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Al Cappella

Al Cappella

Are we there yet?
Feb 2, 2022
888

A woman in Toronto, suffering from a chemical sensitivity disorder was granted MAID after being unable to find suitable, affordable housing. She was 51, and had been searching for two years…
 
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FuneralCry

FuneralCry

Just wanting some peace
Sep 24, 2020
41,990
Rest in peace. Thank you for sharing the article. It is sad how much some people have to suffer in life.
 
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A

archipelago

Student
Jun 27, 2021
148

A woman in Toronto, suffering from a chemical sensitivity disorder was granted MAID after being unable to find suitable, affordable housing. She was 51, and had been searching for two years…
I heard about this. I've also seen lots of people (not here) go on about how it's a controversial diagnosis that is based in anxiety.

Even if the diagnosis has a mental health component, why the hell would it mean that what this poor woman went through is invalid? It's incredibly infantilizing.

People will decry the use of MAID here but will do nothing to actually help vulnerable people if it brings them even the tiniest bit of discomfort, or requires them to reevaluate how they view vulnerable people since it might make them feel bad about themselves. It's disingenuous, and I'd rather they just flat out say they didn't care instead of pretending that they do.
 
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Red Scare

Red Scare

Wizard
Mar 1, 2022
647
I heard about this. I've also seen lots of people (not here) go on about how it's a controversial diagnosis that is based in anxiety.

Even if the diagnosis has a mental health component, why the hell would it mean that what this poor woman went through is invalid? It's incredibly infantilizing.
I had never read of this before, and just did a bit of reading...

Seems like this is a controversial disorder in which patients claim to become ill from environmental exposure to low levels of largely petroleum-based and often unrelated chemicals, including cleaning products, detergents, diesel exhaust, formaldehyde, plastics, carpets, epoxy, pesticides, and some synthetic and natural fragrances. The symptoms are reported to be induced by environmental chemicals at doses far below those usually harmful to most persons.

Among its symptoms, are a perceived hypersensitivity to the smell of chemicals, nausea, dizziness, headache, upper respiratory discomfort, runny eyes, chest and throat pain, arthralgia, dyspepsia, fatigue, lack of concentration, memory difficulties, depression, anxiety, mood disruption, and a range of other cognitive and psychological disturbances.

At present, no standard medical tests have been identified that correlate with the numerous multisystem complaints of MCS patients. The patients believe they are sick and are not malingering. According to the APA, the diagnostic criteria are "excessive thoughts, feelings or behaviors related to the physical symptoms or health concerns with at least one of the following: ongoing thoughts that are out of proportion with the seriousness of symptoms; ongoing high level of anxiety about health or symptoms; excessive time and energy spent on the symptoms or health concerns."

However, no clear link has emerged among self-reported MCS symptoms and widely accepted objective measures of physiological dysfunction, and no clear dose-response relationship between exposure and symptom reactions has been observed.

That is fascinating. It appears that it is all in their head.

Makes me wonder if a person can be brought to understand that it is all in their imagination. If they could only understand this was all their mind, I wonder if they still would have applied for VAD.
 
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whitefeather

whitefeather

Thank the gods for Death
Apr 23, 2020
519

A woman in Toronto, suffering from a chemical sensitivity disorder was granted MAID after being unable to find suitable, affordable housing. She was 51, and had been searching for two years…
I heard about this. I've also seen lots of people (not here) go on about how it's a controversial diagnosis that is based in anxiety.

Even if the diagnosis has a mental health component, why the hell would it mean that what this poor woman went through is invalid? It's incredibly infantilizing.

People will decry the use of MAID here but will do nothing to actually help vulnerable people if it brings them even the tiniest bit of discomfort, or requires them to reevaluate how they view vulnerable people since it might make them feel bad about themselves. It's disingenuous, and I'd rather they just flat out say they didn't care instead of pretending that they do.
https%3A%2F%2Facademic.oup.com%2Ftoxsci%2Farticle%2F158%2F1%2F14%2F3797191&usg=AOvVaw1KFuNpTXkLOdzcw3aMNVKz
https%3A%2F%2Ftiltresearch.org%2F2021%2F12%2F02%2Foverlooked-for-decades-mast-cells-may-explain-chemical-intolerance%2F&usg=AOvVaw3hIGV2NDfNXc9S1-skGEzD[/URL]
 
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A

archipelago

Student
Jun 27, 2021
148
I had never read of this before, and just did a bit of reading...

Seems like this is a controversial disorder in which patients claim to become ill from environmental exposure to low levels of largely petroleum-based and often unrelated chemicals, including cleaning products, detergents, diesel exhaust, formaldehyde, plastics, carpets, epoxy, pesticides, and some synthetic and natural fragrances. The symptoms are reported to be induced by environmental chemicals at doses far below those usually harmful to most persons.

Among its symptoms, are a perceived hypersensitivity to the smell of chemicals, nausea, dizziness, headache, upper respiratory discomfort, runny eyes, chest and throat pain, arthralgia, dyspepsia, fatigue, lack of concentration, memory difficulties, depression, anxiety, mood disruption, and a range of other cognitive and psychological disturbances.

At present, no standard medical tests have been identified that correlate with the numerous multisystem complaints of MCS patients. The patients believe they are sick and are not malingering. According to the APA, the diagnostic criteria are "excessive thoughts, feelings or behaviors related to the physical symptoms or health concerns with at least one of the following: ongoing thoughts that are out of proportion with the seriousness of symptoms; ongoing high level of anxiety about health or symptoms; excessive time and energy spent on the symptoms or health concerns."

However, no clear link has emerged among self-reported MCS symptoms and widely accepted objective measures of physiological dysfunction, and no clear dose-response relationship between exposure and symptom reactions has been observed.

That is fascinating. It appears that it is all in their head.

Makes me wonder if a person can be brought to understand that it is all in their imagination. If they could only understand this was all their mind, I wonder if they still would have applied for VAD.
This seems like a controversial disorder in the same way that CFS, fibromyalgia, and IBS are controversial disorders - symptomatic but tests show everything is okay. CFS is getting more acknowledgement now because of long covid.

I don't think these things are all in peoples' heads, I think the science hasn't caught up to the reality of what people who suffer from these disorders face.
 
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Red Scare

Red Scare

Wizard
Mar 1, 2022
647
I don't think these things are all in peoples' heads, I think the science hasn't caught up to the reality of what people who suffer from these disorders face.
dr-evil-right.gif
 
Red Scare

Red Scare

Wizard
Mar 1, 2022
647
Lol yes, and long covid isn't real either 🙄

Well, at least you didn't come out and pretend to care.
Covid is quite clearly caused by a deadly infection of coronavirus. It can be detected in you blood and saliva and mucous.

Not so with MCS or ""fibromyalgia""
 
A

archipelago

Student
Jun 27, 2021
148
Covid is quite clearly caused by a deadly infection of coronavirus. It can be detected in you blood and saliva and mucous.

Not so with MCS or ""fibromyalgia""
Looks like you need to reread the post again. I specifically said long covid.
 
Red Scare

Red Scare

Wizard
Mar 1, 2022
647
Looks like you need to reread the post again. I specifically said long covid.
I just saw a recently released report about how a high prevalence of the people who suffered from long covid also suffer from psychological disorders, it wasn't 100%, but rather 67%

While it is true that viral infections, and not just Covid ones, do sometimes trigger longer-lasting conditions, the exact prevalence of this and people claiming to suffer form it may be something worth looking at.

Another study found that more than half of the people who believe they have Long Covid may actually be suffering from normal instances of ill-health. In one analyses, It was found that five per cent of people who had previously been diagnosed with Covid experienced one or more of the symptoms of Long Covid 12 weeks after their initial infection. However, it also found that 3.4 per cent of people who have never been diagnosed with Covid likewise experienced one or more of the Long Covid symptoms.

The study also found that just 3% of people experienced continuous symptoms for 12 weeks after their initial infection and yet another analysis found that 11.7 per cent of people self-identified as suffering from Long Covid. So belief that one is suffering from Long Covid seems to outrun the truth of whether one is suffering from it.
 
Al Cappella

Al Cappella

Are we there yet?
Feb 2, 2022
888
If it was "all in the head", then I'm really curious as to how MAID was managed. Then again, I know I've been told—a long time ago, mind—that my stuff was all in my head. Apparently "duh" was not the thing to say. Point is, that tends to be a placeholder until folks have more insight into a condition…Unless of course there's something going on the article did not mention. Doubt it though, as the Track 2 thing is going to be gaining more attention as time goes on…
 
KuriGohan&Kamehameha

KuriGohan&Kamehameha

想死不能 - 想活不能
Nov 23, 2020
1,797
Covid is quite clearly caused by a deadly infection of coronavirus. It can be detected in you blood and saliva and mucous.

Not so with MCS or ""fibromyalgia""
Hopefully you won't come back here, but what a disgusting and ignorant thing to say, you have no idea what people with these illnesses go through, your numerous judgemental posts about people with CFS and fibromyalgia are cruel and abhorrent.

Almost everyone I know has had covid by now and they didn't develop cfs, they healed in around a week, and some of them didn't get a positive test until symptoms were extremely noticeable because the test kits were not entirely reliable or accurate.

If something as studied as covid cannot be detected with perfect sensitivity, what makes you think misunderstood illnesses like fibromyalgia could? There are currently no biomarkers, but you can go to pubmed right this moment and see studies being done recently that have demonstrated it is an autoimmune condition.

Ignorance like yours is why so many people with invisible chronic illnesses suffer so much persecution and disbelief. Shame on you. Your other posts are shocking to read, both as someone who has this illness you believe to be fake, and someone who holds leftist ideals. If you mock the vunerable in such a way, you are no leftist.

I can't believe there are people like this on the site. Calling people with chronic illnesses narcissistic and attention seeking and thinking we're all insane children. This is disgusting.
 
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archipelago

Student
Jun 27, 2021
148
Hopefully you won't come back here, but what a disgusting and ignorant thing to say, you have no idea what people with these illnesses go through, your numerous judgemental posts about people with CFS and fibromyalgia are cruel and abhorrent.

Almost everyone I know has had covid by now and they didn't develop cfs, they healed in around a week, and some of them didn't get a positive test until symptoms were extremely noticeable because the test kits were not entirely reliable or accurate.

If something as studied as covid cannot be detected with perfect sensitivity, what makes you think misunderstood illnesses like fibromyalgia could? There are currently no biomarkers, but you can go to pubmed right this moment and see studies being done recently that have demonstrated it is an autoimmune condition.

Ignorance like yours is why so many people with invisible chronic illnesses suffer so much persecution and disbelief. Shame on you. Your other posts are shocking to read, both as someone who has this illness you believe to be fake, and someone who holds leftist ideals. If you mock the vunerable in such a way, you are no leftist.

I can't believe there are people like this on the site. Calling people with chronic illnesses narcissistic and attention seeking and thinking we're all insane children. This is disgusting.
I appreciate you writing this. I have noticed since the article there have been more and more users like this, and it makes this forum less safe than it used to be.

I also have zero energy to devote to assholes because I know nothing I say will change their mind. I also hope he doesn't return. I don't understand the point of someone coming here to belittle others for their illnesses. What a pathetic excuse of a person.
 
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