Help PTSD and Tremours - anyone else?

[Deleted member 18655]

I've been going through PTSD since the second week of March (thanks to the COVID Fairy). I recognise the symptoms well; they were treated completely twelve years ago with ECT and I was completely free of anythings I experienced before then. It's back now and the symptoms are a lot different than the first time around. They mirror my MS symptoms (which I've only had for four years) - tremours, dizziness, trouble breathing, sweating... I don't remember having such physical reactions before - maybe because I was being molested and they weren't flashbacks yet?????? The meds that I take for my MS attacks sometimes work for Shell Shock. (I'm saving my Propranolol for ctb so I can't take as much as I need to). It's getting annoying though. My arms twitch and my head shakes and I have no control over it all. Flashbacks turn me into a mess!

Does anyone else get such harsh reactions to flashbacks?

 

[Life_and_Death]

yeah. i have this one that makes it so i cant breath. i panic. my heart rate seems to rise (i can only judge by how my chest feels) things like that basically until i calm back down

 

[rancho]

I've been going through PTSD since the second week of March (thanks to the COVID Fairy). I recognise the symptoms well; they were treated completely twelve years ago with ECT and I was completely free of anythings I experienced before then. It's back now and the symptoms are a lot different than the first time around. They mirror my MS symptoms (which I've only had for four years) - tremours, dizziness, trouble breathing, sweating... I don't remember having such physical reactions before - maybe because I was being molested and they weren't flashbacks yet?????? The meds that I take for my MS attacks sometimes work for Shell Shock. (I'm saving my Propranolol for ctb so I can't take as much as I need to). It's getting annoying though. My arms twitch and my head shakes and I have no control over it all. Flashbacks turn me into a mess!

Does anyone else get such harsh reactions to flashbacks?

Are you saying ECT worked really good for you? (I"m supposed to start for the first time soon - if I don't CTB first and if I get medical clearance)

Why not do it again?

 

[Deleted member 18655]

Are you saying ECT worked really good for you? (I"m supposed to start for the first time soon - if I don't CTB first and if I get medical clearance)

Why not do it again?

YES!! My mum drove me to the first one (she didn't live in my city but wanted to accompany me) and she said that when I woke up right afterwards she could tell there was a difference. For over 12 years until just this past March I didn't touch one medication, didn't have any "Capital D" Depression, held down jobs and travelled the world. My doc knew where to put the electrodes so my ability to work/think/study was threatened. The weirdest part was my memory "issues." I lost complete recollection of books and movies I'd seen for the two years leading up to the treatments?! It still boggles my mind when I see certain book covers LOL. And it erased the last two years of a hellish marriage... But I went into it as a Purging Anorexic, with PTSD and BPD 1. The eating nonsense and PTSD are from Lockdown so I'm just dealing with that, not touching medication or ECT again - I don't want to play with the "wires" in my brain if I don't have to and 'm not touching any psych pharmaceuticals.

I know most people don't have this kind of success but it was brilliant for me. I basically forced my doctors to give me the treatments after I saw this video:


Really, do research and ask around. You'll get both sides of the story, good and bad. It's probably the only reason I'm still alive now. I'm not sure if that's a good thing or a bad thing, but there it is.

 

[rancho]

YES!! My mum drove me to the first one (she didn't live in my city but wanted to accompany me) and she said that when I woke up right afterwards she could tell there was a difference. For over 12 years until just this past March I didn't touch one medication, didn't have any "Capital D" Depression, held down jobs and travelled the world. My doc knew where to put the electrodes so my ability to work/think/study was threatened. The weirdest part was my memory "issues." I lost complete recollection of books and movies I'd seen for the two years leading up to the treatments?! It still boggles my mind when I see certain book covers LOL. And it erased the last two years of a hellish marriage... But I went into it as a Purging Anorexic, with PTSD and BPD 1. The eating nonsense and PTSD are from Lockdown so I'm just dealing with that, not touching medication or ECT again - I don't want to play with the "wires" in my brain if I don't have to and 'm not touching any psych pharmaceuticals.

I know most people don't have this kind of success but it was brilliant for me. I basically forced my doctors to give me the treatments after I saw this video:


Really, do research and ask around. You'll get both sides of the story, good and bad. It's probably the only reason I'm still alive now. I'm not sure if that's a good thing or a bad thing, but there it is.

Thanks. How functioning are you during the treatments. Like if I have a somewhat complicated (for me, a non handsy person) setup for CTE - will I even be able to remember how to do it if I decide these treatments aren't working.

Your story is amazing.

 

[Deleted member 18655]

@rancho Thanks

I had sessions first thing in the mornings, Monday, Wednesday and Friday for a month. I know it's not normal but my mum and I were in a shopping mall about two hours after my first session! I only lasted about an hour before I needed to go home and sleep. They warned me, and it was true for me, that after about a week, you can feel a difference. You feel lighter and "happy." But by Tuesday afternoon, for example, Monday's treatment starts to wear off and I couldn't wait for Wednesday to come. By about two or three weeks, it was great and I really felt a difference.

My psych told me to get off of every (psych) med two week prior. When I was all done, he told me I should go back on them. I smiled, left his office and didn't need anything at all after that.

In terms of CTE, all I can say is that ECT has been around longer than (or at least as long as) meds. They might not know why it works but they know how to perform it so as not to affect specific functions. I was a teacher when I had mine and he showed me how he was going to do it and how he would do a "top up" if I needed it, so it didn't affect my ability to work. They specialise in the brain. As long as he clearly knows what potential obstacles you might have he'll be able to put the electrodes in the right spot(s) - not disturbing areas of the brain responsible for certain things.

 

[rancho]

@rancho Thanks

I had sessions first thing in the mornings, Monday, Wednesday and Friday for a month. I know it's not normal but my mum and I were in a shopping mall about two hours after my first session! I only lasted about an hour before I needed to go home and sleep. They warned me, and it was true for me, that after about a week, you can feel a difference. You feel lighter and "happy." But by Tuesday afternoon, for example, Monday's treatment starts to wear off and I couldn't wait for Wednesday to come. By about two or three weeks, it was great and I really felt a difference.

My psych told me to get off of every (psych) med two week prior. When I was all done, he told me I should go back on them. I smiled, left his office and didn't need anything at all after that.

In terms of CTE, all I can say is that ECT has been around longer than (or at least as long as) meds. They might not know why it works but they know how to perform it so as not to affect specific functions. I was a teacher when I had mine and he showed me how he was going to do it and how he would do a "top up" if I needed it, so it didn't affect my ability to work. They specialise in the brain. As long as he clearly knows what potential obstacles you might have he'll be able to put the electrodes in the right spot(s) - not disturbing areas of the brain responsible for certain things.

I'm afraid of first thing in the morning. I feel horrible then............But, I'm still loving hearing this story.

 

[Deleted member 18655]

I'm afraid of first thing in the morning. I feel horrible then............But, I'm still loving hearing this story.

That's perfect! I think it was about six in the morning. In the back of the hospital where there were no patients or staff. I think I showed up in my PJs, got into a gown, had the treatement, woke up and was home by 9am. You don't have to be alert for any special reason; just show up! And that was just the hospital I went to. Others might do it completely differently.

 

[Deleted member 18655]

I was about to make this post. I didn't realise I made it months ago.

The tremours are worse than they've ever been. Meds don't really work. My pdoc's suggestion of journalling makes it worse and sleep is the only thing I find that works but only until I wake up again.

I can't stand this.

 

[Good4Nothing]

Hey, youre back! Good to see you! I've been wondering where you were.
Sorry things are bad for you right now. I hope they get better.

 

[Meditation guide]

I've been going through PTSD since the second week of March (thanks to the COVID Fairy). I recognise the symptoms well; they were treated completely twelve years ago with ECT and I was completely free of anythings I experienced before then. It's back now and the symptoms are a lot different than the first time around. They mirror my MS symptoms (which I've only had for four years) - tremours, dizziness, trouble breathing, sweating... I don't remember having such physical reactions before - maybe because I was being molested and they weren't flashbacks yet?????? The meds that I take for my MS attacks sometimes work for Shell Shock. (I'm saving my Propranolol for ctb so I can't take as much as I need to). It's getting annoying though. My arms twitch and my head shakes and I have no control over it all. Flashbacks turn me into a mess!

Does anyone else get such harsh reactions to flashbacks?

Those could be symptoms of ms. I have ms and panic attacks sometimes and ptsd and it's hard to tell them all apart.

 

[Deleted member 18655]

Those could be symptoms of ms. I have ms and panic attacks sometimes and ptsd and it's hard to tell them all aitpart.

HI What type do you have? Have you found anything that works for essential tremours? I have RRMS. It and the PTSD present the same way. I can tell them apart by my eye sight - when the Optic Neuritis hits, I reach for the Prednisone. I had Prednisone about six weeks ago so these symptoms are all from stress. I'm laying on the sofa now because I'm too dizzy to sit up and when I walk I'm sure I look like a drunken Parkinsons patient.

But no, it's just me re-livng trauma. As it turns out, masks trigger repressed sexual abuse and I'm triggered by seeing them so I don't even look outside. And wearing one is not an option - when I do wear one it triggeres me for days afterward. I've worn one twice and both times I was physically ill and a shakey mess.

Fun.

 

[Meditation guide]

HI What type do you have? Have you found anything that works for essential tremours? I have RRMS. It and the PTSD present the same way. I can tell them apart by my eye sight - when the Optic Neuritis hits, I reach for the Prednisone. I had Prednisone about six weeks ago so these symptoms are all from stress. I'm laying on the sofa now because I'm too dizzy to sit up and when I walk I'm sure I look like a drunken Parkinsons patient.

But no, it's just me re-livng trauma. As it turns out, masks trigger repressed sexual abuse and I'm triggered by seeing them so I don't even look outside. And wearing one is not an option - when I do wear one it triggeres me for days afterward. I've worn one twice and both times I was physically ill and a shakey mess.

Fun.

I have internal tremors every time I wake up and sometimes they last all day. I have blurred vision a lot. Dizzy a lot. Breathing is hard. I don't see a doctor at all and take nothing for it.