Help Help navigating life as a disabled person

[TheDissapointment]

I've been struggling with living life and being disabled. It's becoming harder to think, move, and do anything, but I try to push forward to not disappoint the people around me- I always seem to anyway. I've been trying to not think about what others say and just try to focus on my life and what I want, but it's hard when you're constantly struggling and need help from other's…
I don't want to be a disappointment but it constantly feels like that's all I'll ever be since I don't know how to be anything else…
I'm being a bit vague here, but I worry about making things too long and I don't even know where to begin with specifics… I'll elaborate if anyone asks.

If anyone has any advice on my situation specifically, something vague that might help anyone, or just want to express relatability, feel free to reply! ♥︎

 

[persimmon]

Welcome aboard, TD. I think giving a few specifics would help - there are quite a few of us on here struggling with physical disabilities, maybe some similar to your own. Good luck.

 

[Callie Arcale]

Hello there @TheDissapointment Welcome to SS!

I'm also disabled - fully homebound and 99% bedbound. I've only left the house twice this years, in a wheelchair, to go to the doctor's office.

I'm here if you want to share experiences, or just complain about how sucky life is.

I don't have any advice to give, though. I can hardly make it through the day, so I'm definitely not the right person to impart wisdom upon others.

 

[Callie Arcale]

I have severe CFS/ME as well. Onset 10 years ago. Started mild, graduated to moderate, and has now been severe for the past few years. Homebound/bedbound as well. Worried it's only a matter of time before it progresses to very severe. This illness has taken everything from me. I'm very sorry you're also dealing with it.

Hello @WholeHereafter
I am so very sorry you are in the severe category. My biggest fear when becoming severe, was that I'd deteriorate to very severe, which is worse than anything anyone can imagine.

I am lucky to not have deteriorated. I pace as much as possible, that helps for sure.

Sending you light and well wishes and hope you never get worse either

 

[Tesha]

I'm not physically disabled, but I can say with absolutely certainty that you are as valid and worthwhile as any other individual on this shit hole of a planet.

You're not a disappointment, you're someone who just needs help to navigate through life - like we all do.

How can 'we' help you?

 

[WearyWanderer]

Can relate to feeling like everyone is disappointed in you 24/7. Too much secondary Wounding and medical gaslighting after initial injury, it never stops.

Feels like everyone has turned against me and abandoned me. Feel emotionally and physically orphaned.