PLEASE CAN ANYONE HELP ME

[Susan Caswell]

Please can anyone help me i cant take this tinnitus any longer its making me so ill but how can i live with jet plane roaring both ears wish with all my heart it would just stop id take some getting well now the anxiety and meds making me so ill could have stood anything but this id rather have my cancer back than this i survived was cured but no one can stop damn noise in ears tinnitus isnt like this hammering so loud you cant take it its going to make me insane crazy person i dont deserve this was good happy soul with lovely life this is too cruel to be happening i dont have clue what set it off even my ears were perfect and hearing no stress no loud noise nothing most people live with and manage ok live with it why me roaring so loud my ears are vibrating how can one little pair of ears make noise like this nothing but this would have brought me here i valued my life loved life are there any doctors on here anyone who could help me if it would just go down to level i can live with i was ok for first 6 months but was one ear one noise no amplifying if only that would stop please someone help me this is horrific torture

 

[Ghost2211]

Hey friend, I recall you said this originates neurologically rather from the ear itself. I can Imagine what a struggle this is for you, and I'm sorry to hear nobody seems to have a solution. What has your neurologist said about this? Since just live with it isn't reasonable what do they suggest to tame it a bit?

 

[almost_dead]

TLDR : Any doctors here who could help with tinnitus . (Your post is literally one big sentence)

 

[inflammed123]

TLDR : Any doctors here who could help with tinnitus . (Your post is literally one big sentence)

tldr....LMAO...had to look that one up . maybe eardrum removal could work i dont know

 

[Susan Caswell]

Hey friend, I recall you said this originates neurologically rather from the ear itself. I can Imagine what a struggle this is for you, and I'm sorry to hear nobody seems to have a solution. What has your neurologist said about this? Since just live with it isn't reasonable what do they suggest to tame it a bit?

i would say mines ears 100% the amplifying is ears for sure all say no cure have to live with it and i would be if i could believe me x

TLDR : Any doctors here who could help with tinnitus . (Your post is literally one big sentence)

I know i ramble think im going insane now just so want it to stop

 

[MariV]

i suffer from tinnitus aswell...in fact i had a crysis 2 days ago and my parents had to come because i wanted to cut my wrists to end it. i feel your desperation and am so sorry. have you tried tinnitus masking videos? there are many in youtube.this one is my fav:

 

[Soul]

@Susan Caswell, as always you have my sympathy. I know you've tried pretty much everything and seen multiple doctors, right? Have you tried getting a consultation at a teaching hospital? and/or contacting the media about your condition? If one of those "difficult case" columns or shows took an interest, maybe someone would have an idea.

Meanwhile, do you notice anything that gives you at least a little relief? Meditating, submerging in your bath, listening to your breathing or birds chirping? Earplugs? Headphones? Ice packs? Anything?

 

[Susan Caswell]

i suffer from tinnitus aswell...in fact i had a crysis 2 days ago and my parents had to come because i wanted to cut my wrists to end it. i feel your desperation and am so sorry. have you tried tinnitus masking videos? there are many in youtube.this one is my fav:

I cant masks it for the amplifying id cope if that went im sorry you have it its cruel

@Susan Caswell, as always you have my sympathy. I know you've tried pretty much everything and seen multiple doctors, right? Have you tried getting a consultation at a teaching hospital? and/or contacting the media about your condition? If one of those "difficult case" columns or shows took an interest, maybe someone would have an idea.

Meanwhile, do you notice anything that gives you at least a little relief? Meditating, submerging in your bath, listening to your breathing or birds chirping? Earplugs? Headphones? Ice packs? Anything?

Sadly nothing wish something helped even a little x

 

[MariV]

I cant masks it for the amplifying id cope if that went im sorry you have it its cruel

Sadly nothing wish something helped even a little x

if you are from the US, theres an ongoing developing of a cure. OTO-313 is the name and its on phase 2. it managed to greatly improve the tinnitus of half of the clinical trial participants. maybe you can take part. good luck

 

[Cherrypea]

Susan I feel for you so much. If I was you I would rather be deaf than suffer as you do. Is there a surgical option to do this? At the moment it seems you would rather be dead so deafness may be a better option? I don't know if its possible and know nothing about tinnitus so I apologise if I'm being naive.

 

[NoDream]

Have you ever done a MRI for this problem?

Have you been to the dentist with this problem?

Have you tried to minimize the roar with sound therapy?

Have you had a concussion or whiplash damage?

Have you tried specially designed hearing aid for tinnitus/hyperacusis?

Have you tried Nortriptyline?

Have you tried Hypnosis?

Have you tried Benzo?

 

[Susan Caswell]

if you are from the US, theres an ongoing developing of a cure. OTO-313 is the name and its on phase 2. it managed to greatly improve the tinnitus of half of the clinical trial participants. maybe you can take part. good luck

Im in the UK

@Susan Caswell, as always you have my sympathy. I know you've tried pretty much everything and seen multiple doctors, right? Have you tried getting a consultation at a teaching hospital? and/or contacting the media about your condition? If one of those "difficult case" columns or shows took an interest, maybe someone would have an idea.

Meanwhile, do you notice anything that gives you at least a little relief? Meditating, submerging in your bath, listening to your breathing or birds chirping? Earplugs? Headphones? Ice packs? Anything?

No nothing dont get it anxiety now so bad i literally cant take the roaring never stops cant listen to anything or mask it amplifying is horrific now but im so damn ill. Ive tried all you suggest even Universities and local media and This Morning im at breaking point cant stay this way rest of my life it has to be the cruelest most dementing damn thing just wish it would burn itself out and stop id take some getting well now but id have a chance x

 

[MariV]

its really cruel yes. today my tinnitus is loud again and its making me crazy. if it wasnt for my mother i would ctb right now. ah, the eternal silence...

 

[Lostandlooking]

I've seen several of your posts and feel reluctant to comment because what do I know right?! I'm not a doctor and I imagine you must have tried EVERYTHING. And now you're desperate for ANYTHING that might help. I wonder if you tried the thing in the video below. It describes the 'Reddit Tinnitus Cure'. And they said at the end of the video that 50% of people experienced some relief. I feel so bad for you to have to experience this torture.

Edit: just realized you said you can't listen to anything. So turn the sound off and subtitles on!

 

[Meditation guide]

I just did this a few times and it eased up to about half the volume for a couple of minutes! I will continue to work with it. It's much quieter! THANK YOU!

It's gone in the ear that was quieter, and about half as loud in the other ear.

 

[whywere]

Hi! I feel very sorry for what you are going through. It is heart breaking. Please take good care of yourself and lots of love to you!!!!!

 

[Meditation guide]

please someone help me this is horrific torture

Susan give this method a try please.

 

[Susan Caswell]

Susan I feel for you so much. If I was you I would rather be deaf than suffer as you do. Is there a surgical option to do this? At the moment it seems you would rather be dead so deafness may be a better option? I don't know if its possible and know nothing about tinnitus so I apologise if I'm being naive.

No they said if deaf id still have the tinnitus dont know how thats possible even nothing but this would have brought me here i was so well healthy happy life just cant understand it would rather have anything but this and dont even know how to end it x

 

[Meditation guide]

No one should try those sound videos on youtube. Where they play various tones that are supposed to help tinnitus. I tried one and it turned up the volume about ten times louder. I was really horrified and cried. It finally went back down where it had been but at the time it was a disaster, so do NOT listen to those.

 

[Soul]

@Susan Caswell, have you tried the technique that @Lostandlooking posted above?

And are you active on any tinnitus forums? I know you feel like you can't ask (or hire) anyone to help you upload the documents that Dignitas (or Pegasos?) requires, and we can't do it for you, so maybe a tinnitus forum would have good ideas for you.

 

[Meditation guide]

I love how I just have it in the loudest ear now instead of both ears!!!

I couldn't get the left hand to tap too hard and that is the loud side. Maybe if I can tap harder using that technique it will help more.

Also I have lot's of hair on the back of my head so that also dulls the tapping sensation on the back of my head. But I plan to work with it more. I'm thrilled it's just in my left ear instead of both now.

I wonder if it would work if someone else were tapping on the back of the head, or if it has to be specifically that way with the fingers.

I'm going to experiment with putting in ear plugs and tapping the back of my head harder.

 

[Susan Caswell]

I love how I just have it in the loudest ear now instead of both ears!!!

I couldn't get the left hand to tap too hard and that is the loud side. Maybe if I can tap harder using that technique it will help more.

Also I have lot's of hair on the back of my head so that also dulls the tapping sensation on the back of my head. But I plan to work with it more. I'm thrilled it's just in my left ear instead of both now.

I wonder if it would work if someone else were tapping on the back of the head, or if it has to be specifically that way with the fingers.

I'm going to experiment with putting in ear plugs and tapping the back of my head harder.

You name it ive tried it cant take it any longer roaring jet plane both ears had so very much living to do thought id had all my medical quota and more and was really well happy its cruel left like this x

 

[MariV]

its very bad...thays why ctb is common among tinnitus patients and ill probably do it myself soon. im so sorry for my family but its simply unbearable. we have no choice...madness will end up coming

 

[Homecoming]

i suffer from tinnitus aswell...in fact i had a crysis 2 days ago and my parents had to come because i wanted to cut my wrists to end it. i feel your desperation and am so sorry. have you tried tinnitus masking videos? there are many in youtube.this one is my fav:

Tinnitus masking won't cure my Tinnitus a tiny bit. As soon as I put down the headphone, that loud high-pitch ringing comes back torturing me 24/7

I think my Tinnitus was caused by my reckless parents who tried to clean my ear canal with unsterile hard wooden stick with a bit curvature at the tip (I don't know what it's called). And "thanks" to them, I got chronic ear infections with nasty yellowish pus coming out from both ears and muffled hearing

Please can anyone help me i cant take this tinnitus any longer its making me so ill but how can i live with jet plane roaring both ears wish with all my heart it would just stop id take some getting well now the anxiety and meds making me so ill could have stood anything but this id rather have my cancer back than this i survived was cured but no one can stop damn noise in ears tinnitus isnt like this hammering so loud you cant take it its going to make me insane crazy person i dont deserve this was good happy soul with lovely life this is too cruel to be happening i dont have clue what set it off even my ears were perfect and hearing no stress no loud noise nothing most people live with and manage ok live with it why me roaring so loud my ears are vibrating how can one little pair of ears make noise like this nothing but this would have brought me here i valued my life loved life are there any doctors on here anyone who could help me if it would just go down to level i can live with i was ok for first 6 months but was one ear one noise no amplifying if only that would stop please someone help me this is horrific torture

As for Susan, I feel so sorry you're suffering so much. Your Tinnitus seems far worse than mine. I think current medical technology has not yet able to cure Tinnitus. I've tried dozens of ENT in my city and not one of them are able to at least turn down the ringing volume a bit

tldr....LMAO...had to look that one up . maybe eardrum removal could work i dont know

No! Eardrum removal won't make your Tinnitus disappear, it just makes you deaf with loud ringing still present (because the problem is the damaged hair cells inside the cochlea)!

 

[grungeCat]

I'm sorry you're suffering from such a disease. My uncle has a terrible tinnitus too. He has seen multiple doctors and no one can help him... he can't neither work normally nor be happy. We speak different languages so we don't communicate well. I can't imagine how tedious it has to be. I wish you all the best.

 

[Homecoming]

I'm sorry you're suffering from such a disease. My uncle has a terrible tinnitus too. He has seen multiple doctors and no one can help him... he can't neither work normally nor be happy. We speak different languages so we don't communicate well. I can't imagine how tedious it has to be. I wish you all the best.

Tinnitus is a lifetime punishment for those who suffers from it

 

[Spitfire]

My heart goes out to you with every post... If I had any idea for how to help?

 

[ArtsyDrawer]

I'm seeing an odd ad that claims that their product's original intent was to produce good ear plugs or earbuds, but it also accidentally helps with tinnitus.
I'm not entirely sure if it's serious.
Take a look at this: https://www.flareaudio.com/pages/calmer-life

I am in no way associated with the company, I'm not some salesman. I might be dealing with tinnitus too, seeing as if I turn the music off, I start hearing EEEEEEEEEEEEEEEEEEEE all over the place, which creeps me out, so I have spotify running 24/7.

 

[Broken Chimera]

I feel bad for anyone with tinnitus. I have it but I can cover it up with my headphones. I feel for the ones who can't avoid it.

 

[Meditation guide]

you seem to be screaming

I think given the circumstances of the situation she is suffering with we can overlook that.