Tintypographer
I am done as of 4-21-2023. Somewhere I am no more
- Apr 29, 2020
- 470
A large breach of trust, legal disclaimers, privacy, and expectations has damaged the relationship and "brand" of crisis lines in the united states. Our online world passes through so many disclaimers and assumptions that you are just accepting boilerplate that no one realized that the details of conversations between people calling crisis lines and volunteers manning those lines were natural fodder for study and monetization. While it would be assumed that this is a line no one cross, it is fairly easy for a data scientist to blur that line with intention of benefitting everyone but some rules should always be enforced. From an ethical standpoint the data associated with crisis line communications however anonymized and for whatever good intentions and however well-proteced by legal disclaimers SHOULD NEVER BE INCLUDED IN ANALYTICS BEYOND CLINICAL STUDIES WHERE A FULL INVESTIGATIONAL REVIEW BOARD HAS APPROVED THE USE OF THE DATA FOR A CLINICAL REVIEW. We should not even have to assume that the conversations are truly private, they should be. As we track the increase in mental health problems, and increases in suicide rates, it should be correlated (not saying this is a cause) that in this same time period our rights to privacy have been almost completely lost in this world where data is the new currency.
For the @fixthe26 and @kelli crew who trumpet the use of sanctioned suicide as a way to "use and harm unsuspecting defenseless people", did you consider that referring me to the crisis line was just as big a use and abuse of my private conversations.
I'm referring to the multiple articles including this one
www.google.com
Which is not a clinical article but clearly outlines the use of the crisis line data in for profit efforts by data mining firms. Regardless of the intent, this should not happen!
For the @fixthe26 and @kelli crew who trumpet the use of sanctioned suicide as a way to "use and harm unsuspecting defenseless people", did you consider that referring me to the crisis line was just as big a use and abuse of my private conversations.
I'm referring to the multiple articles including this one
The Real Harm of Crisis Text Line's Data Sharing
People who need help have access to a growing number of advice and care tools—some helpful, some harmful. Consumer protections need updating.
Which is not a clinical article but clearly outlines the use of the crisis line data in for profit efforts by data mining firms. Regardless of the intent, this should not happen!
