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Cyc

Cyc

It's my fight and I have surrendered.
Jan 22, 2026
242
I have chronic migraines and it's absolute hell. I hate randomly feeling nauseous one minute and then barely being able to stand, I hate how I'm in so much pain I can't even get out of bed I hate how much time I waste being unable to do ANYTHING with my life because I'm in so much physical pain and can barely function
 
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OzymandiAsh

OzymandiAsh

aNoMaLy
Nov 6, 2025
523
Really sorry. Even with all my mental and neurological stuff going on, I can't imagine having to deal with constant migraines. I feel lucky I don't get them (except on flights, since developing my FND, apparently).
 
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CatLvr

Enlightened
Aug 1, 2024
1,677
I am right there with you. Nobody believes me when I tell them I didn't realize that having headaches ALL the time was not normal until I was in college, living in the dorm. My room mate actually started crying when she "caught" her first migraine. She thought she was dying. I was like "Ehhhh, can you still see??" I don't know which one of us was more traumatized -- her to find out that she was probably gonna have to deal with migraines from then on out or me to find out NOBODY else felt like I did.

I am SO sorry you are dealing with these things. They are brutal -- even when it is just a "little" one.

I'm guessing you have already tried all the traditional Rxs?? Does ketamine help any at all?? When I am at my worst, I will literally be blind in my right eye. All I can do at that point is lay down in a pitch black room (not even my phone turned upside down or a alarm clock that is back lit), put an ice pack on the back of my head (on my occipital area), and other one over my eyes, take ALL the pain meds I have a script for -- and a couple I do not -- and go to sleep. That will usually break it and get me back down to a dull roar.

Again, I am truly sorry. I wouldn't wish this shit off on my worst enemy. 🫂🫂
 
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spero_meliora

spero_meliora

In hope for better things.
Jan 13, 2025
324
right there with you. nothing worse than getting that godforsaken aura where you know it's coming, and despite chugging down some caffeine and popping something extra strength, you're still taken out groaning in the dark in your bed because your head feels like it has an axe lodged in it.

like @CatLvr they also screw up my vision, people who don't have them don't understand they're debilitating and not just a "bad headache".
 
whiskeyblanket

whiskeyblanket

weird chicken lady
Jan 23, 2025
70
I'm sorry you're dealing with this. I was diagnosed with migraines at age 4 or 5 after years (even at that young age!!!!) of not being believed/taken seriously, after multiple emergency room visits. Migraines completely ruined my life when I was in my late teens/early 20's. I failed out of music school (and had to give up the only thing I cared about) and lost multiple jobs. I would have the severe head pain intermittently but the aura/other symptoms 24/7 for months on end. After being on topamax for a long time, and then tapering off and getting on a magnesium supplement plus various drastic lifestyle changes, I went about 10 years without having migraines. Now I'm starting to have them again and am just trying to save up as much money as possible, as I know that someday soon I will no longer be able work.

All that to say that you're not alone, you're not exaggerating (as many people think we are) and your pain is valid, even when others try to say it's not.

I hope you're able to find relief, sooner rather than later.
 
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XdeadfaeX

Member
Feb 19, 2026
9
Pain is life. One day each of us get a little break. I'm hoping mine is sooner rather than later
 
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Kirke

Kirke

It's better to burn out than to fade away
Dec 26, 2025
10
I have chronic migraines and it's absolute hell. I hate randomly feeling nauseous one minute and then barely being able to stand, I hate how I'm in so much pain I can't even get out of bed I hate how much time I waste being unable to do ANYTHING with my life because I'm in so much physical pain and can barely function
I'm sorry. I feel like it's hard to have this while working and studying. Recently, I've started getting headaches. They're not severe enough to be called a migraine, but also not so mild that they don't make me cry or lie there miserably. They occur every day or every other day and can sometimes last up to six hours. My doctor is inclined to believe they're stress-related. I have no way to kill the stress. Stalemate.
 
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Cyc

Cyc

It's my fight and I have surrendered.
Jan 22, 2026
242
I am right there with you. Nobody believes me when I tell them I didn't realize that having headaches ALL the time was not normal until I was in college, living in the dorm. My room mate actually started crying when she "caught" her first migraine. She thought she was dying. I was like "Ehhhh, can you still see??" I don't know which one of us was more traumatized -- her to find out that she was probably gonna have to deal with migraines from then on out or me to find out NOBODY else felt like I did.

I am SO sorry you are dealing with these things. They are brutal -- even when it is just a "little" one.

I'm guessing you have already tried all the traditional Rxs?? Does ketamine help any at all?? When I am at my worst, I will literally be blind in my right eye. All I can do at that point is lay down in a pitch black room (not even my phone turned upside down or a alarm clock that is back lit), put an ice pack on the back of my head (on my occipital area), and other one over my eyes, take ALL the pain meds I have a script for -- and a couple I do not -- and go to sleep. That will usually break it and get me back down to a dull roar.

Again, I am truly sorry. I wouldn't wish this shit off on my worst enemy. 🫂🫂
I also suffer from partial blindness during migraines. I usually use ice but it's hard when I'm outside cuz I can't lie down or sleep, which is my main coping strategy

I recently started taking propanolol but I haven't noticed any effects yet. My previous meds stopped working for some reason

Also thank you for your empathy :) it truly is an awful thing to go through and I'm I've found someone who understands
 
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CatLvr

Enlightened
Aug 1, 2024
1,677
I also suffer from partial blindness during migraines. I usually use ice but it's hard when I'm outside cuz I can't lie down or sleep, which is my main coping strategy

I recently started taking propanolol but I haven't noticed any effects yet. My previous meds stopped working for some reason

Also thank you for your empathy :) it truly is an awful thing to go through and I'm I've found someone who understands
Oh gosh I hope the propanolol works for you. I have never found anything that actually works for me -- but then a lot of my issues are from congenital defects and/or the result if physical injuries as opposed to hormonal issues so ... 🤷🏻 At least what little opioids they give me keeps the hard edge away -- otherwise I would have left this place a LONG, LONG time ago. I don't understand pro-lifers and there "it will always get better" bs ... Nope, nope. No, it won't. Not for some of us anyway. 😢
 
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whitetaildeer

whitetaildeer

Wreck & Rule
Aug 5, 2024
305
Not a migraine that induces pain by any means, but I've been dealing with vestibular migraines induced by stress since I was 8 years old. It's its own hell, but migraines don't exactly make the cut for how narrowly people view disabilities. Nice to see other people talk about it.
 
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CatLvr

Enlightened
Aug 1, 2024
1,677
Not a migraine that induces pain by any means, but I've been dealing with vestibular migraines induced by stress since I was 8 years old. It's its own hell, but migraines don't exactly make the cut for how narrowly people view disabilities. Nice to see other people talk about it.
Oh gosh ... I'm really sorry. And you are so right -- I cannot tell you how many times I've heard "it's just a headache" or "you don't look sick" ... Apparently there is some unwritten rules somewhere that I didn't get a copy of. Rules about how you are supposed to look and act when you are sick. 🤷🏻 People can be really insensitive. 😢🫂🫂
 
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Cyc

Cyc

It's my fight and I have surrendered.
Jan 22, 2026
242
Oh gosh I hope the propanolol works for you. I have never found anything that actually works for me -- but then a lot of my issues are from congenital defects and/or the result if physical injuries as opposed to hormonal issues so ... 🤷🏻 At least what little opioids they give me keeps the hard edge away -- otherwise I would have left this place a LONG, LONG time ago. I don't understand pro-lifers and there "it will always get better" bs ... Nope, nope. No, it won't. Not for some of us anyway. 😢
Thank you :) Apparantly it's meant to stop my migraines altogether but I dont have much hope. I'm really sorry to hear about your health issues, they sound truly awful. I'm glad your opioids work though
 
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