Calling all with physical ailments for advice

[redbull]

I'm sorry to hear you're going through that. Idk if anyone has experienced the exact same thing, but it doesn't sound hard to believe to me, there are some conditions, a prion disease, where people are actually unable to sleep at all, or very very very little. It also comes with autonomic dysfunction. But because your problems came from the drugs it sounds like a kind of withdrawal. I'm not a doctor or anything lol just passing on what I know. Have you ever had your cortisol, norepinephrine and epinephrine levels checked?

It's not a withdrawal because it's been 4 months. I'm slowly dying a miserable death...

 

[clandestine]

It's not a withdrawal because it's been 4 months. I'm slowly dying a miserable death...

I'm sorry :( You should get the hormones I mentioned checked if you haven't already though, they're all implicated in insomnia

 

[lymbo]

This may sound hard to believe but I lost the ability to sleep. I had a bad dr who put me on multiple medications which interacted with each other and now i literally can't sleep naturally anymore. I'm living in hell. I don't think this has ever happened to anybody before in history. I suffer everyday.

@Nem here ys the same case dr fucked hym up and cant sleep synce

 

[redbull]

@Nem here ys the same case dr fucked hym up and cant sleep synce

Really? I never thought this could happen to a human.

 

[lymbo]

Really? I never thought this could happen to a human.

yes just search some of hys threats here

 

[Chronicillness]

This may sound hard to believe but I lost the ability to sleep. I had a bad dr who put me on multiple medications which interacted with each other and now i literally can't sleep naturally anymore. I'm living in hell. I don't think this has ever happened to anybody before in history. I suffer everyday.

What medications were you polydrugged with? I know you say you can't sleep naturally anymore, but what medication do you use to get sleep now?

A part of my illness is from psychiatric damage

 

[redbull]

What medications were you polydrugged with?

Gabapentin, xanax, and tramadol

 

[lymbo]

ys tramadol dangerous?

 

[redbull]

what medication do you use to get sleep now?

A part of my illness is from psychiatric damage

I take trazodone and mirtazapine. What happened to you, if you don't mind me asking?

ys tramadol dangerous?

It can interact with other medications because it isn't a typical opioid. It has antidepressant qualities such as an SSRI.

 

[lymbo]

I take trazodone and mirtazapine. What happened to you, if you don't mind me asking?

It can interact with other medications because it isn't a typical opioid. It has antidepressant qualities such as an SSRI.

lm askyng because dr prescrybed me tremadol for my payn but ym takyng antydepresant also and lorazapam

 

[redbull]

lm askyng because dr prescrybed me tremadol for my payn but ym takyng antydepresant also and lorazapam

I'm not a Dr but be careful. Go to another Dr for a second opinion if you can. Look what happened to me...

 

[justwhy?]

I see that FTL wanderer hasn't had success with them them but I really think you should try some nutritionists, ideally several reputable ones but all with different educational backgrounds (there are many schools for it).
Failing that - seeing a naturopath couldn't hurt.
You'll have to do it outside of the NHS ofcourse, which is a bugger but I think it's your best shot at getting answers.

 

[Deltrus]

Find ways to manage your disease, not to cure it, just to take the "edge" off it.

Accept that you will likely never get better. If you don't accept this, your disease will play with your emotions, you will constantly grasping for what you can't have, you will constantly be getting your hopes up. If you think you will never get better, then slight improvements will feel great, getting a bit worse wouldn't feel that bad either because it is within expectations.

If you love people, use that as a reason to keep going, you don't want to hurt them. Love is there to show us how much we can endure. You may feel like you are suffering and getting worse and worse, but if you find a reason that you can't die, humans can be surprisingly resilient to extreme suffering. Just most people do not have a reason.

Of course I don't want to marginalize anyone's suffering, it is up to them to make the decision of life and death.

I have CFS and am stuck in bed 23 hours a day. I am constantly feeling terrible and have no energy, sore muscles etc. The suffering is unrelenting. But both my dad and mom would be broken if I died. My brother is just starting his career and is in a very tenuous situation. If I died his whole future would probably change for the worse. I can't die, even if I get much worse and have to experience infinite suffering, I can't die. Of course this is my resolve now, maybe I'l think differently if that actually happens. I don't know.

 

[redbull]

@Nem @APharmaDestroyedLife If you can please help with your input, it would be much appreciated and help. Thank you

 

[justwhy?]

Find ways to manage your disease, not to cure it, just to take the "edge" off it.

Accept that you will likely never get better. If you don't accept this, your disease will play with your emotions, you will constantly grasping for what you can't have, you will constantly be getting your hopes up. If you think you will never get better, then slight improvements will feel great, getting a bit worse wouldn't feel that bad either because it is within expectations.

If you love people, use that as a reason to keep going, you don't want to hurt them. Love is there to show us how much we can endure. You may feel like you are suffering and getting worse and worse, but if you find a reason that you can't die, humans can be surprisingly resilient to extreme suffering. Just most people do not have a reason.

Of course I don't want to marginalize anyone's suffering, it is up to them to make the decision of life and death.

I have CFS and am stuck in bed 23 hours a day. I am constantly feeling terrible and have no energy, sore muscles etc. The suffering is unrelenting. But both my dad and mom would be broken if I died. My brother is just starting his career and is in a very tenuous situation. If I died his whole future would probably change for the worse. I can't die, even if I get much worse and have to experience infinite suffering, I can't die. Of course this is my resolve now, maybe I'l think differently if that actually happens. I don't know.

Are your family considerate enough to supply you with eg cannibis edibles and an ongoing stream of video games? I'd be such a princess in your situation !

 

[Deltrus]

I have no energy for video games and I had a psychotic episode once so I have to stay away from THC. I tried THC a few times before and I wasn't sure if I liked it, the time distortion felt weird and I didn't find it too pleasurable.

I read, browse the internet, listen to music, and watch people play games on twitch. Those are my hobbies. I read pretty much every book I'd like though so I'm stuck reading the b tier novels most of the time.

 

[justwhy?]

I have no energy for video games and I had a psychotic episode once so I have to stay away from THC. I tried THC a few times before and I wasn't sure if I liked it, the time distortion felt weird and I didn't find it too pleasurable.

I read, browse the internet, listen to music, and watch people play games on twitch. Those are my hobbies. I read pretty much every book I'd like though so I'm stuck reading the b tier novels most of the time.

That sucks. There's nothing like the devil's lettuce for banishing interminable boredom and bodily discomfort, without resorting to drugs with a nasty sting in their tail anyway.