I thought this day would never come. My SN from L has finally arrived. Want to know how long i have been waiting for it?
aminend
Warlock
- May 24, 2020
- 747
Ive got some medical issues which are the main reason I want to CTB. I've tried to get help a few times but have been pretty much turned away. I promised myself I'll give it one more go. But it's not going very well so far, as yesterday I phoned the doctors surgery which I've been going to for 26 years and they said they have no record of me on the system and that I need to re-register. Jesus christ, the NHS is bad.
So I re-registered yesterday, just waiting for confirmation that they now have me on the system and will allow me to book an appointment.
Saed
Nondescript
- Apr 21, 2020
- 580
I am happy for you,because,it's what you want.
Whatever you decide,I must respect.
I have to say that I have found you to be a very decent,kind,supportive,rational,highly principled human being,and I hate that somehow life has brought you to this position.
If there's anything that can conceivably be done to reset the trajectory you're on,please tell us.
Does having it finally in your possession make you feel like "Alright,that's there when I need it"
A sense of pressure and urgency has subsided,perhaps?
Or,is it more like a burning passion to go?
It's the latter for me.
So,there may be hope? Yes,the NHS is a shambles,but I think they'll ultimately try to help.
You need to really push for it at times.
What about a Go Fund Me if you need a specific op?
Whatever you decide,I must respect.
I have to say that I have found you to be a very decent,kind,supportive,rational,highly principled human being,and I hate that somehow life has brought you to this position.
If there's anything that can conceivably be done to reset the trajectory you're on,please tell us.
Does having it finally in your possession make you feel like "Alright,that's there when I need it"
A sense of pressure and urgency has subsided,perhaps?
Or,is it more like a burning passion to go?
It's the latter for me.
I saw this as I submitted my last.
So,there may be hope? Yes,the NHS is a shambles,but I think they'll ultimately try to help.
You need to really push for it at times.
What about a Go Fund Me if you need a specific op?
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Thankyou! I've found you to be a wise and kind person too!
I was honestly adamant I was done until a couple of days ago, when I for some reason just spontaneously decided I'd give it one more go.
I need surgery for respiratory issues I've been having for the last year and a half. The last time I went in they said they werent serious enough, and that I hadnt been having them for long enough to warrant surgery. For me now I think it's as cut and dry that if they tell me I can get surgery I wont CTB, but if they tell me I cant then I will.
I feel loads more comfortable knowing that I've got it, but I'm not doing anything rash and I'm sticking it out at least until ive had my next doctors appointment. I personally need to at least feel like I've tried everything, or I wont be able to do it in good conscience. But we are getting to that point now if they turn me away for the help I need again.
I also just saw the last bit you said after having submitted my post. Money isnt an issue. I tried to get it done on the nhs and they turned me away, and I also tried to get it done privately and they turned me away. Even though I had the money to afford the OP they said I wasnt a suitable candidate for surgery.
Saed
Nondescript
- Apr 21, 2020
- 580
This is good,solid,clear reasoning. Please,for the love of everything,let this go your way.
I know you conduct yourself with honour and respect,but sometimes,with the NHS,you really do need to keep on at them,or even spit the dummy.
Oh,yes,you have this fight left in you.
You shall prevail. Believe it.
Mmm just saw this...Just continue to hang on in there,tread water. This can swing around,although I don't know on what grounds they based their assessment,it can be revised.
I know you conduct yourself with honour and respect,but sometimes,with the NHS,you really do need to keep on at them,or even spit the dummy.
Oh,yes,you have this fight left in you.
You shall prevail. Believe it.
Mmm just saw this...Just continue to hang on in there,tread water. This can swing around,although I don't know on what grounds they based their assessment,it can be revised.
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The uk is fucking disgustng honestly, i to need a surgery and was willing to pay and still got denied because my retard GP said i had anxiety depression which i didnt at that point and my issue was real, now 16 months later after ive suffered profusely and got worse and worse the gastroenterologist admitted im probably right and forwarded me for surgery...
I wouldnt get too excited. The fact that they have apparently lost my contact details and medical records doesnt fill me with confidenceThis is good,solid,clear reasoning. Please,for the love of everything,let this go your way.
I know you conduct yourself with honour and respect,but sometimes,with the NHS,you really do need to keep on at them,or even spit the dummy.
Oh,yes,you have this fight left in you.
You shall prevail. Believe it.
Mmm just saw this...Just continue to hang on in there,tread water. This can swing around,although I don't know on what grounds they based their assessment,it can be revised.
Saed
Nondescript
- Apr 21, 2020
- 580
Did you spell your name over the phone? Accent issue,maybe? Got any record of your NHS number anywhere?
They cannot be truly "lost",at the very least,copies were no doubt sold to third parties.
Frustrates me no end just pondering that level of incompetence,really.
Ughhhh so I just had a telephone consultation with the GP and they've put me on a waiting list to see a specialist, and I can apparently expect to wait at least three months just for an appointment. Fuck my life.
idkimtired
Member
- Jul 8, 2020
- 5
ah damn. I'm sorry to hear that. anything you want to do before the next step?
I'm still thinking I'd like to stick it out until after then if I can. I've got my SN, so in the meantime I'll go and sort out an anti-emetic and decide if I want an anti-acid too.
Or I might get fed up and just end it. We will see.
Raminiki
Iustitia Mortuus
- Jun 12, 2020
- 269
I feel your pain. I've also dealt with being denied or ignored by the NHS, many months of waiting times, and being conveniently forgotten after waiting all those months, as well as getting all manner of pills prescribed, but no more meaningful treatment to address causes instead of symptoms. It's a frequent occurrence in the UK. I got better treatment in the USA. Have you considered trying to get the surgery in another country if you can afford it? If you're stuck with the NHS, you have to be constantly on their backs about your medical issues, going to the GP every couple of weeks, insisting for further help.
I'm so sorry you're on a seesaw and your life may be in the balance. I really hope you can find an avenue that will allow you to get the help you need.
idkimtired
Member
- Jul 8, 2020
- 5
I admire your patience and optimism. Waiting so you have everything prepared with the potential that you decide not to sounds like a good plan.
and thast why i went private.
NHS consultation for my pancreatic insufficiency issue = 276 days
private= we'll see you next week
That's a pretty average wait for a referral though isn't it? I know that sucks but those 3 months might just be worth the wait !
it wont because its aonther road block, they'll then book him a scan or something thats another 3-6 months... and then a surgery thats another yearThat's a pretty average wait for a referral though isn't it? I know that sucks but those 3 months might just be worth the wait !
Thinking of you, too ! Having options and control can only be a good thing.
