S
StarryEyed
PMs aren't my thing
- Mar 14, 2024
- 64
Hi. Is there anyone here who has transitioned to a life using a wheelchair? If so, do you have any advice as to how to find the will to live with the challenges that go with this?
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I read your other post about your feet. This is my take but please don't take this the wrong way. After my cancer op I was in a wheelchair in the hospital and about half a year I was a bit all over the place. Arm muscles and stabilising muscles got way stronger (as I couldn't move my legs as they would initiate sharp pain to my abdomen area) so lots of "moving" without moving the legs or "core" area of the body.Hi. Is there anyone here who has transitioned to a life using a wheelchair? If so, do you have any advice as to how to find the will to live with the challenges that go with this?
They posted in another thread how they may lose their feet. My godparents are super rich so as you said getting assisted things (like the flat, car, etc) will make things way easier. But it's so expensive. They had to sell one of their houses in order to do all this stuff. And this is in the UK.I don't use a wheelchair but I do have an electric scooter, a walker with wheels, and a cane. Which one I use depends on the distance I need to cover, and how easy it is to travel with a larger/heavier mobility aid.
It's difficult to say much about your situation without more information, but I can tell you that it's a good idea to put as much thought into choosing a wheelchair or other assistive device as you would put into buying a car or a house. Your ability to get around, or not, will have a huge impact on your quality of life.
Hi and thank you so very much for recommending Footless Jo. She's brilliant and so articulate and so gutsy and so funny. Wow. Yes, she's very helpful. There are other YouTubers with disabilities that I have been following recently that are really helpful. Indeed there is a lot of overlap with many disabilities. I've also been watching movies and series about end-of-life care, euthanasia and suicide, which are also very helpful. Here's one of my favourites lines .. This is from the Netflix series "End Game", said by a triple-amputee doctor, "Suffering is the gap between the world you want and the world you've got". How perfectly said is that? That's definitely where I am - suffering because I don't want this life with malfunctioning feet. But if I can accept this reality, perhaps I won't be suffering. Or, just maybe, at least not as much? Do you relate?Can't really relate (although I've been legally blind since birth so I do sympathize with conditions affecting everyday life) BUT there's a youtuber I watch called Footless Jo. She had to have one of her legs amputated due to chronic pain. She talks a lot about the emotional journey of losing a limb, dealing with pain from the amputation, and even having to get a wheelchair herself. Not exactly the same situation but maybe some of her thoughts could inspire some coping ideas for you.