Yeah, GI issues, sounds like severe IBS or mild IBD w/ vomiting malnutrition and underweight (share some symptoms with k75 but mostly milder)
Appointments for specialists are 2 months wait , and so are US , CT , etc , and each test requires new blood/urine test. Specialists in particular don't care much, don't write full symptom list, and don't recall it.
Docs didn't even give me basic medication to ease symptoms. For 3 years I've been hearing "let's wait for test results". I gave up and told them which Rx to prescribe. Shows what careless idiots they are. My GP knows me and I'm prescribing myself whatever is needed (inc SSRI, NDRI, etc). It's unbelievable...
I feel total disrespect for doctors, no contempt or resentment, but I consider common garden slugs more helpful.
I'm sorry you're going through this as well. The "lets wait for test result..." thing is exactly gets me. I have done so many tests for my GI problems i don't know what else to do now. Am i just going to keep suffering like this? What's your plan forward if you don't mind me asking?
i have fatigue, stomach and genital area problems, idk if there is others, i can't go to doctors so i'm freaking out about it if i have something serious
Why can't you go to the doctors?
I'm a little older than you... 28. I've known something was wrong with me since I was a teenager. I have had anxiety and depression my whole life but my physical health is complex. I've been fobbed off, misdiagnosed and even lied to about something that majorly impacted my life my a GP.
My blood work is haywire yet it seems the doctors can't be bothered investigating because my health issues whatever they are are so complex. I've yet to meet a compassionate doctor. I was just in the middle of further tests when all this covid lark started, so now all those tests are down the shitter.
Im struggling to ctb because I'm angry how I've been treated and I can't let go of that anger. I even paid for several private blood tests because the doctors weren't helping and I've made it simpler for them as they have all the bloods I've done off my own back as well as the ones they've actually done. It looks like I have a pituitary issue(tumor or abnormality) or Addison's disease, thyroid disease, I should be on treatment for but have been medically neglected.
And now theres no chance I will get sorted because even when this covid has blown over people will still be crying about it because they have a cold so the systems overflowing. And those people shout louder than me because I try to get on with it. That was my problem I didn't want to cause hassle so didn't keep pestering until they sorted me out. Now they have left me bitter, miserable, hateful. Which was never me.
Fuck this society, existence in general. It's an evil game. Hardly anyone has empathy and my years of being a nice person caused me nothing but more suffering.
Good luck to you.
I am so sorry you are going through exactly what i am going through. Forgive me for saying this, but i find a little bit of comfort in knowing that i am not alone in this exhausting fight. I'm not sure about what's exactly bothering you, but from you mentioning thyroid problems and pituitary issues, i think i am facing some very similar problems. All my symptoms can be caused by either an thyroid problem, pituitary issue, both or more. Autoimmune problems can also cause some of my symptoms as well. Whatever it is that we're facing, they are clearly too complex for most doctors to figure out. I have seen 5 or 6 different doctors/ specialists last year trying to figure things out, and each one of them show me nothing but annoyance that i am disappointing them as a patient because i am not easy to diagnose. I became so hopeless and mad that i became dysfunctional and had to walk away from my job. Then this year i decided to try again, and right when i was going to try another doctor the covid 19 hit. Now everything's shutdown or pushed back months. Like you said, i don't think the system will be back up running normal for a long time even after covid passes. Maybe this is the sign to finally give up. I want to live. I really do, but not like miserably like this. What are we to do now? Of course society doesn't give a crap about me, u, or anyone in particular, but what can we do on our end now? Do you honestly think doctors can eventually find out what's wrong with us, and even start to heal us? At this point, i just want a diagnosis and then ctb. The damage has been done, and it's too great to reverse. I just want to ID my enemy.
Honestly, I'm not a doc..but I've done a lot of research on this shit, and my guess would be:
It sounds like extreme systemic inflammation, caused in part by gut/digestive issues. Most doctors don't know how to address gut problems.
The mental health and physical health are most likely two in one. Have you tried eliminating foods from your diet and testing them one-by-one?
Regardless, I'm sorry things have come this far. It fucking sucks how the body can fall apart the way it does. I'm experiencing something similar. It's gradual, but definitely getting worse by the day.
I have thought about autoimmune problems as the culprit for a lot of my symptoms. I have already eliminated a lot of food that i know for a fact trigger gut problems for me. Stuff like bread, diary, and stuff worsens my IBS symptoms. The thing is, i can't change the diet unless i know for a fact what it is that i can't eat. I know there are paleo diet that's supposed to eliminate all the triggering foods that a person can eat, but that diet is super expensive and hard for me. My digestive issues are getting bad over the past months, and i made the mistake of waiting too long to find another doctor, and now the covid 19 has shut everything down. The GI doctors i saw last year didn't find anything, but recent months have been hell for me. My stomach issue is making sleep hard and miserable. If i am ever going to get a diagnosis, now is the time, but covid 19 says fk u. So, i am fked.
What enrages me is in my autopsy they will quite easily see my ailments
And the cost of cleaning up my suicide to the system will be much higher than it would've been to treat me.
Beyond a cruel joke.
That's honestly what i have been fantasizing about recently. If they find my body, they're going to cut me open and probably find out what's wrong with me. I imagine the medical examiners have cut open so many people so often, that the moment they cut me open, they'll see exactly what's been bothering me. If this really happens, i hope they write a detailed report and my family can use it to sue all those incompetent doctors that have seen me over the years.
It's almost as if most doctors today are nihlistic psychopaths who factor your complete insignificance into 8 billion other people and realize you're not worth the extra time to run some detective work and try and figure you out―so they instead prescribe a gambit of psychotropic meds that only mask symptoms temporarily while damaging your body behind the scenes.
Spot on! I have been prescribed antidepressants since i was 18. My healthproblems were most likely very solvable at that point, but instead of investigating and really find out the root causes of my problems, including my depression and anxiety, they drug me with SSRIs that did more damage behind the scene. Now i suffer from thyroid/ hormone imbalance issues that i know for a fact developed because of the SSRIs. They started months after i started the SSRIs, and then the doctors tell me i should stop taking them. I did, the problem still persists on top of all my other problems, and guess what? Now a different doctor tells me to go on antidepressants again. What a joke. I must be a joke to them. Just another patient. Just another random pill from a list of sponsored pharma companies.
