Thank you for making this megathread.
I will divide my reply into two sections, friends and family.
This post will be long.
Friends - I had to take a break from my friend group again unfortunately.
The situation with them is that they I'm functional enough to hang out, play videogames and do the activties they want but I can barely do what I want physically.
My best friend states that he doesn't want myself to be stuck in the same place which is a fair point but unfortunately I don't have a choice in the matter and have to go for disabiliy benefits, with true visual impairment that's how it goes.
He explained that I could have replied to some messages about hanging out before which is totally valid.
Frankly, I was hoping for my condition to get better but now it's starting to sink in that what I experience will be a long-term, disabling issue.
This long list of diagnoses and letter didn't help at all.
1.
https://i.postimg.cc/8cP2FtGz/Symptom-list-from-appointment-with-second-neuro-ophthalmologist.png (Diagnoses)
2.
https://i.postimg.cc/h461dkyP/Disability-letter-edited-from-second-neuro-ophthalmologist.png
I didn't want to worry them or act like everything is fine when I'm barely functional each day.
I will reconnect at some point but I personally am too pragmatic and practical to go out for fun or relaxation.
I have different priorities right now.
Family - I don't have contact with either my mom or dad's side of the family right now.
The situation with my family is interesting to say the least.
My mom's side of the family has ostracized her entirely, a lot of it is justified due to her drug use and past incidents but I still feel like they are very harsh towards her at times.
She has to walk on eggshells and my older brother is very strict about seeing her granddaughters which is justifiable but even a small visit could be supervised.
I have an aunt and cousin who care about my situation but ultimately don't have the resources or knowledge to help on a deeper level.
They have moved on and hang out with their family members, hurts to see them all together and being locked out due to not being able to see well but it's all good.
This is where it gets a bit annoying, though.
I have two cousins who are well off for the most part and have the resources to help but they don't whatsoever.
I vividly remember sending long texts asking for any financial support and getting nothing back which was brutal.
They focus on themselves and their immediate family, to be fair I stated that I'm barely functional and would not want to go anyways.
The tough part is that my mom would be naturally excluded and I would not want to leave her behind.
My one cousin is very materialistic, upset over not getting the right concert tickets and a makeup container.
Meanwhile, I wish my life was that simple and carefree.
My older brother, on the other hand is a piece of work.
I went to a family gathering a while back with my mom and it was very difficult since I could barely see, which made everything bittersweet.
I didn't have a white cane back then and she needed to help guide myself to the bathroom.
I wanted to confide in my older brother regarding the situation.
He decides to dirnk some alcohol and says "I work with fucking blind people".
Next, he "promises" that he would look for a specialist and we would go out to lunch.
There was no follow-up, of course and it's a big reason why he's not in my life anymore as I don't have time to waste on false hope and people who act like they care but don't.
Also, he decided to meet up with my other brother (technically step but I don't like using those terms) in New York, at first by pure coincidence.
That was fine and I thought nothing of it.
Then I saw another post on social media where he was with him on a full blown boat with this other guy who looked like scuffed Chris Brown.
Here's the kicker, he called him "Boogie" which implied that they were a lot closer than I thought.
They were on a nickname basis.
I'm not mad at my other brother and happy with his success.
I knew I couldn't associate with my older brother after that.
The morality of it all is wild if I sit down and think about it.
If you know your younger brother is almost blind and will face a life of disability for a long time, why not use your resources to contact specialists and provide financial support?
Why would you bail out my cousin who was caught doing illegal acts involving drugs but not hire a lawyer who could help my disability case or get a better refund from the surgery that made my life a lot worse over time?
I wish him the best but when I see him on vacation and doing all of these activities, I can't relate.
Alright, now for my dad's side of the family.
Honestly, there aren't really too many flaws.
My dad thinks that I have a lot more control of my medical situation than I really do.
He sent a long text a while back that was normal in the beginning but then got quite accusatory, stating that I didn't have a social life and I was doing nothing for a year which was absolutely not true.
I was trying to improve my symptoms and still kept in contact with my friends but having a robust social life is irrelevant when you are barely functional on a physical level.
The most annoying part of that text was when he said if "I want it bad enough" everything will change.
I literally go into relevant appointments stating that I can barely see my mom's face, want to go back to work and continue to learn how to drive.
I want to see better every single day, that's all I desire is to see single and clearly in both eyes with no waiting, gimmicks or gotchas.
Also, my dad was stating before that I was "rich" in a Facebook group chat with the family when I didn't have that much money saved up in the first place.
I was smart with my money and worked full-time, that's why I had a lot in my bank account at the time.
My uncle and aunt called recently, normally I don't answer random phone numbers and assumed it was from a doctor's office.
He was talking about a job opportunity my dad mentioned months ago but I had to decline unfortunately and had to tell them how debilitating my visual impairment has become.
Thankfully, it's open for another year or so which I'm grateful for.
My aunt was stating how "I'm too smart" to be in the house and not apply myself.
I was trying not to laugh because that narrative is what I thought they were thinking all along, which is not surprising but disappointing.
It's funny because my visual impairment doesn't care how intelligent or smart you are, in the end if you can't see performing well at a job is very difficult if not impossible especially due to the dynamic nature of my condition.
Overall, my dad's side of the family thinks my situation is more mental and I'm choosing to be disabled and live a reclusive lifestyle.
I actively try to change my situation daily and don't want to be stuck with this condition forever as I have to give up so much if I let it go.
I'm one of those men who could live happily alone and only engage in social media honestly, relationships can be a lot of work to maintain.