Discussion How my eyes look like while relaxing on Atropine 1% sulfate drops and a short video showcasing my visual impairment.

[calebzz1]

Hey all, I'm just posting this to give people a snippet of what I go through on a daily basis regarding my visual impairment.

I posted the pictures before in chat but I wanted to give a fuller picture by adding an additional video too.

I will upload two pictures, they are both of my left and right eyes respectively while being on my Atropine 1% sulfate drops.

They are dilated because of that, don't worry I'm not on anything LOL!

Also, I will attach a short clip of how my impairment is in real time.

If anyone has experienced this before or also deals with a similar issue feel free to leave a reply below as I'm open to taking any advice.

I'm basically going for disability benefits and eventually a voucher since I can't go back to work for at least a year due to my symptoms.

Thank you all for the support in chat, that means a lot.

Have an excellent day guys!

 

[feakfjnkje]

oh man thats pretty nuts to see on video.

 

[EmptyBottle]

I think there are jobs available for ppl with visual impairments, tho still, I wonder what causes it, and how it may be fixed

 

[luvpup]

ts is fucked up man. you know i care abt u bro. this is fucked and anyone who sees this and says bro just get it fixed bro ur good just chill w us bro. SHOULD DIE!!!!!!!!!

 

[Blurry_Buildings]

O hi! :D I remember you. I have the same disorder. You were the second person I found here with it. I got it partially corrected but started having constant eye pain and blurred vision after the surgery. I've been told the surgery is worth it for most people though, unless your insurance is willing to cover vision therapy. There are studies that have found a higher likelihood of developing depression or anxiety when you have it. Im sorry you are going through it right now :c

 

[calebzz1]

I think there are jobs available for ppl with visual impairments, tho still, I wonder what causes it, and how it may be fixed

Yeah, worst case I could a job if absolutely necessary but I'm barely functional most days which is why I need long-term disability benefits.

I think the condition is tied to my nervous system like my independent optometrist explained recently and neurological in nature even though my MRI/MRA is clear.

The only paths available is patching alternately for about a year or so.



This was backed by four providers but for some reason my independent optometrist does not agree with it.

I also plan to pursue vestibular and vision therapy (if the latter is available) with my independent optometrist.

Last but not least, therre may be medications available that could assist somehow.

My neuro-ophthalmologist was not comfortable prescribing them but the neurologist I see could do it potentially.

That's really all I can do for now.

 

[calebzz1]

O hi! :D I remember you. I have the same disorder. You were the second person I found here with it. I got it partially corrected but started having constant eye pain and blurred vision after the surgery. I've been told the surgery is worth it for most people though, unless your insurance is willing to cover vision therapy. There are studies that have found a higher likelihood of developing depression or anxiety when you have it. Im sorry you are going through it right now :c

Thanks man, sorry to hear about your surgical complications.

I have obtained three different opinions which is why I think surgery won't work and will list them below.

1. A top adult strabismus surgeon with fifty years of experience stated that there was about five other people with a similar case and the one woman who got surgery done had to have everything reversed.

2. An adult strabismus surgeon who works with adults and kids explained that the risks outweigh the benefits for my situation.

3. A colleague of the pediatric ophthalomologist I see stated that my movements are too intermittent and variable.

I could get another opinion but I feel like it's too risky honestly and I'm willing to be patient and take the long route.

At least I'll get disability benefits which will help fund future treatment.