Suez

Suez

Experienced
Feb 27, 2020
279
Hey there Susan, yes i read that hyperacusis can be caused by various medications that are used to treat anxiety and sleep and there are particular anitbiotics that also cause it. Has there been any treatment they have used for the hyperacusis that has made a difference?
Have you looked at the Hyperacusis network? www.hyperacusis.net Its really interesting. If anything is to be known about this condition it is here. Id never even heard of Pink noise before, which apparently closely matches the spectrum of sound. Take a look at this website Susan, that is if you havent already?
 
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GoodPersonEffed

GoodPersonEffed

Brevity is my middle name, but my name was TL
Jan 11, 2020
6,727
Yes I understand im so sorry I know no one can help me just keep hoping someone can suggest something to help get this down to copable and liveable at least

don't know how to go keep hoping I don't have to and this stops but after almost 3 years I don't think it can

Based on this response, and your other posts, these are the issues you present to the forum:

Issue 1: You are seeking solutions to the tinnitus and hyperacusis.

To this I offer these suggestions:

A. Write a post as follows:

Offtopic Forum

Title:

Suggestions for Tinnitus and Hyperacusis

Text:

1. Symptoms, onset, development
2. Methods already tried
3. It is causing suffering, hopelessness, and suicidal ideation
3. Request for suggestions to heal one or both issues or minimize the symptoms.

Bump the post once every 2-4 weeks. Simply say, "Bumping. Thank you in advance for any knowledgeable assistance you can offer."

Use punctuation. Format for clarity: use paragraphs, bullet points, numbers, etc. Stick to the topic. Directly address each comment with brevity and punctuation like periods, refrain from repeating anything in the OP.

B. Seek another forum that focuses on these issues. Since this is primarily a suicide forum, you might come across folks with like experience and suggestions, but it's not a focus here, so bumping one clear post on the subject may be of benefit, but it is wise to widen the net by seeking (or continuing to seek) sources that specifically address these issues.

Issue 2: You've been dealing with this for three years and do not know how to keep going.

To this I offer these suggestions:

A. Post in Offtopic

Title: How do you effectively manage/keep going with tinnitus and/or hyperacusis?

Text:

See title. Link to thread recommended under Issue 1 for history. Seeking advice from others with one or both of the same issues.

Bump every 2-4 weeks in the same way as mentioned under Issue 1.

B. Refer to B under Issue 1.

Issue 3: Suicidal ideation due to tinnitus and hyperacusis.

To this I offer these suggestions:

A. You've already posted about VSED several times and received an abundance of thoughtful and knowledgeable responses. Read them. Save the responses until you are ready to weigh them out; decide which ones to apply, reject, or independently research further; and decide whether to pursue or abandon the idea.

B. Choose several methods that attract you, including VSED. Journal and make lists about each one separately. What would it feel like? What steps would you need to take? What are the logistics of supplies, location, letters, what happens after (being found, metaphysical considerations, etc.). Once you have one or more methods worked out to a level that you feel sufficiently confident in each, make a plan. Perhaps you will have a primary method and a backup method(s).

C. Once you have a solid, doable plan, decide whether to pursue or to wait. If you wait, the work is done, and you will have more capability to focus on other important things, and perhaps increased confidence in your ability to address and manage various aspects of your life, including the pursuit of resolving the driving issues. Doing the work of planning will reveal if you are ready, or if you need to wait, as well as other things that it may be blocking until it receives a required amount of attention.

________________

If you choose to pursue one or both of the suggested threads, I would be happy to help edit them prior to posting if you would find that to be of value, just send me a PM and if I am still active on the forum, I will respond. If you think that might help you be more effective in getting your needs met more effectively, and you desire such help, I'm glad to support you in achieving that. If you don't seek this or don't feel you need it, no biggie.
 
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Susan Caswell

Specialist
Feb 25, 2019
316
Hey there Susan, yes i read that hyperacusis can be caused by various medications that are used to treat anxiety and sleep and there are particular anitbiotics that also cause it. Has there been any treatment they have used for the hyperacusis that has made a difference?
Have you looked at the Hyperacusis network? www.hyperacusis.net Its really interesting. If anything is to be known about this condition it is here. Id never even heard of Pink noise before, which apparently closely matches the spectrum of sound. Take a look at this website Susan, that is if you havent already?
Thank you I have tried everything I could find vitamins supplements therapies sound therapy white pink violet brown noises I couldn't and cant take any of them nothing has helped even a little and don't know why even acupuncture hypnotherapy and all the others possible ive spent thousands trying to sort this don't care at all about the money but nothing has helped id give every penny away I have for this to stop its how I end up here as could only see taking me life as now only option if I knew it was temporary would go down the hyperacusis go away I was ok until that came im sure zopiclone for sleep and then all the many anxiety meds have just made it worse and worse its now just unreal hammering as if someone is in my ears drilling its roaring hammering hissing cant even stand kettle tap running voices light switch I don't think anyone can imagine this even my partners says cant be that loud but it is he must see how ill its mads me he has only every known me capable sensible independent caring generous full of full. Ive cant even get bathed or washed dressed eat sleep last few weeks so bad and its been loud and panicked me from the start ive never had anxiety ever in my life coped always calm soul I was so so well looked after my ears so much and my health im terrified of how ill I am let alone try to stand the noise no one should suffer like this never lets up every day and night 2 years 9 months cant cope cant stand it but the anxiety is too much tummy heaves churns im jerking and shaking but being sick the noise is that loud I cant bare it day after day think most people would have gone long ago I just hoped it would let up give me hope and a chance been good all my life had so much to look forward to don't even know why wish I knew why how could I go to bed that night fine perfect ears woke up deafening noise but wasn't like this id have been ok please God someone help me I want to end this just don't know how I never knew it was so hard but never needed to valued life this cant go on I just cant stand it cant bare being this ill this useless who cant look nice get bathed eat because of tinnitus just think ive had it tried and tried why couldn't I just have a level I cold stand or quiet days most people it goes down stops not right xx
Based on this response, and your other posts, these are the issues you present to the forum:

Issue 1: You are seeking solutions to the tinnitus and hyperacusis.

To this I offer these suggestions:

A. Write a post as follows:

Offtopic Forum

Title:

Suggestions for Tinnitus and Hyperacusis

Text:

1. Symptoms, onset, development
2. Methods already tried
3. It is causing suffering, hopelessness, and suicidal ideation
3. Request for suggestions to heal one or both issues or minimize the symptoms.

Bump the post once every 2-4 weeks. Simply say, "Bumping. Thank you in advance for any knowledgeable assistance you can offer."

Use punctuation. Format for clarity: use paragraphs, bullet points, numbers, etc. Stick to the topic. Directly address each comment with brevity and punctuation like periods, refrain from repeating anything in the OP.

B. Seek another forum that focuses on these issues. Since this is primarily a suicide forum, you might come across folks with like experience and suggestions, but it's not a focus here, so bumping one clear post on the subject may be of benefit, but it is wise to widen the net by seeking (or continuing to seek) sources that specifically address these issues.

Issue 2: You've been dealing with this for three years and do not know how to keep going.

To this I offer these suggestions:

A. Post in Offtopic

Title: How do you effectively manage/keep going with tinnitus and/or hyperacusis?

Text:

See title. Link to thread recommended under Issue 1 for history. Seeking advice from others with one or both of the same issues.

Bump every 2-4 weeks in the same way as mentioned under Issue 1.

B. Refer to B under Issue 1.

Issue 3: Suicidal ideation due to tinnitus and hyperacusis.

To this I offer these suggestions:

A. You've already posted about VSED several times and received an abundance of thoughtful and knowledgeable responses. Read them. Save the responses until you are ready to weigh them out; decide which ones to apply, reject, or independently research further; and decide whether to pursue or abandon the idea.

B. Choose several methods that attract you, including VSED. Journal and make lists about each one separately. What would it feel like? What steps would you need to take? What are the logistics of supplies, location, letters, what happens after (being found, metaphysical considerations, etc.). Once you have one or more methods worked out to a level that you feel sufficiently confident in each, make a plan. Perhaps you will have a primary method and a backup method(s).

C. Once you have a solid, doable plan, decide whether to pursue or to wait. If you wait, the work is done, and you will have more capability to focus on other important things, and perhaps increased confidence in your ability to address and manage various aspects of your life, including the pursuit of resolving the driving issues. Doing the work of planning will reveal if you are ready, or if you need to wait, as well as other things that it may be blocking until it receives a required amount of attention.

________________

If you choose to pursue one or both of the suggested threads, I would be happy to help edit them prior to posting if you would find that to be of value, just send me a PM and if I am still active on the forum, I will respond. If you think that might help you be more effective in getting your needs met more effectively, and you desire such help, I'm glad to support you in achieving that. If you don't seek this or don't feel you need it, no biggie.
Gosh thank you for all this a lot to take in thank you so much just wish you could or someone could stop this and fix me its horrific torture x
 
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Suez

Suez

Experienced
Feb 27, 2020
279
Thank you I have tried everything I could find vitamins supplements therapies sound therapy white pink violet brown noises I couldn't and cant take any of them nothing has helped even a little and don't know why even acupuncture hypnotherapy and all the others possible ive spent thousands trying to sort this don't care at all about the money but nothing has helped id give every penny away I have for this to stop its how I end up here as could only see taking me life as now only option if I knew it was temporary would go down the hyperacusis go away I was ok until that came im sure zopiclone for sleep and then all the many anxiety meds have just made it worse and worse its now just unreal hammering as if someone is in my ears drilling its roaring hammering hissing cant even stand kettle tap running voices light switch I don't think anyone can imagine this even my partners says cant be that loud but it is he must see how ill its mads me he has only every known me capable sensible independent caring generous full of full. Ive cant even get bathed or washed dressed eat sleep last few weeks so bad and its been loud and panicked me from the start ive never had anxiety ever in my life coped always calm soul I was so so well looked after my ears so much and my health im terrified of how ill I am let alone try to stand the noise no one should suffer like this never lets up every day and night 2 years 9 months cant cope cant stand it but the anxiety is too much tummy heaves churns im jerking and shaking but being sick the noise is that loud I cant bare it day after day think most people would have gone long ago I just hoped it would let up give me hope and a chance been good all my life had so much to look forward to don't even know why wish I knew why how could I go to bed that night fine perfect ears woke up deafening noise but wasn't like this id have been ok please God someone help me I want to end this just don't know how I never knew it was so hard but never needed to valued life this cant go on I just cant stand it cant bare being this ill this useless who cant look nice get bathed eat because of tinnitus just think ive had it tried and tried why couldn't I just have a level I cold stand or quiet days most people it goes down stops not right xx

Gosh thank you for all this a lot to take in thank you so much just wish you could or someone could stop this and fix me its horrific torture x
You must be in unimagineable pain. I really feel for you Susan. I think GoodPersonEffed has offered some really helpfull strategies to get your case out there to the peope that really know about your condition. There will be medical people out there familiar with your condition and probably people that are going through exactly the same thing and better still people who have gne through it and found something that works. Thats what you need and the more people you can get your story ut there to the more information you will get to help you. Please follow GoodPersonEffed ideas. Ive read everything they said and it really is the best chance you have right now. While im a Medical Scientist and can gather alot of research and interpret it , theres nothing better than getting someone with personal or professional experience with your condition. Im going to continue to explore every avenue I can to see what i can find out for you in the mean time. Try to hang in there. Start the day today by getting the post out there that GoodPersonEffed has put together. Ill catch you soon.
 
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GoodPersonEffed

GoodPersonEffed

Brevity is my middle name, but my name was TL
Jan 11, 2020
6,727
Gosh thank you for all this a lot to take in thank you so much

Now we're closer to even! :pfff:

You're welcome. It was my pleasure. That kind of stuff is what I *am* capable of doing.
 
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Suez

Suez

Experienced
Feb 27, 2020
279
Now we're closer to even! :pfff:

You're welcome. It was my pleasure. That kind of stuff is what I *am* capable of doing.
GoodPersonEffed Ive seen several of your posts. I wanted to say what an amazingly giving person you are to help so many people with advice and support. You come across as a very REAL person, someone that says things how its is, someone honest. There are not many people out there quite like you, I wish that wasnt the case. I would love to have a friend like you thats willing to offer something of themselves, for no reason other than you are a good decent person, a kind person. I also wanted to say im really jealous of your writing ability. I would love to be able to put words to my feelings and to be able to express myself in words the way that you do, its an amazing skill. I dont know why you are here but i want to say im glad you are? Shit did that come out right? You know what i mean eh?
 
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BlackPoppet

BlackPoppet

Wise woman and Celtic sky person
Mar 7, 2020
991
Please someone can you help I cant this deafening jet plane roaring hammering drilling Tinnitus plus hyperacusis so extreme everything is deafening its all so loud my ears are vibrating anxiety crippling 2 years 8 months non stop. I have to end this I cant take this any longer can only think stop eating and drinking how long will it take would it just be days I want my life but not with this tinnitus like other people get ok and live ok with I could do but not this its on every nerve I have its made me so ill and I was healthy fit happy calm with so much life to still live ive tried to live with this I cant I now cant eat rest watch TV read sleep go out live its suffering like I never knew possible please somehow help me I am being tortured to death by noise its horrific no quiet no peace no rest ive recovered from cancer a back op all sorts don't even have cause came on from nowhere never thought I wouldn't be living happy doing all I planned calm please please someone help me go i cant stand this I cant hear anything at all but this its inhuman left like this x
:'(:hug:
 
GoodPersonEffed

GoodPersonEffed

Brevity is my middle name, but my name was TL
Jan 11, 2020
6,727
GoodPersonEffed Ive seen several of your posts. I wanted to say what an amazingly giving person you are to help so many people with advice and support. You come across as a very REAL person, someone that says things how its is, someone honest. There are not many people out there quite like you, I wish that wasnt the case. I would love to have a friend like you thats willing to offer something of themselves, for no reason other than you are a good decent person, a kind person. I also wanted to say im really jealous of your writing ability. I would love to be able to put words to my feelings and to be able to express myself in words the way that you do, its an amazing skill. I dont know why you are here but i want to say im glad you are? Shit did that come out right? You know what i mean eh?

Thank you for seeing me, and for appreciating me. It means so much, I bookmarked it.

I'm glad/not glad you're here, too. You write meaningful posts and you also seem very giving and compassionate. You write very clearly, btw. :heart:
 
Suez

Suez

Experienced
Feb 27, 2020
279
Thank you for seeing me, and for appreciating me. It means so much, I bookmarked it.

I'm glad/not glad you're here, too. You write meaningful posts and you also seem very giving and compassionate. You write very clearly, btw. :heart:
Hey thnku, that means alot saying what you did too.It feels nice being recognised.
Thank you I have tried everything I could find vitamins supplements therapies sound therapy white pink violet brown noises I couldn't and cant take any of them nothing has helped even a little and don't know why even acupuncture hypnotherapy and all the others possible ive spent thousands trying to sort this don't care at all about the money but nothing has helped id give every penny away I have for this to stop its how I end up here as could only see taking me life as now only option if I knew it was temporary would go down the hyperacusis go away I was ok until that came im sure zopiclone for sleep and then all the many anxiety meds have just made it worse and worse its now just unreal hammering as if someone is in my ears drilling its roaring hammering hissing cant even stand kettle tap running voices light switch I don't think anyone can imagine this even my partners says cant be that loud but it is he must see how ill its mads me he has only every known me capable sensible independent caring generous full of full. Ive cant even get bathed or washed dressed eat sleep last few weeks so bad and its been loud and panicked me from the start ive never had anxiety ever in my life coped always calm soul I was so so well looked after my ears so much and my health im terrified of how ill I am let alone try to stand the noise no one should suffer like this never lets up every day and night 2 years 9 months cant cope cant stand it but the anxiety is too much tummy heaves churns im jerking and shaking but being sick the noise is that loud I cant bare it day after day think most people would have gone long ago I just hoped it would let up give me hope and a chance been good all my life had so much to look forward to don't even know why wish I knew why how could I go to bed that night fine perfect ears woke up deafening noise but wasn't like this id have been ok please God someone help me I want to end this just don't know how I never knew it was so hard but never needed to valued life this cant go on I just cant stand it cant bare being this ill this useless who cant look nice get bathed eat because of tinnitus just think ive had it tried and tried why couldn't I just have a level I cold stand or quiet days most people it goes down stops not right xx

Gosh thank you for all this a lot to take in thank you so much just wish you could or someone could stop this and fix me its horrific torture x
Hey Susan you need to check out Reddit which if you dont know already, is basically just a network of communities (forums). I happened to notice there is a forum for people with hyperacusis r/hyperacusis So you definately should go and check this out. I think it had about 1000 members. Take a look today.
Hey thnku, that means alot saying what you did too.It feels nice being recognised.

Hey Susan you need to check out Reddit which if you dont know already, is basically just a network of communities (forums). I happened to notice there is a forum for people with hyperacusis r/hyperacusis So you definately should go and check this out. I think it had about 1000 members. Take a look today.

Ive just been reading some of the posts in the r/hyperacusus forum. There are several people there with what sounds like very similar symptoms, especially in terms of the loudness you experience Susan. One person spoke about how even the sound of opening a packet of chips was unbearable for them. On eventually seeing a psychiatrist because of the trauma they were experiencing, they were prescribed Lithium which for them relieved all their symptoms. So it seems for some people there, they have found various treatments which seem to be helping them. I really hope you find something usefull there Susan.
 
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Susan Caswell

Specialist
Feb 25, 2019
316
You must be in unimagineable pain. I really feel for you Susan. I think GoodPersonEffed has offered some really helpfull strategies to get your case out there to the peope that really know about your condition. There will be medical people out there familiar with your condition and probably people that are going through exactly the same thing and better still people who have gne through it and found something that works. Thats what you need and the more people you can get your story ut there to the more information you will get to help you. Please follow GoodPersonEffed ideas. Ive read everything they said and it really is the best chance you have right now. While im a Medical Scientist and can gather alot of research and interpret it , theres nothing better than getting someone with personal or professional experience with your condition. Im going to continue to explore every avenue I can to see what i can find out for you in the mean time. Try to hang in there. Start the day today by getting the post out there that GoodPersonEffed has put together. Ill catch you soon.
Gosh thank you im not sure how to put it all together but I will try I almost went yesterday I can still only think jump but im terrified I don't die and cripppled I couldn't take it anymore and today its even louder and I don't know why I can only think its the anxiety and sleep meds. I have seen the best consultants Harley Street Tinnitus Clinic and 3 specialist in America all at a loss all say no cure you have to live with it and I just cant its like trying to function with someone deep in my ears drilling hammering but its also like jet plane setting off down runway impossible to live like this and it wasn't like this at start id have coped how I wish id never taken any meds I think this would have been ok one noise one ear manageable the TV covered it normal sounds did I kept myself looking nice still I cant calm this anxiety and panic I never knew anxiety could make you this ill I wont survive this soon from lack of food I just cant get food down how I loved my food my life I loved my life this is suffering like I never knew possible never any rest or calm I had to be calm and busy and happy I don't think anyone could live with this my life was just perfect I had so many interests but I was just so well this from nowhere I have to have made this worse with the anxiety and meds or whats wrong nothing shows up but to be this bad something is very wrong if I could sleep I slept so well 8 to 10 hours a night ive gone for 2 years 9 months next to no sleep sometimes none only when the sleeping pills worked for a while and I coped with the days better I feel finished and cant hang on much longer but I don't get how it can be like it is now amplifying everything who cant stand their own voice or kettle the kettle kills me doesn't even sound right I just thought id be ok thought Malcolm and I had years of just normal happy life doing so much we put on hold to look after elderly parents didn't mind in the least happy to but never thought I would be ill demented like this I was just normal happy soul doing what everyone else does living good food nice glass of wine TV reading etc etc why do I go on like this im sure I think it will just stop this and put me back how I was if only how can I have survived cancer cant live with tinnitus ive tried and tried to cope find cause cope but when its all you can hear I hated anything with my ears even water in them I hated but this dear god no one should be left like this xx
Now we're closer to even! :pfff:

You're welcome. It was my pleasure. That kind of stuff is what I *am* capable of doing.
What on earth brings you here you sound so well capable calm
 
Donk

Donk

Useless since day 1
Jan 3, 2020
1,129
GoodPersonEffed Ive seen several of your posts. I wanted to say what an amazingly giving person you are to help so many people with advice and support. You come across as a very REAL person, someone that says things how its is, someone honest. There are not many people out there quite like you, I wish that wasnt the case. I would love to have a friend like you thats willing to offer something of themselves, for no reason other than you are a good decent person, a kind person. I also wanted to say im really jealous of your writing ability. I would love to be able to put words to my feelings and to be able to express myself in words the way that you do, its an amazing skill. I dont know why you are here but i want to say im glad you are? Shit did that come out right? You know what i mean eh?

i totally agree with Suez. @GoodPersonEffed i follow all of your post. i wish i can be as articulate as you. i see that you put in a lot of effort to help others on this forum. no nonsense and straight to the point. i always find it funny when someone post a thread about a certain method you would quickly point out that there is a search function available and people need to do their own research. i agree with you 100%. there are plethora of info out there and its up to the individual to go through all resources before inquiring about a method. anyways we need more people like you on this forum. SS wont the same without you.
 
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GoodPersonEffed

GoodPersonEffed

Brevity is my middle name, but my name was TL
Jan 11, 2020
6,727
i totally agree with Suez. @GoodPersonEffed i follow all of your post. i wish i can be as articulate as you. i see that you put in a lot of effort to help others on this forum. no nonsense and straight to the point. i always find it funny when someone post a thread about a certain method you would quickly point out that there is a search function available and people need to do their own research. i agree with you 100%. there are plethora of info out there and its up to the individual to go through all resources before inquiring about a method. anyways we need more people like you on this forum. SS wont the same without you.

Thank you!
 
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Susan Caswell

Specialist
Feb 25, 2019
316
Thank you!
I thank you too I cant put together what you suggested I wish I could I cant concentrate now for the noise its horrific now cant bare this or stay like this still trying to write what you suggest its a priority now really cant go on like this not eating or bathing or sleeping im in huge mess never thought anything like this could happen to anyone but to me when I was so well capable sensible happy calm lovely lovely life this cant be happening its suffering like I never knew possible wish someone could stop this I wish I could do this just level I can at least stand its the most terrible thing day after day in your own ears we need quiet peace calm happy me like this I don't even know why just from nowhere had so very much and recovered survived I could have taken anything at all but not noise deafening day after day never lets up never stops its torture they tortured people with noise they went crazy ive got to get this ended before im crazy I don't think it will ever stop or go down even I never thought anything like this would be my fate no way I was so fit healthy calm happy dear god im going crazy I couldn't bare noise but this is cruel x
 
NoDream

NoDream

Student
Mar 27, 2018
132
I thank you too I cant put together what you suggested I wish I could I cant concentrate now for the noise its horrific now cant bare this or stay like this still trying to write what you suggest its a priority now really cant go on like this not eating or bathing or sleeping im in huge mess never thought anything like this could happen to anyone but to me when I was so well capable sensible happy calm lovely lovely life this cant be happening its suffering like I never knew possible wish someone could stop this I wish I could do this just level I can at least stand its the most terrible thing day after day in your own ears we need quiet peace calm happy me like this I don't even know why just from nowhere had so very much and recovered survived I could have taken anything at all but not noise deafening day after day never lets up never stops its torture they tortured people with noise they went crazy ive got to get this ended before im crazy I don't think it will ever stop or go down even I never thought anything like this would be my fate no way I was so fit healthy calm happy dear god im going crazy I couldn't bare noise but this is cruel x

Did you test Lithium? You have nothing to lose. Write again and tell us how it went. If it worked for you, im also going to try it.

Read that people are very happy in Cuba because there they have a lot of Lithium in the soil and water, so no need for ssri there :)
 
H

Hoopali

Member
Apr 6, 2020
55
I thank you too I cant put together what you suggested I wish I could I cant concentrate now for the noise its horrific now cant bare this or stay like this still trying to write what you suggest its a priority now really cant go on like this not eating or bathing or sleeping im in huge mess never thought anything like this could happen to anyone but to me when I was so well capable sensible happy calm lovely lovely life this cant be happening its suffering like I never knew possible wish someone could stop this I wish I could do this just level I can at least stand its the most terrible thing day after day in your own ears we need quiet peace calm happy me like this I don't even know why just from nowhere had so very much and recovered survived I could have taken anything at all but not noise deafening day after day never lets up never stops its torture they tortured people with noise they went crazy ive got to get this ended before im crazy I don't think it will ever stop or go down even I never thought anything like this would be my fate no way I was so fit healthy calm happy dear god im going crazy I couldn't bare noise but this is cruel x

Hi Susan

Your posts always make me sad because of the way I can FEEL your pain and anxiety.

I would like to add my thoughts here for what they are worth:

1. As you know, currently, medical science has no way of curing neither tinnitus, nor hyperacusis. Therefore it must try to treat the symptoms instead - in your case the anxiety and panic attacks. Has anyone mentioned phonophobia to you before?

2. As a couple of people have mentioned, have you been prescribed lithium before?

3. What sleeping pills and/or anxiety medication are you taking now?

4. Have you been in touch with the specialist audiologists at tinnitus.org.uk, and have you read through their page on hyperacusis: https://www.tinnitus.org.uk/hyperacusis. I know you mentioned you went to Harley St Tinnitus - and the Royal Marsden - but tinnitus.org.uk can put you in touch with additional therapists.

5. Have you been tested for Ménière's disease?

Please try to be concise in your answers, but also specific. Don't tell us "I've contacted everyone" or "I've taken loads of anti depressants". We will need soecific. I know you are panicking and the urge to write what is in your head is strong but remember your CBT. If you feel you are starting to go into a spiral, or catastrophising, stop typing, concentrate on your breathing, and start again in ten minutes or when you're ready.

Above all you must accept that the road to getting your life back may be long and difficult. There is no off switch for this, much as we all wish there was. But if it's a chance of getting to do the things you mentioned doing before such as walks and cycling, then that's worth fighting for, right? Keep those goals in your mind at all times and focus on them.

Before starting a response, wait a few minutes to clear your mind of anything other than those goals mentioned above as I'm sure you may have many thoughts going through your head. Allow yourself ten minutes to think about those goals. If the noises intrude, that's ok. Just visualise instead.

Once you're ready, just take each question above and answer one at a time.

:heart: :heart:
 
A

AcornUnderground

Mage
Feb 28, 2020
505
Susan,
Here is a video of a woman who was euthanized due to terrible tinnitus. I'm sure you can relate. I have a terrible disease in constant pain, and this woman is basically my story, too.

 
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Susan Caswell

Specialist
Feb 25, 2019
316
Susan,
Here is a video of a woman who was euthanized due to terrible tinnitus. I'm sure you can relate. I have a terrible disease in constant pain, and this woman is basically my story, too.

Yes I know of Gaby's story and envy her her the peace she craved but she was Dutch and they agreed to Euthanise her we don't have it in the UK I wish we did. I have applied to Pegasos in Switzerland but with the virus and cant fly im stuck. Ive got too ill to travel now I cant get well and cant stand the noise just need to end this but its hard and I can only think to jump really but im terrified I don't die and crippled on top of this. I sit here thinking how on earth has this happened went to bed fit as a lop so healthy happy calm living lovely life I was full of fun made every day special had so many plans just wish it would stop even then id take some getting well now I hadn't expected for it to make me physically ill with anxiety but 3 years like this deafening day after day no life cant eat or stand or bathe or sleep id have taken anything but this I never knew it was so hard to die I would never thought id have to consider such a thing wish someone could help me go id rather have my cancer back than this we all need quiet peace happy its tragic I had such lovely plans hopes dreams x
 
all_pointless

all_pointless

Member
Jul 2, 2018
63
I'm so sorry. I hope you find your peace soon
 

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