I've heard sometimes you can get palliative care without having a terminal illness. I'm in some support groups on fb and there are quite a few people in palliative care with arachnoiditis (which isn't life threatening at all, just horribly painful).
I am trying to sue. Don't know what my odds are of winning though...malpractice is so tough to prove.
damn I'm sorry you were committed. It's awful. I was in one of the top 10 psych wards supposedly in the US and it was still awful and scary.
is there no chance to find a doctor who is willing to prescribe what works for you? I haven't been able to get any narcotics yet so I don't know how that works. I've only recently been diagnosed. I'm so scared of my next flare up...I just don't want to live to see it. I feel so selfish being like that though. Bleh.
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I've heard sometimes you can get palliative care without having a terminal illness. I'm in some support groups on fb and there are quite a few people in palliative care with arachnoiditis (which isn't life threatening at all, just horribly painful).
I am trying to sue. Don't know what my odds are of winning though...malpractice is so tough to prove.
damn I'm sorry you were committed. It's awful. I was in one of the top 10 psych wards supposedly in the US and it was still awful and scary.
is there no chance to find a doctor who is willing to prescribe what works for you? I haven't been able to get any narcotics yet so I don't know how that works. I've only recently been diagnosed. I'm so scared of my next flare up...I just don't want to live to see it. I feel so selfish being like that though. Bleh.
It's impossible to even get a doctor let one one that will give me a script for opiods. We have a shortage of doctors where I am and not long ago 2 retired and they both had large practices. Since then we only got 1 new doctor so the situation is even worse than before.
When I first moved here I tried talking to every doctor I could (including 2 who were friends of the family albeit loosely) and as soon as they saw I was on opiods every one said they refuse to write RX for that. They could care less if it was a necessity or not. Thankfully at the time I still had my doctor from where I was living before I had to move home but it also meant I had to drive 8hrs each way every 2 months.
Talk about a fucked up situation.
It's a good suggestion but I don't see how palliative care can really do anything for me. There's nothing that can be done for my back and while I have bulging discs, a ruptured disc, my C1 rotated way further than it should be etc etc etc, they still don't see anything "wrong". In a way I understand as people can have way worse MRI's and have no pain but they also know that people with healthier MRI's than me have severe pain.
In a nutshell I'm f*ckef and no one in the medical community gives a shit.
I wish you the best of luck with treatment and make sure you stand up for yourself and dont let them push you around. These days you have to be your own advocate and fight to get the right treatments. You just might get a doctor that actually cares and will do his job properly. It's rare but been known to happen ;) Let hope you get one that does give a shit.