We wanted to share a quick update with the community.
Our public expense ledger is now live, allowing anyone to see how donations are used to support the ongoing operation of the site.
👉 View the ledger here
Over the past year, increased regulatory pressure in multiple regions like UK OFCOM and Australia's eSafety has led to higher operational costs, including infrastructure, security, and the need to work with more specialized service providers to keep the site online and stable.
If you value the community and would like to help support its continued operation, donations are greatly appreciated. If you wish to donate via Bank Transfer or other options, please open a ticket.
Donate via cryptocurrency:
Yeah, that's the point I'm starting to get to. At the moment I get to the point where I'm just about to bring it back up and then it stops, but once my dose goes up again I'm sure the meds will start coming straight back up.
I have what used to be called complex-partial, and gran mal. Like you mine tend to happen when I am relaxed, most often during sleep, but never when I am stressed...smile. Ain't life grand? What is your post-ictal like? I take off, and can be very violent if restrained.
I actually found that the seizures I had in my sleep would happen at times that I had been particularly stressed in the day, and the one that I had while awake for the first time was at a point where I was incredibly anxious and stressed. Stress seems to be the main trigger for mine.
Stress is the trigger for most people. As is lack of sleep. Have you had the abdomen checked, and have they ever shown up on EEG? Photo-sensitive epilepsy did for me, but only once. The rest they call idiopathic.
No one I know would ever take me to the hospital after a witnessed seizure. I prefer to recover on my own. They tend to give benzos. in ER which given the dose causes me to seize. I refuse to go through that again. I just stay inside, fully clothed 24/7. Safer for me and the public.
I know for certain that they were caused by brain trauma from meningoencephalitis when I was younger (official diagnosis is gliosis and loss of mass in the right hemisphere), that was confirmed while I was still in hospital and I assume they did all of the appropriate tests there, but I don't actually remember any of it and I was probably still unconscious. It's definitely not photosensitive either, that was confirmed pretty early on. I've been successfully medicated and seizure free for a few years up until the recent one while I was awake, and nobody has explained what changed to make that happen. The solution seemed to just be that they throw some new meds at me and assume it will be fine.
