anyone else chronically ill?

[losergirl]

okay hi im here to yap again because i have no-one who gets it.

i am dealing with one auto immune disorder that makes my life unbelievably difficult. and im also getting blood testing for another this upcoming weekend.

ever since i was young ive dealt with firstly mental health issues and secondly im chronically ill but they both went untreated due to neglect and the fact that my family didn't take my health seriously. nowadays im 21 and i can barely work or be on my feet for prolonged periods of time without feeling like i will faint.

my hair is thinning.
im always nauseous.
im always aching.

sometimes it feels like what i feel isnt serious enough to speak about or "complain". i really feel like i should just end it due to the fact that i probably wont ever make a serious living due to my mental and physical health issues. i am constantly in so pain both physically and mentally.

all my family does is ask me "whats wrong, why do you look like that". its like they dont get that i am in so much fucking pain dude like how many times do i need to cry to you that im hurting.

im so fucking tired of all of this. im in so much pain as i type this and i have to clock into this miserable ass job. (only one that would hire me)

i feel so useless.
i said i have to clock in but i meant in the morning its 10pm as i type. i doubt ill be able to sleep due to the pain im experiencing rn

 

[tasmaka]

I completely understand, I hope your state improves, but I understand that statement stings to hear.

I have severe respiratory issues and a body basically held together by the clothes I wear. It sucks always being in pain or sick, and unable to do stuff considered "normal" for everyone. I understand the comments as well, it never gets better to hear, just more tiring.

I may be stupid and corny here but even though my body does nothing but break itself down while I am here, I hope and almost believe it will feel better one day, whatever that means but Ill live my stupid dream I guess lol

 

[losergirl]

I completely understand, I hope your state improves, but I understand that statement stings to hear.

I have severe respiratory issues and a body basically held together by the clothes I wear. It sucks always being in pain or sick, and unable to do stuff considered "normal" for everyone. I understand the comments as well, it never gets better to hear, just more tiring.

I may be stupid and corny here but even though my body does nothing but break itself down while I am here, I hope and almost believe it will feel better one day, whatever that means but Ill live my stupid dream I guess lol

hi thank you for the kind words. i am also sorry to hear that ur also suffering.

i genuinely hate the feeling and i wish better for the both of us.

i still kind of have a silver of hope that maybe one day i will physically feel better but idk

 

[tasmaka]

hi thank you for the kind words. i am also sorry to hear that ur also suffering.

i genuinely hate the feeling and i wish better for the both of us.

i still kind of have a silver of hope that maybe one day i will physically feel better but idk

yea I completely get it, if you ever want to chat feel free to message me, I hope we get to interact more in the future,
I wish you the best always

 

[woofwag]

I hope this isn't de-railing, but I do have a chronic disability although I wouldn't consider it a chronic illness. I suffer from POTS, and it is such a massive pain in the ass to deal with in my everyday life. I can barely pick up after myself because I'll go through horrible dizzy spells or episodes where I feel like I'm literally dying and crash onto the ground. Sometimes I can't even handle the pain of sitting up and have to lie down all day. But then that fucks with my back, and it's already likely I have EDS, so my sciatic nerve gets inflamed easily. So basically I can't win.

I get constant hot flashes, brain fog, insomnia, muscle aches (although tbh I'm a freak and kind of like that one sometimes), dysautonomia, constant fatigue, cognitive delay, and tachycardia/hypoxic induced seizures. Some days are better than others. But on any day I am still suffering.

 

[copioushopelessness]

Hi, I'm very sorry you're suffering like this and as a previous person said it can sting to even hear I hope your condition improves because for some of us it won't. Even the healthy eventually get sick if they don't go quickly. It's like a get well soon card may be appropriate for the flu but not for chronic conditions. I feel like people don't know how to help us because we are always sick. They can't just drop off some soup and hope to see us doing better next week so a lot of times they lose patience, gaslight us, resent us, call us lazy, but even well-meaning statements can hurt.
I'm sorry I wish I had better words but words have failed me the past year or two. I can totally relate. I am very sick. My severe autoimmune diseases have spread throughout my entire body. But, as fragile as we can be we can also endure quite a lot. I don't mean this in an insensitive way, I was already very ill at your age but if I had known how much worse it would get I would've tried to enjoy my twenties a bit more. Even if that were just enjoying some hot tea and my bed because people don't understand we can't always take the invite. We don't know from one moment to the next at what level shitty we are going to feel. We have enough to deal with so try not to let anyone bother you. I know you may want to ctb now but if you can try to enjoy these years. If it's too hard to I understand. I fully do. People don't get it until it's their bodies giving them a hard time.

 

[GyreOfAsh]

Yeah, I can relate. I suspect that I have autoimmune issues. Never been to a doctor so I don't know for certain. But I feel everything you described so often. It's partly why I'm so strict with my diet & intake timing. Due to my sibo/sifo, one mistake & I'll be looking & feeling real weird which would weaken my immune system.

If I do have an autoimmune disorder, it's probably from the child abuse I experienced. My sympathetic nervous system always had to be on as a kid because, at home, if I said or did something "wrong", the consequences were angry & violent. Wasn't all bad ofc. But the nervous system doesn't care about that.

This guy explains it pretty well in this video:

 

[unluckysadness]

I'm in chronic pain because of several illnesses. I'm too tired to list everything but it includes cervical dystonia, huge anxiety / phobias and PTSD.

 

[vyvanceandvodka]

Yes. I have endometriosis, pelvic floor dysfunction, interstitial cystitis, POTS and more. I want to die because of it lol

 

[vanillabug333]

okay hi im here to yap again because i have no-one who gets it.

i am dealing with one auto immune disorder that makes my life unbelievably difficult. and im also getting blood testing for another this upcoming weekend.

ever since i was young ive dealt with firstly mental health issues and secondly im chronically ill but they both went untreated due to neglect and the fact that my family didn't take my health seriously. nowadays im 21 and i can barely work or be on my feet for prolonged periods of time without feeling like i will faint.

my hair is thinning.
im always nauseous.
im always aching.

sometimes it feels like what i feel isnt serious enough to speak about or "complain". i really feel like i should just end it due to the fact that i probably wont ever make a serious living due to my mental and physical health issues. i am constantly in so pain both physically and mentally.

all my family does is ask me "whats wrong, why do you look like that". its like they dont get that i am in so much fucking pain dude like how many times do i need to cry to you that im hurting.

im so fucking tired of all of this. im in so much pain as i type this and i have to clock into this miserable ass job. (only one that would hire me)

i feel so useless.
i said i have to clock in but i meant in the morning its 10pm as i type. i doubt ill be able to sleep due to the pain im experiencing rn

I feel you completely. I'm 29 and I have lupus and POTS, I also can't stand or do much at all. I already had bad health, but when I went through a really traumatic experience last year, I have just gotten progressively worse. Honestly, I wish my body would just give out already </3 I've already attempted a couple times and am still here. It sucks so badly. I'm so sorry you're dealing with this stuff <3

 

[locked*n*loaded]

I've had a disease for about 23 years now. It's treatable with just a small pill each day, but even with the treatment, you never feel quite "normal", whatever that means. I've got a pretty severe version of it. Anyway, now though, I can't even take the meds. Started getting some weird adverse reaction to it all of a sudden that is causing me immense pain, like an 8 and 9 on a scale of 1-10, in certain areas of my body. It's a hormonal medication. Same meds I have been taking for years. Same manufacturer. Switched meds to a different manufacturer and it starting doing the same thing immediately, only to an entirely different part of my body. Not sure what to do now. Have a Dr appt next week with GP, but might need to see a specialist. Haven't been able to take my meds in over 4 months now. Feel like crap, too. I just need to make it a couple more years, maybe even like only 20 months, or so .

A lot did change in my life when I got diagnosed - how I feel, what I can/can't eat, what I can do to some extent. It's all tiring and certainly takes it's toll on someone over the years. Dealing with anything chronic is like a job in and of itself. My sympathies to whoever has to navigate through life with a diseased body.

 

[cluefixphantom]

I have various health conditions, but I don't know the exact causes, and not all were officially confirmed because I don't receive real medical care in all those years I am alive.

My organic symptoms and the fact that I am discriminated against because of my body and poverty were always twisted into mental illnesses, so officially I only have misdiagnoses of diseases that don't even really exist.

I probably have serious problems with my thyroid, kidneys, and liver. Maybe also trimethylaminuria or porphyrias. For several years now, my body odor smells like urine, and I am often insulted as ugly and attacked with passive-aggressive behavior. Friendships are out of the question. Everything got worse during puberty. I only found out later that I suffer from seborrheic dermatitis and male pattern baldness (androgenetic alopezia).
I am just seen as ugly and r'tard. My parents are also very ugly, and my bad genes 100% come from them. Both could have Cushings Syndrom and my father Fetal Alcoholsyndrom disorder but they stay silent if I ask them.

I hate them. It's just frustrating that such cr'pples are allowed to reproduce. I've never had anything good in my life. I lay years long in my bed for nothing, or some ill-mindet strangers put me into psychiatric ward and abuse me there for money. Disgusting people.

 

[Fadenself00_]

I have various health conditions, but I don't know the exact causes, and not all were officially confirmed because I don't receive real medical care in all those years I am alive.

My organic symptoms and the fact that I am discriminated against because of my body and poverty were always twisted into mental illnesses, so officially I only have misdiagnoses of diseases that don't even really exist.

I probably have serious problems with my thyroid, kidneys, and liver. Maybe also trimethylaminuria or porphyrias. For several years now, my body odor smells like urine, and I am often insulted as ugly and attacked with passive-aggressive behavior. Friendships are out of the question. Everything got worse during puberty. I only found out later that I suffer from seborrheic dermatitis and male pattern baldness (androgenetic alopezia).
I am just seen as ugly and r'tard. My parents are also very ugly, and my bad genes 100% come from them. Both could have Cushings Syndrom and my father Fetal Alcoholsyndrom disorder but they stay silent if I ask them.

I hate them. It's just frustrating that such cr'pples are allowed to reproduce. I've never had anything good in my life. I lay years long in my bed for nothing, or some ill-mindet strangers put me into psychiatric ward and abuse me there for money. Disgusting people.

do you have a GP who could do tests? kidney and liver problems could be ruled out via blood tests as far as I'm aware.

All the best to you!

 

[Macedonian1987]

okay hi im here to yap again because i have no-one who gets it.

i am dealing with one auto immune disorder that makes my life unbelievably difficult. and im also getting blood testing for another this upcoming weekend.

ever since i was young ive dealt with firstly mental health issues and secondly im chronically ill but they both went untreated due to neglect and the fact that my family didn't take my health seriously. nowadays im 21 and i can barely work or be on my feet for prolonged periods of time without feeling like i will faint.

my hair is thinning.
im always nauseous.
im always aching.

sometimes it feels like what i feel isnt serious enough to speak about or "complain". i really feel like i should just end it due to the fact that i probably wont ever make a serious living due to my mental and physical health issues. i am constantly in so pain both physically and mentally.

all my family does is ask me "whats wrong, why do you look like that". its like they dont get that i am in so much fucking pain dude like how many times do i need to cry to you that im hurting.

im so fucking tired of all of this. im in so much pain as i type this and i have to clock into this miserable ass job. (only one that would hire me)

i feel so useless.
i said i have to clock in but i meant in the morning its 10pm as i type. i doubt ill be able to sleep due to the pain im experiencing rn

I completely understand how you feel.
I suffer from chronic multi-joint pain. I am 38 but I have joints of a 70 year old man. Also i'm constantly very tired, and like you I too cannot stand for long periods of time. I'm just too weak. I wasn't always like this. Up until the age of 24 I was a healthy man.
On top of it all I have asperger's and because of that I spent my entire life without having any friends or relationships. Never been loved too. Things have become quite unbearable in the last 3 years and this year i plan on ctb. I just cannot do it any more.

Oh and my parents are very similar like yours, they never comfort me and ease my suffering. They are so cold.... some people just shouldnt have children.

 

[2muchpain2]

I suffer with a chronic illness too, but what's worse is i have heath anxiety so every single sensation I have in my body I panic and convince myself I have a terrible disease. I am also scared for any of the people in my life that I love to ever develop an illness that causes suffering. The health anxiety is my number 1 reason for ctb, I can't handle it any longer. I just have a ton of fear around health in general. It sucks. Sorry that we are all suffering so much. I have to leave soon because I've gotten to the point where I am hearing voices and seeing shadows, I can't sleep and sometimes can't eat. every day i get in my car and pray i die in an accident, or have an acute health thing that kills me right away.