Hello all, just wanted to make a quick post detailing short and long term goals that I personally have regarding my situation.
I also want to hear if you all have any as well.
SHORT-TERM
1. Try to improve my personality without using an aid (patch or closing an eye). I get pretty irritable and only care about a fix unfortunately as I quickly find out I'm limited on what I can do.
2. Continue to find new hobbies, already do sweepstakes and giveaways but want to engage in more i.e. listen to audiobooks, podcasts etc.
3. Make sure to be grateful for what I have everyday and remain positive despite dealing with my impairment.
4. Try not to get jealous about how other people are more functional and able to work in addition to enjoying their hobbies. I need to be patient.
LONG-TERM
1. Make sure to obtain SSDI as soon as possible, already on the right track and I'm taking a lot of initiative to get this done.
2. I have to obtain progressive lenses and a 0.2 Bangerter foil. After this, I plan to simply give the treatment time to boost my overall function.
3. If the condition is more permanent in nature then I will get my own place which is totally doable since I have a good credit score and I'm great with handling money. I would rather be happier and at peace being alone in the long run even if I'm able to do everything like I used to.
4. Prepare to apply for jobs as soon as my impairment clears and I can work again.
5. Gradually go back to old hobbies once the double vision and overall symptoms improve, including playing videogames, reading, watching television and movies.
6. After obtaining benefits, consider doing vision therapy to further assist with my condition.
7. Whether I get 100% better or not, hang out with my friend group as I haven't since last May and I'm sure they are very worried about my situation. I try to update them as much as I can.
8. Once I get benefits, aggressively treat my dry eye and ocular rosacea to further improve visual clarity and feel better overall.
For my current situation by the way, I actually sent all my medical records to another office I planned to go to.
A lead pediatric technician obtained them and forwarded everything to the providers.
They were actually super chill and provided more information without even having to go there which was refreshing because I don't have to give the same speech which would lead to disappointment.
Their opinion was to get a 0.2 Bangerter foil, (special medical eye patch) do full occlusion (half blind), be off my Atropine 1% sulfate drops in addition to alternating for a whole year.
This is going to be rough at first, considering without the Atropine 1% sulfate drops my vision blurs in and out roughly two to three seconds which is brutal.
I'm waiting to get progressive lenses and the foil itself then follow treatment to a tee and simply give it time.
Also, I might see a neuropsychiatrist based off my neuro-ophthalmologist's recommendation but I really don't want to go the mental health route if it's not necessary considering I have no history and don't want to get jacked up on SSRIs.
Without my patch or closing an eye sometimes my adult mind can't handle how bad the impairment can get and I age regress but it's only at home.
I know when to switch when someone else is around or I go outside for appointments.
The good news, as they stated was that my condition is apparently very rare but curable.
However, the bad news is that the process will take a whole year to clear everything.
I rarely have been emotional as of late but seeing all that was a lot to handle., appreciated the honesty but it's just wild how long I have to really wait for this issue to resolve.
I just can't stand having double vision come and go all day, everyday but thankfully I'm getting a translucent patch that doesn't have to attach to my glasses tomorrow.
Then I don't have to deal with my bifocals unless I need to read up close.
I appreciate the empathetic responses to my long introduction post by the way, decided to post on here after a long time lurking and was curious to hear what the community thought of for my situation.
I also want to hear if you all have any as well.
SHORT-TERM
1. Try to improve my personality without using an aid (patch or closing an eye). I get pretty irritable and only care about a fix unfortunately as I quickly find out I'm limited on what I can do.
2. Continue to find new hobbies, already do sweepstakes and giveaways but want to engage in more i.e. listen to audiobooks, podcasts etc.
3. Make sure to be grateful for what I have everyday and remain positive despite dealing with my impairment.
4. Try not to get jealous about how other people are more functional and able to work in addition to enjoying their hobbies. I need to be patient.
LONG-TERM
1. Make sure to obtain SSDI as soon as possible, already on the right track and I'm taking a lot of initiative to get this done.
2. I have to obtain progressive lenses and a 0.2 Bangerter foil. After this, I plan to simply give the treatment time to boost my overall function.
3. If the condition is more permanent in nature then I will get my own place which is totally doable since I have a good credit score and I'm great with handling money. I would rather be happier and at peace being alone in the long run even if I'm able to do everything like I used to.
4. Prepare to apply for jobs as soon as my impairment clears and I can work again.
5. Gradually go back to old hobbies once the double vision and overall symptoms improve, including playing videogames, reading, watching television and movies.
6. After obtaining benefits, consider doing vision therapy to further assist with my condition.
7. Whether I get 100% better or not, hang out with my friend group as I haven't since last May and I'm sure they are very worried about my situation. I try to update them as much as I can.
8. Once I get benefits, aggressively treat my dry eye and ocular rosacea to further improve visual clarity and feel better overall.
For my current situation by the way, I actually sent all my medical records to another office I planned to go to.
A lead pediatric technician obtained them and forwarded everything to the providers.
They were actually super chill and provided more information without even having to go there which was refreshing because I don't have to give the same speech which would lead to disappointment.
Their opinion was to get a 0.2 Bangerter foil, (special medical eye patch) do full occlusion (half blind), be off my Atropine 1% sulfate drops in addition to alternating for a whole year.
This is going to be rough at first, considering without the Atropine 1% sulfate drops my vision blurs in and out roughly two to three seconds which is brutal.
I'm waiting to get progressive lenses and the foil itself then follow treatment to a tee and simply give it time.
Also, I might see a neuropsychiatrist based off my neuro-ophthalmologist's recommendation but I really don't want to go the mental health route if it's not necessary considering I have no history and don't want to get jacked up on SSRIs.
Without my patch or closing an eye sometimes my adult mind can't handle how bad the impairment can get and I age regress but it's only at home.
I know when to switch when someone else is around or I go outside for appointments.
The good news, as they stated was that my condition is apparently very rare but curable.
However, the bad news is that the process will take a whole year to clear everything.
I rarely have been emotional as of late but seeing all that was a lot to handle., appreciated the honesty but it's just wild how long I have to really wait for this issue to resolve.
I just can't stand having double vision come and go all day, everyday but thankfully I'm getting a translucent patch that doesn't have to attach to my glasses tomorrow.
Then I don't have to deal with my bifocals unless I need to read up close.
I appreciate the empathetic responses to my long introduction post by the way, decided to post on here after a long time lurking and was curious to hear what the community thought of for my situation.
