anyone struggling with chronic, seemingly untreatable health conditions?

[Bot]

over the past 10 years my health declined, I'm also struggling with chronic health issues which seem untreatable, i have serve depression which gets even worse due to the other health issues, i can't imagine working anymore and tbh i don't even want anymore.. the health issues are the biggest driver towards ctb for me.. i would rather die than having to deal with this crap any longer.. most people can't even comprehend the suffering that comes along with many chronic health issues..
all of this is so frustrating.. I've lost so many friends and isolate even more since I feel like crap most of the time..
can someone relate? and if so how do you cope?

 

[Ego Sum Medusa]

over the past 10 years my health declined, I'm also struggling with chronic health issues which seem untreatable, i have serve depression which gets even worse due to the other health issues, i can't imagine working anymore and tbh i don't even want anymore.. the health issues are the biggest driver towards ctb for me.. i would rather die than having to deal with this crap any longer.. most people can't even comprehend the suffering that comes along with many chronic health issues..
all of this is so frustrating.. I've lost so many friends and isolate even more since I feel like crap most of the time..
can someone relate? and if so how do you cope?

Yep, with mental illness and, in recent years, health issues.
Day by Day. Hour by Hour. Minute by Minute. Breath by Breath. ♥

 

[FuneralCry]

Health problems can be torture as there is no escape from them and there is no limit as to how bad things can get. It is understandable how so many people want to exit this world after their health declining, as it can be painful living a low quality life. I think many people are still here because suicide is so difficult. The society denies us a peaceful exit so we have to resort to methods that could fail. In many cases it is the survival instinct holding people back, we want to die but we are programmed to survive. Overall life really is horrible and in my opinion it is better to never be born in the first place.

 

[KuriGohan&Kamehameha]

Yes, I have had chronic health issues since I was around 17 and have been forced to wallow in 5 years of hell. The conditions I have are incurable, untreatable, and one of them has exactly 0 approved interventions under current "guidelines"

There is a dearth of proper pain management yet everyone expects you to trudge on as if you receive the same quality of care that a palliative patient would. You are told to get up, get out there and function as if there aren't diseases gnawing and wearing at your body every day.

This is my main reason for ctb too. The world simeltanously decries sick and ailing people for failing to be productive, then scolds us when we are fed up with this maltreatment and want to escape this nightmare. There is no relief.

 

[Beeper]

Mental illness is my biggest challenge. It has been an issue since I was a child. Things have tended to get worse as time has gone on.

At times things are ok. I am able to build a reasonable life. Then the illness steps in and I begin self-destructive behavior. Everything gets scattered or lost. It's like pressing the reset button. Time to start over, again and again. Rinse and repeat.

 

[Ego Sum Medusa]

Mental illness is my biggest challenge. It has been an issue since I was a child. Things have tended to get worse as time has gone on.

At times things are ok. I am able to build a reasonable life. Then the illness steps in and I begin self-destructive behavior. Everything gets scattered or lost. It's like pressing the reset button. Time to start over, again and again. Rinse and repeat.

Get that; it's like, "Oh, that right; I'm crazy." Gods Dammit.

 

[ChaseIt]

Yep, that's me. Been a type 1 diabetic for 20 years and 15 years ago I was diagnosed with kidney cancer. When I was diagnosed with that I had no health insurance (couldnt get it back then at any price because I was diabetic) so I said fuck it, this is it. Never killed me though, finally a few years ago I did get insurance thanks to Obamacare and got it removed figuring they probably misdiagnosed and sure as shit it was cancer. I will never go through that type of surgery again and now diabetes is starting to cause complications. If things do go south quickly I want to be prepared so I got my N. It's really not something I want to do but it's not something I keep secret about, even my therapist knows.

 

[Soapie]

i know a this isnt exactly a health condition but more of a neurological one but Ive been struggling with adult onset tourettes for a while mpow. its really really really humiliatiing . it can be suppressed to a degree but not cured. it ends with nobody taking you seriously or anything like that. you become the comedic relief even when you're trying to be serious. it also completely bars me from a lot of complex motor tasks. ican pretty much forget about driving or even riding a bike. idk if its my main reason to ctb but its certainly a big one. its an obstacle that idk if i have the strength to overcome entirely

 

[Bot]

this makes me so sad, i totally get why you all want to ctb, this life is hell..

 

[clownangel]

I am… not sure how I cope but can definitely relate. I've had some diagnosis's over half my life now & feel like I never got to really live in the first place because of it. If there was any real shot at feeling better I probably wouldn't be as apathetic but mostly I'n just exhausted aha.

 

[Grumpy Bear]

Yes, my condition is curable but doctors keep stacking the odds against me. Instead of me explaining my situation again have a link.

Immobile and Can NOT Have Surgery Performed

 

[OpheliasFlowers]

yes, i relate. I've been dealing with increasingly worsening and continually new added physical health conditions for most of my life, especially the last 25 years. I don't feel human anymore. Everything has been taken from me due to my chronic and painful health problems...a chance at a social life, the ability to have kids, the ability and opportunity to build a career or at least just be independent. My hair has fallen out, I've had to wear an adult diaper the past 2 years, my teeth are going bad, my eyesight is worsening, my weight has plummeted to 87 lbs. I suffer daily from numerous GI issues and pain (which is why I DESPISE the upcoming holiday season when people are so concerned about food, since I can't enjoy it anymore). In the last two weeks I was informed I likely have an enlarged heart. I have other chronic, incurable conditions also, and a couple autoimmune diseases. It just never ends. As for coping, I can't anymore and haven't been able to at all for the last 10 yrs at least which is why my anxiety disorder and depression are out of control as well. I just want this to END. But I've never gotten up the courage to do it. I'm afraid to live and afraid to ctb. I feel like I'm in hell.

 

[AppleTreeDog]

I've had chronic GI issues since childhood, and I'm usually in constant mid-range level pain, that fairly often randomly flips into severe pain. Over years and years I've had basically every possible test done and redone, and every result has always come back "normal". So there's no treatment because apparently there's nothing wrong with me. I've tried elimination diets, acupuncture, obsessive tracking of meals & symptoms, etc. My therapist thinks it's all due to my general anxiety & mood disorders, which makes it feel even more overwhelmingly impossible to fix. I've finally given up trying to find answers and relief from this. It's exhausting and I'm so tired and I feel sick all the time.

 

[KuriGohan&Kamehameha]

I've had chronic GI issues since childhood, and I'm usually in constant mid-range level pain, that fairly often randomly flips into severe pain. Over years and years I've had basically every possible test done and redone, and every result has always come back "normal". So there's no treatment because apparently there's nothing wrong with me. I've tried elimination diets, acupuncture, obsessive tracking of meals & symptoms, etc. My therapist thinks it's all due to my general anxiety & mood disorders, which makes it feel even more overwhelmingly impossible to fix. I've finally given up trying to find answers and relief from this. It's exhausting and I'm so tired and I feel sick all the time.

Your pain is not because of anxiety or mood, what a rubbish thing for them to say. This gaslighting has to stop. It is not your fault at all that you experience this pain. I've been told the same bullshit because suffer from horribly painful IBS that results in chronic constipation.

When it comes to GI issues, there is barely any research being done, despite the GI tract being one of the most complex anatomical systems. There are more serotonin receptors in the GI tract than most brain regions, which was only recently discovered I think. Many mechanisms underlying GI functioning are poorly understood or not elucidated at all.

Yes, stress and the sort can make things worse. However, stress makes things worse by physically altering genes via g proteins and causing downstream signalling cascade changes which can impair organ functioning. It is not a matter of getting one's mood in check, it's a somatic response out of our control.

Medical staff are unwilling to admit when they don't have answers. There are so many diseases out there right now that don't have a clear etiology. Their incompetence is not a failure on your part. Scapegoating your anxiety as the sole cause is just negligent.

 

[Hewburt]

I was ready to CTB, having MS has been terrible, painful and hard, but since getting the vaccine I now have Autoimmune Hepatitis and everyday have been as sick as I could even imagine for over 5 months now. Each day gets worse, missing work, family blaming me for not working and my mood, I'm more ready now and pretty much desperate for any method that will work.

 

[LoveTakesManyForms]

My health problems started at 15 (chronic knee pain) but worsened considerably at 21 (TMD).
My Body Dysmorphic Disorder is utterly relentless.
Now that I have nerve pain the situation is simply untenable. I'm headed downhill fast. Life without autonomy and freedom is humiliating, enraging and disappointing.

I've learned the lesson I came here to learn: forgiveness. Now I merely need to find a fast method of ending this terrible nightmare.
I was left alone in the dark when all of this started so that is how I will also die. It's my destiny.

 

[Ego Sum Medusa]

Get that; it's like, "Oh, that right; I'm crazy." Gods Dammit.

So... that typo is just going to sit there now... forever.
I'm fine with that. Really.

 

[Callie Arcale]

Hello @Bot
Chronic illness - severe ME/CFS - is the reason I want to ctb. Every day is a living hell. Sadly I don't seem to muster up the courage to put myself out of my misery.

 

[castlebravo]

Yes. A neurological condition is slowly taking away my mobility. I was diagnosed 12 years ago and the last 2 have been the worst.