I don't trust doctors anymore. A nerve was accidentally cut in my leg during a surgery (surgical mistake) and I ended up developing nerve pain all over my body following it happening, and the doctor said there was no connection. "Really"… I said. So in 35 years (I was 35 at the time) I'd never had any nerve pain or neurological symptoms anywhere in my body, then I have a surgery that cuts a large nerve in my leg (which is obviously part of my nervous system) leaving me with many different neurological symptoms, then shortly after that these symptoms slowly start to spread throughout the rest of my body (burning, tingling, stabbing, itching, crawling sensations), and he expected me to accept that there was no connection. I mean do these doctors think we're stupid or something. I've since learned however that there could be a little more to it than that (the trauma of it), but that surgery without doubt is what started my chronic pain (whatever the mechanism behind it), and I still have it now 9 years later. To cut a nerve someone's leg causing nerve pain (and other symptoms) in that leg, then say that the exact same symptoms spreading elsewhere throughout the body has nothing to do with the nerve being cut…. absolutely ridiculous!
Never trust a doctor without doing your own research as well, or getting other professional opinions if possible. I've learned the hard way believe me. I've got a lot of (sometimes shocking) examples of medical malpractice that have happened to me because I used to trust doctors too much. Most doctors are ignorant idiots and shouldn't even be a doctor. I've been told many times over years that my concerns were not valid, or I was wrong about what I thought was wrong with me, or there was nothing wrong me at all, etc, but (with regards to the problems I've personally had) I don't think I've ever been wrong. Why? Because nobody knows our bodies better than ourselves. If we can feel (or even suspect) that something is wrong with us or not quite right, that's because there probably something wrong, so don't let any doctor convince you otherwise. I've learned to conduct my own research and get other opinions, and many times have been forced to have to figure things out myself because so many doctors are clueless and no help at all. Most of the time, I've found that by the time I've actually seen a doctor or consultant, that I've already known or at least have had a good idea of what the problem was, and almost all of the time I've been correct. There's also been times where I've been right and the doctors or consultants have been wrong, go figure.
Could be a coincidence, but most of the time if you start taking something (anything) and develop something else, there's most likely a connection of some sort, either directly or indirectly. There's almost always a connection. I'm not saying that that's the case here, I'm just giving an example of one of the reasons that I don't trust doctors, because most of them (in my experience) are incompetent negligent idiots, and quite frankly a danger to the public. Obviously we do need to trust at some point, but try and verify what they're telling you by using other sources. Even the very few good doctors out there make mistakes.
This is just my personal opinion formed from my own unfortunate experiences. I obviously realise that we do have to still trust doctors, myself included, but also trust your instincts and do your own research and get other opinions if possible. Never just trust what they (or 1 of them) say, because they may be wrong, and if they are it could cost you dearly.
If you or anyone else are interested, please read some of my story below, and you will understand why I have completely lost trust in doctors and the medical system (warning, it'll be a long read, and still won't even be the half of it):
It started in 2013 when I underwent a hip surgery that I didn't need (I got misdiagnosed, my hip wasn't the problem). That surgery caused me quite a bit of harm (I still suffer with the consequences of it to this day, and it is one of the main reasons that I'm here), so then I had to undergo another hip surgery by a different surgeon to try to repair the damage done by the first surgery (although I've never been the same since). Then, I got misdiagnosed again and had another surgery I didn't need, luckily that one didn't cause me too much harm though. Then, when I was finally diagnosed correctly, I had the surgery that fixed my original complaint (it was only a groin injury). So I ended up having 4 surgeries when I only needed 1, and after all that it took me almost 2 year's recovery and rehabilitation before I was walking good again because of what had been done to me (however, my walking was never the same again). And the worst thing about it all is, is that I should never have had those first 3 surgeries at all, I only needed 1. Had I have been diagnosed correctly to start with, I would have had a relatively straightforward procedure and have been back at work and to a normal life again in a few months, but instead it took almost 3 years of my life and I lost my amazing well paid career (and could never go back to it again). That mistake has also resulted in me requiring many other surgeries since, because of the consequences of it. It's been a nightmare to say the least.
From 2013 to 2023 I had 15 surgeries in total (not all of them as consequences of the aforementioned one, but many of them), and now here I am, life completely ruined by all that has happened to me. My life being ruined is not all the surgeon's fault of course, but they have certainly helped to create the snowball of effects that have ruined it, so I do hold them partially responsible for the situation that I'm in now. I also hold myself responsible because ultimately I'm responsible for my sports and other injuries, if I'd have not made the decisions I did then things would have been different for me. It was also my fault for trusting these doctors and surgeons, but I was naive back then and thought that I could trust them, how wrong I was. I've also been left in chronic (sometimes debilitating) whole body pain due to another surgeons mistake. These are what have brought me to SaSu and why I need to end my life, take all that away and I'm almost certain that I'd be enjoying life and would not be here.
Believe it or not I've also had other misdiagnoses too, which have created a lot of other problems for me. Also, I had surgery on my other hip in 2023 because my walking became too problematic to cope with due to my pelvis becoming too dysfunctional from the previous surgeries. It was done by the surgeon who repaired my other hip in 2013 after the first surgery that damaged it, so I trusted this surgeon. He told me that the reason I couldn't walk properly anymore and why my pelvis wasn't functioning properly was because of my hip, so because I trusted this guy I had the surgery, but it did not help my complaint in any way. In fact I'm actually a lot worse now than before the surgery. I can't say if my deteriorating condition has anything to do with that surgery of course, but what I can say is that it obviously wasn't my hip causing the problem, otherwise I should have seen some improvement (at least). Now, I can only walk properly with one leg (if that makes sense) and have to use my other leg as like a moving support, it's been described to me as like having a wooden leg. Every step I take, even just at home, is painful and very uncomfortable.
That surgeon also failed to recognise (or inform me) that my imaging showed that my pelvis was twisted and tilted, which is the reason that I can't walk properly anymore, not my hip like he said, in fact my hip is worse now than before the surgery, yet another surgery that I didn't need and that has done me harm. I even specifically said to the surgeon "bearing in mind everything I've been through, do you think that my hip is the reason that I can't walk properly anymore?" and he said "yes", so that's why I had the surgery. I only became aware of how of much my pelvis is messed up a few months ago, when due to my deteriorating condition and increased pain and dysfunction I asked the hospital for my imaging. I looked at the imaging myself to try and see what was going on, and to my (and one of my physical therapists) horror, could see exactly what the problem is with my pelvis. And the worst thing is, nothing can be done to fix it. It's been caused by a combination things, mainly the surgeries I've had over the years, but also the injuries that brought me to a surgeon in the first place. It's an awful situation to be in, especially when others are to blame.
Over the last 3 years, I've seen almost 40 doctors, surgeons, consultants, and therapists, and spent many thousands of pounds in the process, and almost all of them have said different things about my conditions and gave me different diagnoses/prognoses, and unfortunately nothing can be done for me. That's how much effort I've put into trying to help myself (because I don't really want to die) and how much I don't trust any of these so called specialists anymore. There's obviously a lot more to my story than that (I could write a book), but that's my 2 cents of why I'd never trust anything a doctor (or specialist or therapist etc) says without my own researching and getting other opinions.
And if all that weren't bad enough, due to all the trauma I've been through (both physically and psychologically) because of all these surgeries, I was diagnosed last year with a neurological condition. Basically, the neurologist said my nervous system was shot to pieces and i'm stuck in "fight or flight". So now I've got all kinds of non-motor symptoms too like severe anxiety, tremors, panic attacks, weakness etc. He diagnosed me with a movement disorder called Functional Dystonia and there is no cure.
So now, I can't work anymore, I can't exercise or even go out for a proper walk anymore (I mean I can still move and get about but it's painful and uncomfortable to do so). I'm in pain 24/7 (both musculoskeletal and nerve pain) and on 4 different medications because it's bad enough that I'd never get any sleep at all without medication, i have sleep difficulties and sometimes can't sleep at all, spend most of my day in bed or lying down, have lost all my friends, only go out for medical appointments, have no life whatsoever, and I'm pretty much broke and live with my parents. I Don't want to go anywhere or do anything anymore because I'm too ashamed and embarrassed by what's happened to me and don't want to be seen in public. I also get quite nervous when I'm out in public now, and just feel very uncomfortable in general. I also have CPTSD. I don't have any sort of a meaningful life anymore, I just simply exit. Having to live with all these issues (and many more) and feeling the way I do about myself is why I'll be soon ending my life. I've coped with and suffered a lot for many years now, but it's got to the point where it's too much now and I've had enough. Now, this would be a very difficult situation for anybody to be in, but for someone like myself who was once part of one the most elite military units in the U.K., practiced many different martial arts, used to run about 50 miles a week, swim, hike, climb, lift heavy weights, have very physical and active careers, etc etc etc, this is absolutely devastating for me. To go from being extremely fit and healthy to being trapped in this body is hell for me. To say that I'm a shadow of my former self would be a massive understatement. I'm literally a completely different person and I hate what I've become and what myself and these surgeons have to done to me. But what's done is done and I've accepted my fate. It's just a shame that it had to end this way. But shit happens as they say.
Anyway, believe it or not I could go on, so much more has happened to me also, but I've already said far too much (I get carried away and can't help myself lol). And to anyone else reading this, please don't always trust a doctor (or surgeon etc) and think what they tell you or diagnose you with is correct. The biggest mistakes of my life were trusting them, and I'll soon be ending my life because of what they have done to me. What has happened to my body as a result of their actions has left me with no other option because I can't live like this for much longer.
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