Im only 21 years old ive been dealing with tmau for 10 years now....

[jawdropped123]

Ive been dealing with this condition called tmau
Please dont judge me. I will have this condition for the rest of my life even tho its not curable. Its manageable but it will never truly go away. I have no one because no one want to be around me due to this condition

Trimethylaminurie - Wikipedia

nl.m.wikipedia.org

People cough and give me weird looks. There is bullying going on being my back. I dont know how to talk to my therapist about this. Is the reason why i want to kill myself valid? Would you do the same if you was in my position? Pleade be honest.

 

[houseofleaves]

I've read about this. What can i say. This is a nightmare, i can't even imagine living a normal life with this condition.

Still. You could learn to code and find a remote job. Buy a nice flat, settle. Watch anime while hugging a beautiful dakimakura. Enjoy a solitary life. That's what i think.

 

[_Minsk]

I'm sorry you have to deal with this. I can't tell if i would end things with this, but if i was healthy otherwise i would still try to make the best out of life before giving up.

 

[orange]

Humans are social creatures. There's no bad reason to ctb, but from experience I know how soul crushing social isolation and harassment are. So yeah not a bad reason.

 

[Cathy Ames]

Ive been dealing with this condition called tmau
Please dont judge me. I will have this condition for the rest of my life even tho its not curable. Its manageable but it will never truly go away. I have no one because no one want to be around me due to this condition

Trimethylaminurie - Wikipedia

nl.m.wikipedia.org

People cough and give me weird looks. There is bullying going on being my back. I dont know how to talk to my therapist about this. Is the reason why i want to kill myself valid? Would you do the same if you was in my position? Pleade be honest.

If you do have a therapist and the ability to continue therapy, in your position I would try really hard to figure out how to talk to the therapist. I found this article, which makes it sound as though they may come up with better/more effective treatments in the future. Like, there are some promising avenues but (so far) an insufficient push to pursue them. It would be sad for you to give up and then a good treatment be invented shortly after that. Another thing I personally would try to do is look for some kind of online support group for people who have this condition.

Treatments of trimethylaminuria: where we are and where we might be heading

Trimethylamine (TMA) is a volatile, foul-smelling, diet-derived amine, primarily generated in the colon and metabolized in the liver to its odorless N…

www.sciencedirect.com

 

[hopelessgirl]

Ive been dealing with this condition called tmau
Please dont judge me. I will have this condition for the rest of my life even tho its not curable. Its manageable but it will never truly go away. I have no one because no one want to be around me due to this condition

Trimethylaminurie - Wikipedia

nl.m.wikipedia.org

People cough and give me weird looks. There is bullying going on being my back. I dont know how to talk to my therapist about this. Is the reason why i want to kill myself valid? Would you do the same if you was in my position? Pleade be honest.

What is tmau? Gonna google it now
That sucks. That most be so annoying! I am also very peculiar about how I smell. Well I guess that's normal. I literally can't function if I don't think I smell like fruit or that I look presentable. So having that on top of it, would really make me functionba lot less. I think I'd be annoyed. How do you cope with it?

 

[jawdropped123]

If you do have a therapist and the ability to continue therapy, in your position I would try really hard to figure out how to talk to the therapist. I found this article, which makes it sound as though they may come up with better/more effective treatments in the future. Like, there are some promising avenues but (so far) an insufficient push to pursue them. It would be sad for you to give up and then a good treatment be invented shortly after that. Another thing I personally would try to do is look for some kind of online support group for people who have this condition.

Treatments of trimethylaminuria: where we are and where we might be heading

Trimethylamine (TMA) is a volatile, foul-smelling, diet-derived amine, primarily generated in the colon and metabolized in the liver to its odorless N…

www.sciencedirect.com

Yes im looking for a support group i feel like no one cares enough to find a cure for us and even if they did i would probably be very old or dead

Humans are social creatures. There's no bad reason to ctb, but from experience I know how soul crushing social isolation and harassment are. So yeah not a bad reason.

Thank you

 

[hopelessgirl]

Yes im looking for a support group i feel like no one cares enough to find a cure for us and even if they did i would probably be very old or dead

Thank you

That really sucks! We should find someone who would like to do research on it :-) I have a scientist friend. She grows artificial meat :-) she grows meat in a laboratory

 

[jawdropped123]

That really sucks! We should find someone who would like to do research on it :-) I have a scientist friend. She grows artificial meat :-) she grows meat in a laboratory

That would be very nice :)

 

[hopelessgirl]

That would be very nice :)

There must be someone who cares. Is this one of the reasons you want to die? If that is your wish of course.

 

[Baatz]

I've never heard of tmau so thanks for teaching me something.

If you're already feeling depressed or anxious or lonely and then the tmau is exacerbating this…you're more than valid to feel the way you feel. It's just fuel on the fire I suppose. You'd be valid to feel this way even if you didn't have tmau.

I'd tell your therapist just flat out, this condition is making everything worse, and how it's doing so. Your physical health and how it effects your own outlook and the reactions of people around you effects your mental health.

I go out of my way to eat right, practice good dental hygiene, exercise, etc. because I know I struggle mentally without other major health issues. I have issues with my ankles and knees because I walk 12 to 15 miles a day at work (for 15 years now) and have had dental issues in the past due to neglect (thanks to my depression) so I have to stay on top of it. I feel like I can't handle anymore stressors so I empathize. Having tmau would add to my anxiety and feeling like an outsider. Sorry that people can be insensitive, ignorant and sometimes just horrible.

 

[jawdropped123]

There must be someone who cares. Is this one of the reasons you want to die? If that is your wish of course.

Yes thats my number one reason and ofcourse its the reason that im isolating myself so im lonely too and yeah i have to stop this

What is tmau? Gonna google it now
That sucks. That most be so annoying! I am also very peculiar about how I smell. Well I guess that's normal. I literally can't function if I don't think I smell like fruit or that I look presentable. So having that on top of it, would really make me functionba lot less. I think I'd be annoyed. How do you cope with it?

Im not coping atall im isolating myself i dont have a job and i will be homeless in 3 months now if im homeless and i cant take care of myself this condition will get even worst and i dont want to experience harassment from people on the street i also need a hug sometimes but i cant expect anyone to hug me with this conditiom

 

[HappyForever?]

This is truly a horrifying disease. I also feel isolated and lonely, albeit for a different reason, and I totally understand how it feels when something out of your control is holding you back from forming close relationships. I hope you find someone who will love you despite your condition.

 

[jawdropped123]

This is truly a horrifying disease. I also feel isolated and lonely, albeit for a different reason, and I totally understand how it feels when something out of your control is holding you back from forming close relationships. I hope you find someone who will love you despite your condition.

Thank you

 

[FuneralCry]

That sounds really horrible what you are going through, this life is just so unfair. I'm sorry that you are suffering so much. Health conditions really can torture people. The way I see it, we all have the right to exit this world at a time of our own choosing and nobody needs to justify their reasons for leaving. I wish you the best in whatever happens.

 

[jawdropped123]

That sounds really horrible what you are going through, this life is just so unfair. I'm sorry that you are suffering so much. Health conditions really can torture people. The way I see it, we all have the right to exit this world at a time of our own choosing and nobody needs to justify their reasons for leaving. I wish you the best in whatever happens.

Yeah it does suck, thank you so much