Discussion I just wanted to say goodbye

[manda]

Hello guys. I've been on this forum for almost a year. i have really bad health problems. i have severe prostatitis, i think its due to my stupid decison to try finasteride for hair loss, it was only 3 days of topical version. i can't believe that just 3 days of topical 'medication' could do so much harm. I can't believe in what happened. The pain has become unbearable, i have to take tramadol almost everyday to feel any relief. i can't live like this. i simply can't, though i really loved life, i've always loved the word, i was always alwaysb very sensitive and full of emotions. but my time has come. i am waiting for a second supply of sn since i want to be as sure as possible that its gonna work. if it comes, i am simply gone. I didnt know any of you and probably noone here had a chance to at least get me to know since i did a few posts here. i just wanted somebody to remember me, even from this simple post. i am writing it wirh my eyes full of tears but i simply cannot do anything else, even if i wated. thanks for your attention and goodbye, i hope i am gone on 4th june at most. It shouldnt have ended up like this. Bye

I promise to never forget u while i'm still alive. As someone who is always it's true self from everyone and will probably disapear when die, even if I don't entirely understands u, I promise to never foget u.

 

[fyer]

I promise to never forget u while i'm still alive. As someone who is always it's true self from everyone and will probably disapear when die, even if I don't entirely understands u, I promise to never foget u.

Thank you, its very kind of you and calming that someone i've never met cares about me. i really do not won't to be forgotten. i havend even managed in mu short miserable life to meet people who will cry on my funeral. only my family will and probably former teachers if they come, since i was very liked and appreciated among teachers in all my previous schools

 

[sanctions]

you sure it's not CPPS? most prostatitis diagnoses are misdiagnosed CPPS which is treatable with relaxation/valium/PT

 

[fyer]

you sure it's not CPPS? most prostatitis diagnoses are misdiagnosed CPPS which is treatable with relaxation/valium/PT

Yes i mostly am. i have low grade fever and cold feeling most of the time. the pain is basically severe. i had 4 physiotherapy sessions with no relief. they didnt find any obvious trigger points, my recent flare up began soom after last physiotherspy session. it does not depend on my mood at all

 

[voc_89]

i will remember you. I hope you find peace in whatever you choose.

 

[Enyan]

I just wanna say I feel your pain so much.

I don't want to die either. Life is beautiful. I see beauty in people and animals and nature. Just like you, I made one bad medical decision and now it's all come crashing down. I'm so sorry. It's so fcking unfair.

BUT: I briefly read up on chronic prostatitis and it says that about 70% of people can be cured with long-term antibiotics? I know you said you tried antibiotics, but have you tried them for 12 weeks? If not I'd go doctor hopping and try to find one that agrees to treat you. Especially if you'd love life if it weren't for the prostatitis.

 

[fyer]

I just wanna say I feel your pain so much.

I don't want to die either. Life is beautiful. I see beauty in people and animals and nature. Just like you, I made one bad medical decision and now it's all come crashing down. I'm so sorry. It's so fcking unfair.

BUT: I briefly read up on chronic prostatitis and it says that about 70% of people can be cured with long-term antibiotics? I know you said you tried antibiotics, but have you tried them for 12 weeks? If not I'd go doctor hopping and try to find one that agrees to treat you. Especially if you'd love life if it weren't for the prostatitis.

Thanks for your hope that i can get better. if its an infection, then maybe is, maybe there is some chance for recovery. but if its a wild, rare effect of finasteride thst js not understood and recognised, then probably there's nothing i can do unfortunately, cause probably noone who developed post finasteride syndrome, regardless of the form recovered from it. i'll give levofloxacin a few days to 2 weeks wairing for another sn supply. i have one more idea left to try corticosteroid also. thanks for caring so much that you made some research. can i ask you what mistake have you made?

 

[Enyan]

Thanks for your hope that i can get better. if its an infection, then maybe is, maybe there is some chance for recovery. but if its a wild, rare effect of finasteride thst js not understood and recognised, then probably there's nothing i can do unfortunately, cause probably noone who developed post finasteride syndrome, regardless of the form recovered from it. i'll give levofloxacin a few days to 2 weeks wairing for another sn supply. i have one more idea left to try corticosteroid also. thanks for caring so much that you made some research. can i ask you what mistake have you made?

It's good to hear you'll give it a tiny bit more. I wanna say "just try everything you can before you do anything", but I know it's awful to live with daily pain and it's easier said than done to just hold on. But I sincerely hope for the absolute best outcome for you.

Oh, I got a lumbar puncture. Total routine exam. Except in a subset of people, the puncture causes a cerebrospinal fluid leak. Most recover from it without any issues, but a tiny, tiny unlucky subset of people will go on to develop a chronic leak, which essentially makes you bed- or housebound bc of debilitating headaches, it gives you massive brain fog, memory issues etc, neurological issues, all that fun stuff. Even the experts in the field - there aren't a lot - say the chances for recovery are bleak. Surgery would cost me 50k that I do not have for a 50% of it working so I can have some symptom reductions, but I'd probably never go back to normal. And even with all that... it could open back up again, too, even after two years.

 

[peacebenow]

I greatly understand and relate to you. You will be remembered. May there be peace.

 

[sanctions]

Yes i mostly am. i have low grade fever and cold feeling most of the time. the pain is basically severe. i had 4 physiotherapy sessions with no relief. they didnt find any obvious trigger points, my recent flare up began soom after last physiotherspy session. it does not depend on my mood at all

did they do internal work at the pt sessions? have you tried valium?

 

[fyer]

It's good to hear you'll give it a tiny bit more. I wanna say "just try everything you can before you do anything", but I know it's awful to live with daily pain and it's easier said than done to just hold on. But I sincerely hope for the absolute best outcome for you.

Oh, I got a lumbar puncture. Total routine exam. Except in a subset of people, the puncture causes a cerebrospinal fluid leak. Most recover from it without any issues, but a tiny, tiny unlucky subset of people will go on to develop a chronic leak, which essentially makes you bed- or housebound bc of debilitating headaches, it gives you massive brain fog, memory issues etc, neurological issues, all that fun stuff. Even the experts in the field - there aren't a lot - say the chances for recovery are bleak. Surgery would cost me 50k that I do not have for a 50% of it working so I can have some symptom reductions, but I'd probably never go back to normal. And even with all that... it could open back up again, too, even after two years.

I am really hopeless cause there is no cure for post finssteride syndrome, idk if there is someone who recovered, but this poison killed lots of young boys. my symptims are not typical pfs, i dont have classic pfs symptoms but there's definitrly something going on. the only thing that bring me temporary relief now is tramadol+dexketoprofen or xanax

did they do internal work at the pt sessions? have you tried valium?

Of course, they only did internal. valium is a short term solution, you cant use it chronically

I greatly understand and relate to you. You will be remembered. May there be peace.

I wanted to be remember from some great things that i could do. for people, for my country, for myself. but death at 22 also seems to be something to remember :)