J
Jolene79
Experienced
- Jun 16, 2023
- 205
I'm new here but was on the site about 4 years ago when I was seriously ill. I somehow made a miraculous recovery but being free to talk about my real feelings on this site really saved me.
I'm here again as I have such horrific health problems my quality of life is pretty much 24 hour torture. I have multiple autoimmune conditions and an awful genetic condition which has become out of control. I now suffer severe problems with extreme physical pain, neuropathy tearing through my head every minute making me cry hysterically most days. I can't eat anymore ( my colon was removed but still have many problems). I live on liquid drinks,; that I can easily cope with but my cognition is going, I'm often feeling confused and afraid and dizzy permanently. The pain is exceptional and I feel like my brain will explode any moment from the pain. My muscles are going and I can't do anything but sit in my chair staring at TV. I manage moments where I go out but I'm screaming inside. I've learnt to hide it and take tramadol every day to try cope.
I have a son whom I adore more than anything. I am a kind loving mum and have given him everything. He knows how much I love him. I absolutely feel sick to the pit of my stomach this is happening. I never ever want to abandon him. However, I am struggling so much with the pace this keeps worsening. I have spent months in hospital. My mum does most the caring and his dad at wknds. I'm like a play friend at the moment and can't look after him.
I was not unwell when I had my son 12 years ago.btw. I fully understand how awful it is to read about parents considering ctb. I had no idea this was coming.
I've already survived a bout of sepsis that nearly killed me and 6 months in hospital. I just spent 2 months in hospital again recently for some awful reaction to something. I'm now being gaslit by doctors. Despite multiple confirmed conditions, the worst symptoms I repeatedly ask for help about are being continually put down to anxiety. I feel hopeless, devastated and sick of my suffering. I'm 40 and have had a dog's life tbh.
I thought an OD would be my easy solution if I get to that point ( I'm not there yet but it's forever in my thoughts now). But reading, I see it is the least effective. I have tramadol and hoped that would be my out. I have read through all methods and can't see a single one that I could go through.
I just wanted to say hi and reach out as an so incredibly lonely in my suffering. I have tried everything imaginable and continue to try in case anyone suggests ways to improve my health.
I'm here again as I have such horrific health problems my quality of life is pretty much 24 hour torture. I have multiple autoimmune conditions and an awful genetic condition which has become out of control. I now suffer severe problems with extreme physical pain, neuropathy tearing through my head every minute making me cry hysterically most days. I can't eat anymore ( my colon was removed but still have many problems). I live on liquid drinks,; that I can easily cope with but my cognition is going, I'm often feeling confused and afraid and dizzy permanently. The pain is exceptional and I feel like my brain will explode any moment from the pain. My muscles are going and I can't do anything but sit in my chair staring at TV. I manage moments where I go out but I'm screaming inside. I've learnt to hide it and take tramadol every day to try cope.
I have a son whom I adore more than anything. I am a kind loving mum and have given him everything. He knows how much I love him. I absolutely feel sick to the pit of my stomach this is happening. I never ever want to abandon him. However, I am struggling so much with the pace this keeps worsening. I have spent months in hospital. My mum does most the caring and his dad at wknds. I'm like a play friend at the moment and can't look after him.
I was not unwell when I had my son 12 years ago.btw. I fully understand how awful it is to read about parents considering ctb. I had no idea this was coming.
I've already survived a bout of sepsis that nearly killed me and 6 months in hospital. I just spent 2 months in hospital again recently for some awful reaction to something. I'm now being gaslit by doctors. Despite multiple confirmed conditions, the worst symptoms I repeatedly ask for help about are being continually put down to anxiety. I feel hopeless, devastated and sick of my suffering. I'm 40 and have had a dog's life tbh.
I thought an OD would be my easy solution if I get to that point ( I'm not there yet but it's forever in my thoughts now). But reading, I see it is the least effective. I have tramadol and hoped that would be my out. I have read through all methods and can't see a single one that I could go through.
I just wanted to say hi and reach out as an so incredibly lonely in my suffering. I have tried everything imaginable and continue to try in case anyone suggests ways to improve my health.