Cluster headaches (suicide headaches) aka trigeminal neuralgia

[CCH beast]

Anyone else suffer from this debilitat8ng condition on here ?

 

[Eadamk]

Yes I get them, but I've managed to get them in remission with topiramate

 

[CCH beast]

Yes I get them, but I've managed to get them in remission with topiramate

Am so glad to hear that. I'm in a nice natural remission at the moment.. yet I still find myself here.. are they why your here if you don't mind me asking ?

 

[Eadamk]

No. My wife died last June and I've given up

 

[CCH beast]

Sorry to hear that :(

 

[DunnoWhyButYeah]

Me, but now I have calm period. Winter was horrible. Sorry to hear you are suffering too :(

 

[WornOutLife]

I used to get them every single day.
Now, thanks to Naproxen, I don't have them anymore.

 

[CCH beast]

Me, but now I have calm period. Winter was horrible. Sorry to hear you are suffering too :(

Ahh I've had a good winter. But they never seem to truly leave.. but no I'm sorry you have them as well good fuching luck
How many of you were not suicidal or even depressed pre clusters ? For me I was never the happiest person but would not consider myself depressed or suicidal. I was pursuing a career in joinery and carpentry, doing very well too. Had a flat a van loads of tools and money. Then three years ago or so the clusters hit and tore my life up.. holding down work has become impossible. I'm awaiting a pip (benefits) decision but have left it far too late. I have 0 pound to my name. Homeless. Scraping by on favours.. absolutely hate where my life has come to. And on top of that there's the pain.. anyhoo sorry for the rambling.. I'm on cluster headache support groups.. but no one can talk about cbt on them so it's interesting to find any sufferers on here..

 

[DunnoWhyButYeah]

Ahh I've had a good winter. But they never seem to truly leave.. but no I'm sorry you have them as well good fuching luck

Good to hear that. Yeah this is something what you don't hope to anyone.

 

[CCH beast]

Good to hear that. Yeah this is something what you don't hope to anyone.

No it is pure evil when it's bad

 

[CCH beast]

Is worm out life still with us ?

 

[LittleJem]

I've read that LSD and also psilocybin both help cluster headaches. OP, sorry for your loss.