G

goodbye_._

Member
Mar 19, 2023
60
I've seen other chronically ill people on here and that makes me feel less alone. One of the main reasons I want to ctb is because of my health issues. I'm not sure what they are since health care is very slow and not very good where I live but I'm in constant pain. Everything hurts all the time, sometimes the pain gets worst and there is no way to stop it. I have a very hard time breathing. My nails are quite blue at this point. It's very frustrating to not know what's going on. I've literally woken up from heart pain before which is really scary. My health issues aren't getting better. I don't want to live this way. I'm always so tired. If you read this far I don't want you to feel bad for me. But I hope this makes sense.
 
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mkitsune

mkitsune

˚₊‧꒰ა ☆ ໒꒱ ‧₊˚
Mar 26, 2023
24
that sounds really hard, I am not chronically ill but I know some people who are and it is no joke, being in pain depletes your energy physically and mentally and is exhausting. I'm sorry you're going through this (w/o feeling bad for you lol)
good luck to you, sending hugs
 
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I

Idos

Member
Mar 22, 2023
24
I've seen other chronically ill people on here and that makes me feel less alone. One of the main reasons I want to ctb is because of my health issues. I'm not sure what they are since health care is very slow and not very good where I live but I'm in constant pain. Everything hurts all the time, sometimes the pain gets worst and there is no way to stop it. I have a very hard time breathing. My nails are quite blue at this point. It's very frustrating to not know what's going on. I've literally woken up from heart pain before which is really scary. My health issues aren't getting better. I don't want to live this way. I'm always so tired. If you read this far I don't want you to feel bad for me. But I hope this makes sense.
Chronic pain is worst because you can't escape from it. It was only thing on my mind 24/7 but in my case it got better as i got older. But im still suicidal because i see how much of my life was stolen from me thanks to my chronic pain. I really lived through my teen years suffering in my room alone lol while others were enjoying life. So i understand its hard to live like this.
 
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FuneralCry

FuneralCry

Just wanting some peace
Sep 24, 2020
38,856
It certainly is horrific how the disgusting flesh prison that is the human body can potentially torture us so much, this is why it's necessary that there should be peaceful and straightforward ways to exit this existence. It's beyond cruel how humans are expected to stay here and suffer no matter what.
 
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D

DarknessAndDespair

Member
Mar 26, 2023
65
Hi. Is very sad to hear that the health care system where you are is unable to alleviate your condition. I am having same problem. I was already very unhappy existing when my body was healthy but since I got chronically ill I think my suicidal thoughts multiplied x10. I should just CTB and leave. I am every day in agony and no doctor is able to figure out what's really going on. Can't work and do anything anymore just bedridden most of the time. I hope you can find relief soon.
 
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Cryptonite

Cryptonite

In the state of shock of what happened
Apr 30, 2022
723
Chronic pain is worst because you can't escape from it. It was only thing on my mind 24/7 but in my case it got better as i got older. But im still suicidal because i see how much of my life was stolen from me thanks to my chronic pain. I really lived through my teen years suffering in my room alone lol while others were enjoying life. So i understand its hard to live like this.
That's crazy. I'm in the same boat, currently suffering in my room alone while other young people are enjoying life. With the exception that my chronic back pain will certainly get worse, because it is progressive.

I just cannot bear how much it has stolen from me. Well, like 99 % of my life. It's been only like a year since I knew it was over, but I'm going for CTB with 100% certainty. You must have been very very strong to be able to keep going. Just the thought of staying alive scares me.
I've seen other chronically ill people on here and that makes me feel less alone. One of the main reasons I want to ctb is because of my health issues. I'm not sure what they are since health care is very slow and not very good where I live but I'm in constant pain. Everything hurts all the time, sometimes the pain gets worst and there is no way to stop it. I have a very hard time breathing. My nails are quite blue at this point. It's very frustrating to not know what's going on. I've literally woken up from heart pain before which is really scary. My health issues aren't getting better. I don't want to live this way. I'm always so tired. If you read this far I don't want you to feel bad for me. But I hope this makes sense.
I'm very sorry to tell you, but according to the statistics, you will not get a diagnosis sooner than in 8 years :-( Unless you push the doctors as much as you can.
 
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Dead Ghost

Dead Ghost

Mestre del Temps
May 6, 2022
1,345
But they haven't given you any indication of what you have? I mean you have cyanosis, don't you (the blue nails denote it) and this can be due to lung, heart or blood problems... but the variety of conditions that can cause it is very wide.
What tests have you had to narrow down the problem?

Come to think of it, I have something similar to your problem. I have had circulation tests, blood tests, resting electrocardiograms and they found nothing. But it is also true that due to anxiety I did not go to all the doctors I had to go to (it is very tiring to go to doctors). And also because I only had the pain when it was very cold outside (or very hot), usually what I have is itching.

I hope the doctors can soon find out what is wrong with you and you can freely decide how you want to deal with it (at best an asthma drug).

Good luck

//

Però no t'han donat cap indici del que tens? Vull dir que tens cianosi, no? (les ungles blaves ho denoten) i això pot ser degut a problemes pulmonars, cardíacs o de la mateixa sang... però la varietat d'afeccions que ho poden provocar és molt amplia.
Quines proves t'han fet per acotar el problema?

Ara que ho penso, respecte al teu problema tinc alguna cosa semblant. A mi m'han fet proves de circulació, anàlisi de sang, electrocardiogrames en repós i no van trobar res de res.. però també és cert que degut a l'ansietat no vaig anar a tots els metges que havía d'anar (és molt esgotador anar de metges). I també perqué el dolor només el tenía quan feia molt fred al carrer (o molta calor), normalment el que tinc són picors.

Espero que els metges puguin trobar aviat el que et passa i puguis decidir lliurement com vols afrontar-ho (en el millor dels casos un fàrmac per a l'asma).

Sort
 
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G

goodbye_._

Member
Mar 19, 2023
60
Hi. Is very sad to hear that the health care system where you are is unable to alleviate your condition. I am having same problem. I was already very unhappy existing when my body was healthy but since I got chronically ill I think my suicidal thoughts multiplied x10. I should just CTB and leave. I am every day in agony and no doctor is able to figure out what's really going on. Can't work and do anything anymore just bedridden most of the time. I hope you can find relief soon.
I'm sorry you're suffering so much. I can understand what you mean. The exact same thing happened to me. We both deserve a pain free life and to know why we are going through so much. I wish you the best.
That's crazy. I'm in the same boat, currently suffering in my room alone while other young people are enjoying life. With the exception that my chronic back pain will certainly get worse, because it is progressive.

I just cannot bear how much it has stolen from me. Well, like 99 % of my life. It's been only like a year since I knew it was over, but I'm going for CTB with 100% certainty. You must have been very very strong to be able to keep going. Just the thought of staying alive scares me.

I'm very sorry to tell you, but according to the statistics, you will not get a diagnosis sooner than in 8 years :-( Unless you push the doctors as much as you can.
I'm aware about the statistics. It's really sad honestly. Non of us deserve this. Which is why I plan to ctb. I'm tired of doctors not listening to me and being in pain all the time, so it feels like an option that makes sense. But I'm sorry you've lost so much as well. You deserve to have a normal life.
But they haven't given you any indication of what you have? I mean you have cyanosis, don't you (the blue nails denote it) and this can be due to lung, heart or blood problems... but the variety of conditions that can cause it is very wide.
What tests have you had to narrow down the problem?

Come to think of it, I have something similar to your problem. I have had circulation tests, blood tests, resting electrocardiograms and they found nothing. But it is also true that due to anxiety I did not go to all the doctors I had to go to (it is very tiring to go to doctors). And also because I only had the pain when it was very cold outside (or very hot), usually what I have is itching.

I hope the doctors can soon find out what is wrong with you and you can freely decide how you want to deal with it (at best an asthma drug).

Good luck

//

Però no t'han donat cap indici del que tens? Vull dir que tens cianosi, no? (les ungles blaves ho denoten) i això pot ser degut a problemes pulmonars, cardíacs o de la mateixa sang... però la varietat d'afeccions que ho poden provocar és molt amplia.
Quines proves t'han fet per acotar el problema?

Ara que ho penso, respecte al teu problema tinc alguna cosa semblant. A mi m'han fet proves de circulació, anàlisi de sang, electrocardiogrames en repós i no van trobar res de res.. però també és cert que degut a l'ansietat no vaig anar a tots els metges que havía d'anar (és molt esgotador anar de metges). I també perqué el dolor només el tenía quan feia molt fred al carrer (o molta calor), normalment el que tinc són picors.

Espero que els metges puguin trobar aviat el que et passa i puguis decidir lliurement com vols afrontar-ho (en el millor dels casos un fàrmac per a l'asma).

Sort
So my doctor only see's me every couple months and the blue nails started after I last saw her so she doesn't know yet. I know she is going to throw the idea of its because of cold weather but it's getting warmer now but the nails are getting more discoloured. Then I've tried inhalers but they didn't really work. I'm on a waiting list for a cardiologist but that could take a really long time since cardiologist are in high demand. I've done a lot of blood test but nothing really came up and I've done lung x-rays but nothing came up either. I've also done an ekg but nothing came up once again. Because of this most people don't believe I actually have a problem. If I go to the hospital and not be able to breathe they tell me it's in my head and to go home. So really there isn't anything they can do at this moment.
 
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Cryptonite

Cryptonite

In the state of shock of what happened
Apr 30, 2022
723
I'm sorry you're suffering so much. I can understand what you mean. The exact same thing happened to me. We both deserve a pain free life and to know why we are going through so much. I wish you the best.

I'm aware about the statistics. It's really sad honestly. Non of us deserve this. Which is why I plan to ctb. I'm tired of doctors not listening to me and being in pain all the time, so it feels like an option that makes sense. But I'm sorry you've lost so much as well. You deserve to have a normal life.

So my doctor only see's me every couple months and the blue nails started after I last saw her so she doesn't know yet. I know she is going to throw the idea of its because of cold weather but it's getting warmer now but the nails are getting more discoloured. Then I've tried inhalers but they didn't really work. I'm on a waiting list for a cardiologist but that could take a really long time since cardiologist are in high demand. I've done a lot of blood test but nothing really came up and I've done lung x-rays but nothing came up either. I've also done an ekg but nothing came up once again. Because of this most people don't believe I actually have a problem. If I go to the hospital and not be able to breathe they tell me it's in my head and to go home. So really there isn't anything they can do at this moment.

Internet research is your best choice. You are more likely to find the diagnosis yourself than have it diagnosed by a doctor. Give it like 100 - 200 hours of research and you will have a few very realistic diagnoses. You can also use ChatGPT.
 
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