Back Pain

[RaspberriesLL]

Hello, anyone else here with debilitating back pain that has driven you here? I've had 2 spinal surgeries and have another scheduled in November. Part of me says why not try and another says it's just going to fail again.

I've basically been laying down in bed most of the day for 3 years because of he pain.I feel like my life has been stolen from me. Thanks for listening.

 

[Life_and_Death]

im sorry your situation is that bad.
im not here because of back pain but i do experience back discomfort 24/7 due to spondylolisthesis and lumbar scoliosis with pain on occasion depending and sometimes it decides i dont need to walk rn so ill "randomly" fall.

it might fail, it might not. if it does then the option to ctb is still there. but what if it doesnt fail? november is a long way away too, not due to back pain but i dont think i could wait that long, plus i wouldnt get the first surgery. but if you can make it to november, why not try? worse come to worse it does fail and ctb is still an option. or maybe it might help. sadly theres only one way to know for sure.
maybe its due to your location but you cant get assisted suicide? from my understanding physical reasons were acceptable. of course not having to be the ones to deal with it i can see the docs deeming it "not enough" because you wont pass away from it. personal opinion, thats crazy, pain hurts like a mf and for it to be constant, just ouch.

 

[RaspberriesLL]

im sorry your situation is that bad.
im not here because of back pain but i do experience back discomfort 24/7 due to spondylolisthesis and lumbar scoliosis with pain on occasion depending and sometimes it decides i dont need to walk rn so ill "randomly" fall.

it might fail, it might not. if it does then the option to ctb is still there. but what if it doesnt fail? november is a long way away too, not due to back pain but i dont think i could wait that long, plus i wouldnt get the first surgery. but if you can make it to november, why not try? worse come to worse it does fail and ctb is still an option. or maybe it might help. sadly theres only one way to know for sure.
maybe its due to your location but you cant get assisted suicide? from my understanding physical reasons were acceptable. of course not having to be the ones to deal with it i can see the docs deeming it "not enough" because you wont pass away from it. personal opinion, thats crazy, pain hurts like a mf and for it to be constant, just ouch.

Sorry about your back issues. It's miserable!

Yes, I have the same thoughts about just trying the surgery and then if it doesn't work I can still ctb. But you hit the nail on the head... November seems like a lifetime with this pain

 

[Cryptonite]

What a coincidence to come across this post

No, for me, back pain is DEFINITELY not the SOLE reason why I want to CTB at a very young age

(P. S. yes, it is)
(dg. Scheuermann's disease)

 

[RaspberriesLL]

What a coincidence to come across this post

No, for me, back pain is DEFINITELY not the SOLE reason why I want to CTB at a very young age

(P. S. yes, it is)
(dg. Scheuermann's disease)

I wasn't familiar with your dx and I googled it... Geeze, that looks painful. I'm so very sorry you were dealt this hand in life. I'm relatively young (39), but I guess you're probably even younger. Is there any treatment for it?

 

[Cryptonite]

I wasn't familiar with your dx and I googled it... Geeze, that looks painful. I'm so very sorry you were dealt this hand in life. I'm relatively young (39), but I guess you're probably even younger. Is there any treatment for it?

Yes, it is very painful, but doctors know very little about this condition and generally downplay it. I'm 25...

No treatment, I've been to 10-15 doctors, no surgery possible, nothing. It could have been treated fully when I was still a child, but two doctors misdiagnosed it and my parents didn't care. Not to mention, all my previous life I had been deeply suffering with severe mental illness (because of traumatic childhood with abusive parents) , that was eventually cured thanks to the new state-of-the-art treatment. I was able to get friends, girlfriend, work, studies, hobbies etc. for the first time, and now it's all gone again because of the back pain.

I've reached to the doctors who misdiagnosed me, but, as you can imagine, they all rejected my complaints and said none of it was their fault. CTB is my only hope now.

I guess your problem is in the ruined intervertebral discs too?

 

[RaspberriesLL]

Yes, it is very painful, but doctors know very little about this condition and generally downplay it. I'm 25...

No treatment, I've been to 10-15 doctors, no surgery possible, nothing. It could have been treated fully when I was still a child, but two doctors misdiagnosed it and my parents didn't care. Not to mention, all my previous life I had been deeply suffering with severe mental illness (because of traumatic childhood with abusive parents) , that was eventually cured thanks to the new state-of-the-art treatment. I was able to get friends, girlfriend, work, studies, hobbies etc. for the first time, and now it's all gone again because of the back pain.

I've reached to the doctors who misdiagnosed me, but, as you can imagine, they all rejected my complaints and said none of it was their fault. CTB is my only hope now.

I guess your problem is in the ruined intervertebral discs too?

Oooooh that is so frustrating. I also had doctors wave me off for years. Telling me to go home and stretch it will all be better. Well, naturally, it just got worse! I have degenerative discs and ehlers danlos. My next (and final) surgery will be to replace 2 lumbar discs in my spine. I have to wait until November because this Dr is booked up as he is really the best in the country at this.

I found I had to do my own research on treatments to discover what was right for me. Doctors in America don't have the time to deal with people in the level of detail that they really need. Great system.

I also had an abusive childhood, so I understand the mental hell it inflicts upon ones soul. It's pain upon pain. My heart just breaks for you, because I feel like I can really understand the pain you are in. It's nice to feel less alone, but I hate so much that anyone else has to go through it, let alone someone so young

 

[Cryptonite]

Oooooh that is so frustrating. I also had doctors wave me off for years. Telling me to go home and stretch it will all be better. Well, naturally, it just got worse! I have degenerative discs and ehlers danlos. My next (and final) surgery will be to replace 2 lumbar discs in my spine. I have to wait until November because this Dr is booked up as he is really the best in the country at this.

I found I had to do my own research on treatments to discover what was right for me. Doctors in America don't have the time to deal with people in the level of detail that they really need. Great system.

I also had an abusive childhood, so I understand the mental hell it inflicts upon ones soul. It's pain upon pain. My heart just breaks for you, because I feel like I can really understand the pain you are in. It's nice to feel less alone, but I hate so much that anyone else has to go through it, let alone someone so young

Thank you for your kind words, my friend

Degenerative disc disease is the WORST... scientists have been working on disc regeneration for three decades, it has been one of the most studied subjects in medicine, there are 20+ companies working on this right now, new research articles are coming out everyday... and yet, we're still nowhere... they still don't understand how it works... the only thing we have are surgeries with dubious outcomes, and even these are only available to a very specific group of patients

The need for your own research... don't even tell me, my friend. I would never believe how little doctors know and how little they care. I literally had to spend hundreds of hours researching my condition. I even had to take an X-ray and MRI course to be able to read my own images, because no one told me what was going on. I've met ONE doctor in my country who was at least 50% correct about the condition. Needless to say, he was superspecialized in this condition.

I can say the same, it feels nice to feel less alone, but I wish we didn't have to be in this situation. I wish we could live full-fledged lives that we DO deserve.

 

[befree]

Yes, for more than 25 years. I can recommend chiropractic.