I'm young too (just 7 years more than you...)... I have smth very strange because of (after) Covid :-( That gives me nerve pains in all my body and I can walk just a little, because exercise and walk produce very strange damages that no doctor can explain....
Yes, the situation is very exhausting... And the life around me (my friends, loved ones etc) continue like before... Very strange.... You understand that this desease is a very bad random accident, nightmare, that must just not be happened, totally unreal.... (sorry for my English, it is not my native language)....
Same thing happened to me! When I exercise, I get scar tissue. And I have pain all over my body.
But I don't know if it's because of Covid...There's so many other things that have gone wrong with my health with very little possibility of going back to the way I was.
sleeping is so hard now. Just constant, all-consuming pain.
And I know the feeling. God you describe it so well...This feeling that everybody else is living their lives. It feels like a nightmare.
I remember constantly telling myself, "This can't be real. This can't be happening."
Such an absurd amount of pain.
my deepest sympathies friend. Big hugs.
Wow I am so sorry. That is so strange. COVID has caused so much lasting damage that people don't seem to talk about (or I'm just not keeping up with the news...). It was a completely random accident for me as well. A lumbar puncture gave me arachnoiditis and a spinal cord injury - I don't have sensation in the "saddle" region and have incontinence now. The universe can be so uncaring and cruel. It doesn't matter who you are, random awful things can happen.
Oh and your English is fine, no need to apologize.
I'm sorry friend. I almost had a lumbar puncture a few days ago because I began losing my vision and they needed to relieve the pressure in my head.
I said no, but I've already deteriorated in my health so much at this point..I don't even think it would matter at this point. I thought about going back on the off chance the lumbar puncture would kill me, but it's too low to guarantee anything.
But I understand your frustration. It does seem unfair. Because you can make so many right choices and suddenly have your life transformed.
and it's not like a terminal illness. I can't tell you how many times I've wished and prayed to be in hospice.
I could bear so much pain in that space.
the quiet walls of a hospital room...it's so peaceful. I didn't want to leave when I went there.