 

[Luke77]

I have encountered multiple members here who, like myself, have chronic conditions and illnesses. I have met members here with a variety of physical diseases (chronic, terminal or otherwise).

I thought it would be useful to have a specific thread for that and a space where people can talk about their conditions (and how they cause or contribute to suicidality), vent and support one another. This is also an opportunity to connect with other members who may be experiencing similar struggles.

For those who have not seen my posts: I'm Persephone. I have a permanent physical disability (that I cannot disclose publicly for privacy reasons), CFS/ME, suspected fibromyalgia, possible rheumatoid arthritis (I am still undergoing tests to determine this), chronic IBS, post impairment syndrome, Raynaud's phenomenon and chronic muscle, joint, nerve and back pain, ongoing genital pain and fibroids, recurring headaches, breathing problems, sleep apnoea, shortsightedness and other visual issues. I also struggle with multiple mental illnesses in addition to this. Navigating complex illnesses and disabilities is a constant uphill struggle, often alienating, ostracizing with no hope or reward in sight and very few people who understand.

If you are dealing with chronic illnesses, physical disabilities or any sort of physical condition (diagnosed or undiagnosed), please feel free to post how you are doing, vent your frustrations and share as much or as little as you feel comfortable with.

Staff will monitor this thread to ensure it stays on topic and is a safe, supportive space for those who participate.

I'm jealous of the terminally ill

 

[suffering_mo]

So bloody true. And people around us in general too. We have a daily fight that is disgraceful. And people then assert our mental health is problematic to healing. Omfg it makes me so triggered to have to even justify answers to their bs. I can even imagine the bs said after I die: "oh see, I knew it was mostly mental health"….thereby belittling mental health AND the reality of my physical health experience.

God, this resonates so much. It only makes me more sick and wanting to give up that much faster. And you are SO right....there will never be an understanding or epiphany by them after I am gone.... they will feel justified in the way that they treated me.