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VentingChronic migraines
Thread starterCyc
Start date
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I have chronic migraines and it's absolute hell. I hate randomly feeling nauseous one minute and then barely being able to stand, I hate how I'm in so much pain I can't even get out of bed I hate how much time I waste being unable to do ANYTHING with my life because I'm in so much physical pain and can barely function
Reactions:
spero_meliora, CatLvr, Kayla and 1 other person
Really sorry. Even with all my mental and neurological stuff going on, I can't imagine having to deal with constant migraines. I feel lucky I don't get them (except on flights, since developing my FND, apparently).
I am right there with you. Nobody believes me when I tell them I didn't realize that having headaches ALL the time was not normal until I was in college, living in the dorm. My room mate actually started crying when she "caught" her first migraine. She thought she was dying. I was like "Ehhhh, can you still see??" I don't know which one of us was more traumatized -- her to find out that she was probably gonna have to deal with migraines from then on out or me to find out NOBODY else felt like I did.
I am SO sorry you are dealing with these things. They are brutal -- even when it is just a "little" one.
I'm guessing you have already tried all the traditional Rxs?? Does ketamine help any at all?? When I am at my worst, I will literally be blind in my right eye. All I can do at that point is lay down in a pitch black room (not even my phone turned upside down or a alarm clock that is back lit), put an ice pack on the back of my head (on my occipital area), and other one over my eyes, take ALL the pain meds I have a script for -- and a couple I do not -- and go to sleep. That will usually break it and get me back down to a dull roar.
Again, I am truly sorry. I wouldn't wish this shit off on my worst enemy.
right there with you. nothing worse than getting that godforsaken aura where you know it's coming, and despite chugging down some caffeine and popping something extra strength, you're still taken out groaning in the dark in your bed because your head feels like it has an axe lodged in it.
like @CatLvr they also screw up my vision, people who don't have them don't understand they're debilitating and not just a "bad headache".
I'm sorry you're dealing with this. I was diagnosed with migraines at age 4 or 5 after years (even at that young age!!!!) of not being believed/taken seriously, after multiple emergency room visits. Migraines completely ruined my life when I was in my late teens/early 20's. I failed out of music school (and had to give up the only thing I cared about) and lost multiple jobs. I would have the severe head pain intermittently but the aura/other symptoms 24/7 for months on end. After being on topamax for a long time, and then tapering off and getting on a magnesium supplement plus various drastic lifestyle changes, I went about 10 years without having migraines. Now I'm starting to have them again and am just trying to save up as much money as possible, as I know that someday soon I will no longer be able work.
All that to say that you're not alone, you're not exaggerating (as many people think we are) and your pain is valid, even when others try to say it's not.
I hope you're able to find relief, sooner rather than later.
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