Chronic Illnesses and Physical Diseases Megathread

[PhDone]

I'm jealous of the terminally ill

Omg yes

 

[nogods4me]

So bloody true. And people around us in general too. We have a daily fight that is disgraceful. And people then assert our mental health is problematic to healing. Omfg it makes me so triggered to have to even justify answers to their bs. I can even imagine the bs said after I die: "oh see, I knew it was mostly mental health"….thereby belittling mental health AND the reality of my physical health experience.

Disgraceful is the right word, yes. It almost seems like there is something about human nature that prevents most people from having real empathy toward those who are weakened due to being stricken by some kind of disorder including something as simple, even if mysterious, as bad luck.

 

[suffering_mo]

Disgraceful is the right word, yes. It almost seems like there is something about human nature that prevents most people from having real empathy toward those who are weakened due to being stricken by some kind of disorder including something as simple, even if mysterious, as bad luck.

You only get real and lasting empathy if you are dying. Most will be empathetic at first if you are sick or injured but as time goes on, this fades away and they expect you to just "get better already". It's really messed up.

 

[PhDone]

You only get real and lasting empathy if you are dying. Most will be empathetic at first if you are sick or injured but as time goes on, this fades away and they expect you to just "get better already". It's really messed up.

Omg this is so true. Its like people are hesitant to ask how you are in case the answer is "no change". They only really want to hear that you are better or improving. "The same" is like too depressing for them. Terminal is different because then everyone gets to rally round and play comfort roles. And be heralded for their support.

 

[suffering_mo]

Omg this is so true. Its like people are hesitant to ask how you are in case the answer is "no change". They only really want to hear that you are better or improving. "The same" is like too depressing for them. Terminal is different because then everyone gets to rally round and play comfort roles. And be heralded for their support.

100% yes. No one asks me any longer how I am doing or feeling. They don't want to hear it any longer. And if you bring anything up, they often will go silent and not even engage. It's so strange!! I've even been told that I need to have joy in my suffering and stop wallowing in misery, and realize that everyone carries burdens and that because life is short, I will only carry these for a short time. It's horse shit. I'm expected to live like this for decades and it's not short. I've barely been hanging on by a thread for several months, let alone years. I'd like them to walk in my shoes and then tell me this.

 

[PhDone]

100% yes. No one asks me any longer how I am doing or feeling. They don't want to hear it any longer. And if you bring anything up, they often will go silent and not even engage. It's so strange!! I've even been told that I need to have joy in my suffering and stop wallowing in misery, and realize that everyone carries burdens and that because life is short, I will only carry these for a short time. It's horse shit. I'm expected to live like this for decades and it's not short. I've barely been hanging on by a thread for several months, let alone years. I'd like them to walk in my shoes and then tell me this.

Omg this so much my experience too. Its like we have to do our best to not have others lives tainted by our presence. Fake the joy so we dont look unhappy, or bring anyone down. Bring anyone down??? Fml, try having some compassion and consider how we're doing well even being here. I wonder if/when we ctb what they'll say then? "Oh they really did need to try harder not to be miserable". Makes me mad. One day in my shoes and they'd be in utter shock.

All the positive toxicity and platitudes crap. Joy in your suffering, fmfl. If we dont 'make it through' we'll inevitably have everyone believing we were weak and miserable. Not overwhelmed in debilitating suffering. Its lose-lose.

 

[Monad]

I am dealing with constant back pain. About a year and a half ago, I was diagnosed with a herniated disc. No matter what I do, even laying down, causes moderate pain in my lower back. It isn't completely debilitating, but is something that impairs my daily life.

About 6 months ago, it got a lot better, but recently, due to some unfortunate circumstances and poor posture while doing things, it has come back.

I constantly thing the pain will never go away, even though it has in the past and will again, my brain things it won't.

I know it's not the worst thing in the world, but it causes me a lot of suffering.

I hope all of you are doing well and coping with the suffering of life. Love you all.

 

[howunfortunateforme]

I will throw in my voice to keep this megathread going because people need to realize that the health care system is totally failed. There are people who have conditions that were not properly diagnosed and/or could have been prevented if the doctors and health care administrators did things properly. I will now almost certainly have to kill myself due to having a spinal disorder that could have been prevented if its early manifestation had been operated on long ago. Now I am forced to "live" with chronic pain, along with all my other problems, while being lied to and disrespected by medical doctors on a regular basis. Having to deal with their attitudes and bullshit only adds to my misery.

I was given multiple drugs that caused permanent vidual and neurological issues so now I have to die very sad bc leaving kids behind but I'm disabled now after being a helathy active teacher and athlete very sad