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WhiteRabbit

WhiteRabbit

I'm late, i'm late. For a very important date.
Feb 12, 2019
1,716
If you're unlucky it can unleash an entire syndrome upon you (known as 'fluoroquinolone toxicity syndrome' aka 'floxing' or being 'floxed'). This can include 30, 40 even 50+ adverse events being experienced simultaneously and persisting for years if not forever. This class of antibiotics is known to interfere with the production of collagen as well as cause mitochondrial dysfunction which can result in everything from spontaneous tendon ruptures, joint degradation, neuropathy, vision damage, hearing loss, cognitive problems--you name it. The current warning insert for Cipro is 53 pages long and is up to I believe three black box warnings now.

Anyway, I'm one of the unlucky 'forever' cases. I've been severely disabled for over a decade now and live in constant agonizing, intractable pain. I truly wish the Cipro had just killed me. Please be extremely careful if a doctor ever tries to prescribe you Cipro again (or any of the other antibiotics in its class). They are supposed to be used in life-or-death situations only after other, less dangerous antibiotics have failed. Trust me: You do not want to end up in a wheelchair or bedridden over a UTI. It's not worth it. Many doctors still deny that Cipro even does this to people. You have to really look out for yourself out there.
I have a friend that had this happen to them. I always refuse Cipro now. I'm surprised it's still being prescribed so frequently.
 
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CiproKilledMe

CiproKilledMe

Experienced
Mar 23, 2021
243
You're right. Because I'm on disability for psych issues. I can leave I guess but the more I stay in my room the more I feel trapped in it. I was abused as a kid and I guess my brain took over as abuser.

Wow, I'm really sorry to hear that. Yea, we can definitely become our own worst enemies in our heads. I can't even pretend to know what you're going through. I hope you're getting some sort of help?

I have a friend that had this happen to them. I always refuse Cipro now. I'm surprised it's still being prescribed so frequently.

It's criminal at this point, honestly.
 
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Weebster

Weebster

Everyone is alone. Everyone is empty.
Mar 11, 2022
1,683
Wow, I'm really sorry to hear that. Yea, we can definitely become our own worst enemies in our heads. I can't even pretend to know what you're going through. I hope you're getting some sort of help?



It's criminal at this point, honestly.
It's hell. Almost every therapist and doctor is surprised I bother lol I'm doing EMDR therapy for ptsd, but I'm not seeing change. A few insights gained though.
 
CiproKilledMe

CiproKilledMe

Experienced
Mar 23, 2021
243
It's hell. Almost every therapist and doctor is surprised I bother lol I'm doing EMDR therapy for ptsd, but I'm not seeing change. A few insights gained though.

They've actually told you they're surprised you're trying to get better?? :O I'd never heard of EMDR before but I just watched a Youtube vid about it. Very interesting! Sorry to hear it's not working for you (yet, anyway). Have you looked into ayahuasca? Although I suppose going to one of those retreats might be too much for you if you're unable to leave your house. It's good that you're trying to heal yourself though. I definitely wish you luck. It sounds like life hasn't been very kind to you.
 
Weebster

Weebster

Everyone is alone. Everyone is empty.
Mar 11, 2022
1,683
They've actually told you they're surprised you're trying to get better?? :O I'd never heard of EMDR before but I just watched a Youtube vid about it. Very interesting! Sorry to hear it's not working for you (yet, anyway). Have you looked into ayahuasca? Although I suppose going to one of those retreats might be too much for you if you're unable to leave your house. It's good that you're trying to heal yourself though. I definitely wish you luck. It sounds like life hasn't been very kind to you.
They're surprised I'm still alive. "Well doc, give me euthanasia." Lol

The healing is too slow. I did therapy for years until adulthood. It was a complete waste. I'm so angry. They wanted to focus on my immediate problems instead of the underlying ones.
 
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CiproKilledMe

CiproKilledMe

Experienced
Mar 23, 2021
243
I have tendinitis but I attributed it to working out. It occurred a month after I finished cipro. Related?

^Wow, I just saw that you added this. Yea, that's probably not a coincidence! Cipro is very well known for causing tendon "issues" as Bayer likes to call them. Had you ever had tendonitis before? Do you still have it?

And it sounds like you might need to find a new therapist and/or doctor. I don't think I'd want my therapist to tell me he/she is surprised I'm still alive 🤦‍♂️
 
CiproKilledMe

CiproKilledMe

Experienced
Mar 23, 2021
243
The tendon issues appeared when I went too hard on the stretch bands. A few months later I still have it. They can't get better because I have to use my hands throughout the day which keeps aggravating the tendons in my forearms. Never had it before but i hadn't worked out in years.

Yea, that timing is a little too convenient for me. Hopefully it'll resolve with time somehow.
 
L

Lifessocruel

Member
Aug 23, 2021
62
^Wow, I just saw that you added this. Yea, that's probably not a coincidence! Cipro is very well known for causing tendon "issues" as Bayer likes to call them. Had you ever had tendonitis before? Do you still have it?

And it sounds like you might need to find a new therapist and/or doctor. I don't think I'd want my therapist to tell me he/she is surprised I'm still alive 🤦‍♂️
Only a few months after I took antibiotics not only had i lost my mind, had a heart attack, chronic fatigue, liver damage ect I also developed tendonitis, my body is much weaker now. Little did I know I was slowly killing myself taking that shit. Its a slow painful end.
 
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Weebster

Weebster

Everyone is alone. Everyone is empty.
Mar 11, 2022
1,683
Yea, that timing is a little too convenient for me. Hopefully it'll resolve with time somehow.
Do people often recover? I'm worried about new developments. How long were you on it? I was on it for a week. I said last fall but it was actually in December now that I think about it.
Only a few months after I took antibiotics not only had i lost my mind, had a heart attack, chronic fatigue, liver damage ect I also developed tendonitis, my body is much weaker now. Little did I know I was slowly killing myself taking that shit. Its a slow painful end.
Which one did you take?
 
CiproKilledMe

CiproKilledMe

Experienced
Mar 23, 2021
243
Only a few months after I took antibiotics not only had i lost my mind, had a heart attack, chronic fatigue, liver damage ect I also developed tendonitis, my body is much weaker now. Little did I know I was slowly killing myself taking that shit. Its a slow painful end.

Do you know which antibiotic(s)? They're definitely a fast-track to an elderly body.

Do people often recover? I'm worried about new developments. How long were you on it? I was on it for a week. I said last fall but it was actually in December now that I think about it.

Most people recover, yes. It can take a long time though. Just be careful not to overextend yourself as you don't want to cause any tendon tears or ruptures. I was on it for less than a week. Course length doesn't really correlate well though as some people take one pill and get utterly destroyed while others can take it for months or even years before they finally get struck (and some don't get struck at all, perplexingly).
 
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L

Lifessocruel

Member
Aug 23, 2021
62
Do people often recover? I'm worried about new developments. How long were you on it? I was on it for a week. I said last fall but it was actually in December now that I think about it.

Which one did you take?
I actually had two different ones, one called Fluxacillion and fusidic acid. Completely ruined my life. Now suicide is inevitable not matter how much I try I'm not going to live like this for long.
 
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L

Lifessocruel

Member
Aug 23, 2021
62
I was on them around 5 weeks on and off I wouldn't worry too much if its just a week.
 
Weebster

Weebster

Everyone is alone. Everyone is empty.
Mar 11, 2022
1,683
I was on them around 5 weeks on and off I wouldn't worry too much if its just a week.
Your antibiotics weren't in the same class as cipro or were they?
Do you know which antibiotic(s)? They're definitely a fast-track to an elderly body.



Most people recover, yes. It can take a long time though. Just be careful not to overextend yourself as you don't want to cause any tendon tears or ruptures. I was on it for less than a week. Course length doesn't really correlate well though as some people take one pill and get utterly destroyed while others can take it for months or even years before they finally get struck (and some don't get struck at all, perplexingly).
I showed my orthopedist and he said I'm too young to have so many injuries. My Achilles had been hurting too but it stopped. He prescribed ibuprofen 600mg 3 times a day for 2 weeks and said after that to exercise again. Was that bad advice?

Sorry to bug you but im freaking out.
 
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L

Lifessocruel

Member
Aug 23, 2021
62
so it was Flucloxacillin I took and they are similar and just as bad especially if taken alot.
Just thinking about it kinda wants to make me end it right now, I give myself a few weeks max, I'm hoping k will save me. Its a long shot but who knows, I've heard good things
Just thinking about it kinda wants to make me end it right now, I give myself a few weeks max, I'm hoping k will save me. Its a long shot but who knows, I've heard good things
 
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CiproKilledMe

CiproKilledMe

Experienced
Mar 23, 2021
243
Are my tendons less likely to
heal than the average person as a result of the drug?

And is the tendons moving across the top bone of my spine bad? I coughed so hard that I hurt something and the pain radiated down my spine. I went to the ER and they gave some shots and the pain went away.

Assuming it was indeed the Cipro that caused the problem then yes, they're less likely to heal than an average person's because they've now been chemically altered. That doesn't mean they can't still heal...it'll just take more time than "normal" tendons would. And you definitely don't want to do anything that could make them worse. For the first year or so after becoming floxed your #1 priority should really be to avoid causing any further injury. It takes our bodies a lot of time to figure out what to do with this shit since it's a chemical/cellular injury caused by a manmade synthetic chemical that our bodies did not evolve to know how to handle.

What shots were you given in the ER? I hope not corticosteroids. Also I think you'd written something about being given ibuprofen? That's an NSAID which are supposed to be avoided if/when a person has been floxed. NSAIDS and corticosteroids are contraindicated with fluoroquinolone antibiotics--and not just while taking the antibiotics. After you've "fallen victim" to them as well. I unfortunately learned this the hard way when in 2020 I used a tiny bit of a topical steroid on a skin rash and it completely obliterated me. That's when I went from being merely housebound to 100% bedridden. A normal, non-floxed person could've used that topical steroid with no issues whatsoever.
 
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Weebster

Weebster

Everyone is alone. Everyone is empty.
Mar 11, 2022
1,683
Assuming it was indeed the Cipro that caused the problem then yes, they're less likely to heal than an average person's because they've now been chemically altered. That doesn't mean they can't still heal...it'll just take more time than "normal" tendons would. And you definitely don't want to do anything that could make them worse. For the first year or so after becoming floxed your #1 priority should really be to avoid causing any further injury. It takes our bodies a lot of time to figure out what to do with this shit since it's a chemical/cellular injury caused by a manmade synthetic chemical that our bodies did not evolve to know how to handle.

What shots were you given in the ER? I hope not corticosteroids. Also I think you'd written something about being given ibuprofen? That's an NSAID which are supposed to be avoided if/when a person has been floxed. NSAIDS and corticosteroids are contraindicated with fluoroquinolone antibiotics--and not just while taking the antibiotics. After you've "fallen victim" to them as well. I unfortunately learned this the hard way when in 2020 I used a tiny bit of a topical steroid on a skin rash and it completely obliterated me. That's when I went from being merely housebound to 100% bedridden. A normal, non-floxed person could've used that topical steroid with no issues whatsoever.
How do I even heal? Every time I use my hands those tendons are being used. After having slept, they look less inflamed but I can't sleep all day. I wrap them but it only helps a little.

Yeah I was on ibuprofen and the ER doc gave me a steroid shot and an anti-inflammatory. Since I had no adverse reactions to the NSAID and shots, does that mean I'm not floxed?
Assuming it was indeed the Cipro that caused the problem then yes, they're less likely to heal than an average person's because they've now been chemically altered. That doesn't mean they can't still heal...it'll just take more time than "normal" tendons would. And you definitely don't want to do anything that could make them worse. For the first year or so after becoming floxed your #1 priority should really be to avoid causing any further injury. It takes our bodies a lot of time to figure out what to do with this shit since it's a chemical/cellular injury caused by a manmade synthetic chemical that our bodies did not evolve to know how to handle.

What shots were you given in the ER? I hope not corticosteroids. Also I think you'd written something about being given ibuprofen? That's an NSAID which are supposed to be avoided if/when a person has been floxed. NSAIDS and corticosteroids are contraindicated with fluoroquinolone antibiotics--and not just while taking the antibiotics. After you've "fallen victim" to them as well. I unfortunately learned this the hard way when in 2020 I used a tiny bit of a topical steroid on a skin rash and it completely obliterated me. That's when I went from being merely housebound to 100% bedridden. A normal, non-floxed person could've used that topical steroid with no issues whatsoever.
I read that you can't take antidepressants either. I'm on Prozac. I feel fine.
 
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CiproKilledMe

CiproKilledMe

Experienced
Mar 23, 2021
243
How do I even heal? Every time I use my hands those tendons are being used. After having slept, they look less inflamed but I can't sleep all day. I wrap them but it only helps a little.

Yeah I was on ibuprofen and the ER doc gave me a steroid shot and an anti-inflammatory. Since I had no adverse reactions to the NSAID and shots, does that mean I'm not floxed?

I read that you can't take antidepressants either. I'm on Prozac. I feel fine.

Good questions. I wish I had tips on how to heal from this shit other than just time. It's the only thing I ever found that helped. But yea...exercise intolerance (or just use intolerance) is a problem.

Not everyone who's floxed has issues with NSAIDs and/or steroids but as a rule they should be avoided--especially steroids. I've taken NSAIDs (accidentally) while floxed before and never suffered any ill effects from them. The steroid I wasn't nearly as lucky with.

It's not me who can't take antidepressants, I was saying I know others on this site who've had terrible adverse reactions to them. Point being that you've gotta be really careful with these Rx drugs because while one might not get you, another one will if you keep rolling the dice. I've taken Prozac myself before and 'got away' with it only to get slammed by Cipro. Someone else might take Cipro with no problem and then get slammed by Prozac. It's all a crapshoot.

If you are indeed floxed, it's pretty mild as far as floxings go so I wouldn't lose too much sleep over it. But DEFINITELY do not ever take another fluoroquinolone again. That would be the ultimate test of whether or not you're currently floxed and you don't want to find out via a re-exposure!
 
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Weebster

Weebster

Everyone is alone. Everyone is empty.
Mar 11, 2022
1,683
Good questions. I wish I had tips on how to heal from this shit other than just time. It's the only thing I ever found that helped. But yea...exercise intolerance (or just use intolerance) is a problem.

Not everyone who's floxed has issues with NSAIDs and/or steroids but as a rule they should be avoided--especially steroids. I've taken NSAIDs (accidentally) while floxed before and never suffered any ill effects from them. The steroid I wasn't nearly as lucky with.

It's not me who can't take antidepressants, I was saying I know others on this site who've had terrible adverse reactions to them. Point being that you've gotta be really careful with these Rx drugs because while one might not get you, another one will if you keep rolling the dice. I've taken Prozac myself before and 'got away' with it only to get slammed by Cipro. Someone else might take Cipro with no problem and then get slammed by Prozac. It's all a crapshoot.

If you are indeed floxed, it's pretty mild as far as floxings go so I wouldn't lose too much sleep over it. But DEFINITELY do not ever take another fluoroquinolone again. That would be the ultimate test of whether or not you're currently floxed and you don't want to find out via a re-exposure!
What's exercise intolerance? What happens if I exercise and am floxed? What happens if you get a steroid shot while floxed?

Thanks for being patient with me. It's all just more shit to worry about.
 
CiproKilledMe

CiproKilledMe

Experienced
Mar 23, 2021
243
What's exercise intolerance? What happens if I exercise and am floxed? What happens if you get a steroid shot while floxed?

Thanks for being patient with me. It's all just more shit to worry about.

Exercise intolerance just means exercising makes your symptoms worse. No two people are floxed the same way or to the same extent so some people may still be able to exercise somewhat (or endure physical therapy) while others simply can't. I tried physical therapy back in the early days and it just made everything so much worse.

Steroids when used in conjunction with FQs (or even after the fact) also run the risk of making things a whole lot worse. Here's a pretty good article about that: https://www.pharmacytimes.com/view/fluoroquinolones-and-steroids-an-achilles-heel-interaction
 
J

Journeytoletgo

Broken and hated 7-14 years long overdue
May 14, 2018
1,608
In my opinion yes. I have severe severe anxiety and it's why I'm unable to go ALL the way with it
 
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