What the hell can one do? Not much. Just try to live with it. Wait for the worst times to pass. Try to make the most of the better times. Appreciate that time is moving forward, albeit very slowly, and one day it will all be over. Look forward to that day. Try to minimise any future suffering. Unfortunately this means you have to worry about your future.
What would be nice is guidelines on how to speed up death, and how to ensure a less unpleasant death. I'm no doctor. I have no idea what deaths are quick and painless, nor how to achieve them. If anyone knows, please let me know.