Yh slf ws diagnsd w/ m.e./c.f.s also
If u hve nt hrd of Irne Lyn slf wld advse lkng up - t.r.e& othr excrss r ok bt somatc exprncng = mre holstc
Hi Dot,
Thanks. Sorry to hear you have ME/CFS too.
Thanks for the clip. I watched it and am in the middle of a lengthy one called, "Nervous system starter steps." but so far, it's all stuff I already know. Perhaps there will be actual practices later in the video.
Has somatic therapy helped you?
The reason I posted here is because my trauma and PTSD seems to be so completely fringe. So the regular stuff doesn't apply. Since this is (mostly) a safe space and we're anonymous, then maybe I could find others who also have fringe experiences. Honestly I've never heard of anyone like me and I would like to not be alone with that. But it's hard to find others like me...
So for instance, regarding PTSD (since the video has gone that direction and I watched a Peter Levine one specifically on a former marine with PTSD) mine is so completely different. Here's an example of a pretty bad PTSD event in 2014:
I attended a retreat with my always usual question, "What happened when I was 7?" but the famous spiritual author called me up, told me he couldn't give me that answer, but in the course of asking questions, he realized I have a wealth of information about being empathic and he encouraged me to write a book about it. I've always been the invisible child in my family - the one who is ignored for being authentic in culture of extreme toxic positivity so being seen and heard and recognized was a miracle.
Within less than two weeks after that event, my sister decided she should punish me for avoiding her 20 years earlier and making her feel bad. She ranted at me for 45 minutes and I apologized the entire time (though I avoided her because her life had become similar to my childhood life and i got sick whenever I visited.) WHILE I was apologizing, hoping that would calm her, I kept telling myself, "I'm safe, She's not hurting me..."
And yet the next day I started gaining wait which didn't stop for 2 1/2 years. All my other CFS/ME symptoms increased for the next 2 1/2 years. It didn't matter that I talked to my inner child and told her she was safe - my body just completely shut down and has remained at that level since.
These kinds of PTSD events can last for years and there are some from over a decade ago in which I've never recovered. It's not just a moment in time it's a free-fall of getting worse until I hit some kind of invisible bottom and that's my new normal.
I found Irene Lyon's description of the nervous system stuck better than usual for me and it makes so much sense why I have asymptomatic gut issues (from or with ME) but especially I think that's largely behind the flick of a switch PTSD gut flora and why I gain so much weight suddenly despite no change in calories or exercise. It makes sense that the "rest-digest" parasympathetic systems goes whacko in the blink of an eye with each PTSD bout. (I have SIBO as well as several parasitic gut issues that took many years to diagnose because my symptoms don't appear to be gut-related but in fact, are.)
BTW - I was strangled and beaten in my condo and I have no PTSD from that because it happened as an adult. I only share that to say how strange it is that my PTSD bouts are always created by feeling cornered, voiceless and powerless by an authority who doesn't listen and has control over me. So, no PTSD when I was nearly beaten to death, but months later when living with my brother and his wife, when she cornered me and verbally attacked me - BOOM, That's a PTSD event from 2007 that I've never recovered from and never will.
Thanks for your kindness. Someone I spend time with has told me they recognise eight different personalities. I don't myself.
I know CFS can be horrendous. Sadly I haven't escaped it really. I have bipolar and have pretty much ceased to function. I'm mainly in bed. Gearing up for ctb. I have OCD and EDNOS. The list goes on.
I'm glad you're trying to address your issues. I hope you come to terms with it all.
I find that fascinating. I hope that feels good rather than bad that someone can distinguish so many personalities? Perhaps that's just me - How does that make you feel?
For me with no memories and a lifetime of people telling me I'd made it up, your situation seems like it's at least validating. No one breaks into personalities unless something really drastic and horrible happened to them. But of course my gaslighting issue may not be yours. That's probably the most hellish of of all my issues... the not knowing.
I watch the tv shows and few movies with DID examples but I don't know how true to life they actually are. It sounds like you don't experience yourself in different personalities. Does that mean you have missing time or is it more subtle?
Very sorry you're still with the CFS/ME but also bipolar, OCD, EDNOS and...? It seems trauma causes such a domino effect on the body, nervous system, brain... inevitably it takes a toll. I'm sorry you're mostly resigned to bed. I'm not bedridden, yet. A lot of my ME Zoom friends are. The illness as bad as it is for me is greatly overshadowed by the Trauma-PTSD-
Recurring destructive patterns.***
***(See in note to Dot: "BTW - I was strangled and beaten in my condo and I have no PTSD from that because it happened as an adult. I only share that to say how strange it is that my PTSD bouts are always created by feeling cornered, voiceless and powerless by an authority who doesn't listen and has control over me. So, no PTSD when I was nearly beaten to death, but months later when living with my brother and his wife, when she cornered me and verbally attacked me - BOOM, That's a PTSD event from 2007 that I've never recovered from and never will."
That assault is an example of a
repeat destructive pattern. It's one of the worst, but these kinds of things happen repeatedly to me in very strange ways. I believe they're a repeat of the original trauma (in some way that I can't exactly understand how it works.)
Tell me more about yourself if you feel up to it. I appreciate hearing other's stories!
Anyone reading this have a similar kind of trauma repetition? God I wish I had more people to talk to! Thanks for reading.
many times such memories and traumas are stored in our body as well and they have different ways of coming out. And our brain tries to protect us through memory loss and dissociation usually after those events.
So true and we live in a world that stigmatizes these experiences rather than being curious and compassionate.