Chronic Illnesses and Physical Diseases Megathread

[dr18]

The NHS does not seem to be able to treat anything nowdays

oh 100% agreed, they're so shit and incompetent. sure, ive met some wonderful nurses when i was inpatient for after my first surgery (that they completely fucked up, theyve disfigured my diaphragm causing constant pain/pressure issue swallowing/breathing) and its deffo some of the people that 'make' the NHS atleast 1% kind and considerate. but the 99% is...really fucking bad.

my first lung collapse was misdiagnosed by a pakistani female doctor, as "muscle sprain" in my chest wall.
after surgery to correct my lung collapses, another pakistani female doctor/surgeon said it is "theoretically impossible for it to be related to endometriosis". <-- obviously untrue because in the USA its standard practice to have a scope check up behind the liver/diaphragm/chest walls when looking for endo, as it can be more common than we might think.

IDK if its lack of knowledge or lack of inspiration to seek out new info as a doctor or whatever the fuck else. but most doctors do not seem to care. is what it is. i should of been more sue happy the first time they made a fuck up. and im waiting for the next fuck up to take it to court over.

 

[UnrulyNightmare]

so i took LDN within my first 2 months of Long COVID, in that time I also tried Zoloft and Cymbalta, which also gave me some kinda bad side effects, but nothing permanent like LDN has.

Now, 4 months in, I'm taking amitriptyline and 2 nasal meds and trialing Mestinon, and not having any significant side effects

It would be a miracle if my balance disorder could work out like your SSRI experience. I would probably start believing in a god. But it literally hasn't changed in the 3 months since I took that fateful dose.

Shit... No should have been gone by now. Sorry! Must be a horrible feeling... The meds do anything positive?

 

[qewpie]

Shit... No should have been gone by now. Sorry! Must be a horrible feeling... The meds do anything positive?

amitriptyline enables me to sleep more consistently 6-8 hours and getting back to sleep after waking up in the middle

the others do literally nothing, I've had sinus pressure since my Long COVID started and nothing has made a dent

 

[UnrulyNightmare]

amitriptyline enables me to sleep more consistently 6-8 hours and getting back to sleep after waking up in the middle

the others do literally nothing, I've had sinus pressure since my Long COVID started and nothing has made a dent

Uhgl. Well the sleep is a good thing.. I"m glad that's at least working!

I hate the pressure and tinnitus...

Thanks for putting up with my questions!

 

[Feux]

I have sickle cell disease and asthma. Fortunately, they don't impact my life as much as they used to. Autism, depression, anxiety and AvPD are way more difficult to live with for me.