J
JFED
Member
- Jul 8, 2020
- 60
I'm another with tinnitus. Constantly there and worsening as the days go by. I met an individual that I was try to help that had the same condition. He eventually CTB because of it.
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You're welcome, WillOxyWork. It's always so easy to give up in the beginning. Of course, I know it doesn't feel like the beginning to you. Thank you for telling me your cause was noise related. I believe I read it was through doing yardwork? Please correct me if I'm wrong!Isadeth, thank you so much for your kind words. It really, really means a lot. It seems surgery worked for your son because it was due to a legitimate illness. My tinnitus is from damage from noise exposure - it's simply not operable.
I'm 2 months into my tinnitus journey so far. Although it seems like ages and these have been the worst 2 months of my life in a long time, apparently 2 months is still really early for tinnitus sufferers. I've spent some time on tinnitus support forums and they keep telling me to hang in there and give it time. People like you and some of my close friends are trying so hard not to let me give up, so I've decided to give myself just a little more time before I ctb, even though I have all my SN materials now.
Ugh, that is so awful. I've had single bad bout of vertigo about a month ago , so I've done a lot of research on the subject. Your symptoms sound exactly like vestibular hyperacusis, which is a fucking brutal condition. I don't know what can be done about it, but if you can, try to find a doctor who knows about vestibular hyperacusis.
I'd love to know about surgery options, I didn't think there was anything.I'm not sure what all you have tried, but there are currently surgeries that can show success (my son had one with great success)... also there's hidden hearing aides that can balance the noise and prevent or lower the ringing to almost nothing. Feel free to message me if you'd like to discuss it. I'm so sorry you're enduring that. ♡
I can send them to you in the morning when the sun is up. Right now I'm barely keeping my eyes open. But absolutely ♡ I'm not saying it's curative, but there's a great possibility to help! ♡Things that help below. I've had it for 5 years. No doubt it make me want to die everyday. One of these days I will just blow my head off but until then I try and make it the best I can each day.
1. If you have healing loss, most likely its in high frequency. The best way to mask it is with frequencies that match your hearing loss. For example, if your loss is in the 4-8k range, go to mynoise.net and experiment with various options. Some allow you to control the frequency. The site also has links to online hearing test to get a good idea of what frequencies have the hearing loss.
2. I tried for years to find something that would make it stop. I later shifted to ways to help my emotional state as tinnitus talks a toll on your emotional wellbeing. There are supplements that help. There is a good one call "emotional wellness" from pure encapsulations. It does seems to help.Just have to find what works for you.
3. cry. sometimes it the only way to release some of the emotional build up.
I'd love to know about surgery options, I didn't think there was anything.
Isadeth, if you want to read, I basically wrote my life story in another thread, explaining how I got to where I am now: https://sanctioned-suicide.net/threads/long-i-feel-like-i-dont-have-a-right-to-be-suicidal.42474/You're welcome, WillOxyWork. It's always so easy to give up in the beginning. Of course, I know it doesn't feel like the beginning to you. Thank you for telling me your cause was noise related. I believe I read it was through doing yardwork? Please correct me if I'm wrong!
Again, I'm not sure what all you've tried, but since it's noise related I do know there are certain devices specifically for tinnitus that can give off a constant frequency/decibel (that you can't personally notice and neither can others around you) that "drowns" it out. It doesn't fix it, but it stops the ringing. Which I'm sure is your main concern. THANKFULLY, these new devices are very well hidden and they don't look like something large attached to your ear. That alone can make someone want to ctb. Just please be careful as tinnitus can eventually turn into hearing loss.
Yeah, my son's was due to an ailment... a doctor's negligence to be exact. It was heartbreaking. A hospitalist overlooked his labs and wrote me off as an "over protective" mother and sent him home. He almost died. I've already lost two children (not from what my son had), I couldn't/can't experience that again. Thankfully, our pharmacist caught a huge med error that could have killed him quicker than the sickness. The hospitalist wrote for an adult dose of meds. Three different meds in that dose to be exact. He was only 6 at the time, very tiny, and they wrote the equivalent for an almost 300 lb (136kg) man!
My husband has awful ears, due to Iraq mortars, ear infections, having tubes as a child etc. So he's a mixture of sound and ailments. His right ear is pretty bad, and I blew my ear drum in my left from only one ear infection in 2018. It makes car rides interesting when he drives to say the least lol but yeah, his ear drum is shriveled and retracted due to a multitude of trauma.
I'm glad you have a support group of others you can relate to. It does help. At the very least it gives you people to vent to that truly understand what you're experiencing.
I never did ask, but did you purchase your sn because of the tinnitus? Or was it due to something completely different? You don't have to answer that. I was just curious.
♡
Thank you! I will absolutely read it! And I'm elated you're having a good day :) I take breaks too, which I think is good. I hope you enjoy your time away! ♡Isadeth, if you want to read, I basically wrote my life story in another thread, explaining how I got to where I am now: https://sanctioned-suicide.net/threads/long-i-feel-like-i-dont-have-a-right-to-be-suicidal.42474/
I'm feeling slightly more positive today about life with tinnitus and am going to try to ride that wave. I'm staying away from the forum for a few days (hopefully).
That's awfulI've got extremely loud tinnitus which started after a partial hanging attempt. I think the build up of pressure killed some hair cells as I now have a constant high pitched screeching sound in my head (louder on left side). Even if I use white noise or headphones, nothing can mask it!
Man I'm sorry.I've got extremely loud tinnitus which started after a partial hanging attempt. I think the build up of pressure killed some hair cells as I now have a constant high pitched screeching sound in my head (louder on left side). Even if I use white noise or headphones, nothing can mask it!
There's lots of treatment options for tinnitus. Some use a combination of TRT, surgery, neuromodulation, plasticity, hearing aids etc. to literally cure themselves of the condition. However, be prepared to be rich and well-informed if you want this option available to you.I'd love to know about surgery options, I didn't think there was anything.
FUCK Tinnitus. I could live with my vision problems if that were the only issue, but tinnitus is a fucking demon. I live constantly in fear of sound. I try so hard to protect my ears, but it still somehow is slowly getting worse. I feel like a dentist is drilling into my ears. My tinnitus is such fucking bullshit that other noises amplify it. I can hear my tinnitus amplified by white noise, the shower, and the wind. Music sounds distorted.
I had made so much progress in the past 2 years with my depression, just to be slapped in the face by a lifelong ailment. Tinnitus ruined my life. I can't live with this fucking condition and be afraid of sound for the rest of my life. I can't enjoy any of my hobbies anymore. I've lost my identity.
I've never felt such a consuming sense of agony. I have all my components for SN except for one, and I'm just constantly checking for when it will be here. It can't be here soon enough. I need this pain to stop now.
Can never forgive myself now I got visual snow, tinnitus and hyperacusis which causes a whistling sound over any sort of artifical noise.
You may already know this, but standard hearing tests only test til 8k hertz. Human hearing goes up to 20k hertz, and most damage is in the higher ranges. My damage is 14k hertz upwards (and 20-150 hertz as well, very low frequencies). There's also hidden hearing loss that is caused by nerve damage which doesn't show up either on any audiogram. So you certainly have damage.I've seen multiple top ENT surgeons in my area who tell me there's nothing they can do. I don't have any detectable hearing loss somehow. I don't know exactly what your son's situation was, but I know surgery is not a solution to my situation.
Sorry, I'm too lazy to rewrite, but I explained earlier in the thread how the loss happened, if you want to scroll up. I really appreciate your empathy :)
Masking sometimes works okay depending on the noise. But I also have pulsatile T at times which is impossible to ignore.
FUCK Tinnitus. I could live with my vision problems if that were the only issue, but tinnitus is a fucking demon. I live constantly in fear of sound. I try so hard to protect my ears, but it still somehow is slowly getting worse. I feel like a dentist is drilling into my ears. My tinnitus is such fucking bullshit that other noises amplify it. I can hear my tinnitus amplified by white noise, the shower, and the wind. Music sounds distorted.
I had made so much progress in the past 2 years with my depression, just to be slapped in the face by a lifelong ailment. Tinnitus ruined my life. I can't live with this fucking condition and be afraid of sound for the rest of my life. I can't enjoy any of my hobbies anymore. I've lost my identity.
I've never felt such a consuming sense of agony. I have all my components for SN except for one, and I'm just constantly checking for when it will be here. It can't be here soon enough. I need this pain to stop now.
I agree with so much of this: pay it attention and it will pay you back with NOISE!I don't want to stay here on this thread because just writing about how i beat it the other day made it start to come back - after 20 years! It is so psychological! Read my earlier posts. Bye.
Is it loud?I agree with so much of this: pay it attention and it will pay you back with NOISE!
Avoid forums, googling, etc. I've had it for ten years and no longer give a damn.
It's always there, sometimes louder than the TV but generally not. The occasional spikes that are way loud are pretty bad but things eventually go back to what is now my normal. I had a breakdown/was off sick from work when I first got it, along with the anxiety that just ends up feeding it.Is it loud?
Guess I'm at your level now then. It's intrusive, but not terribly. And I am aware that over time you can get used to quite loud tinnitus. My problem is more that I keep getting exposed to random loud noise that does lead to permanent worsening. Also hyperacusis on high frequencies, fuck that shit.It's always there, sometimes louder than the TV but generally not. The occasional spikes that are way loud are pretty bad but things eventually go back to what is now my normal. I had a breakdown/was off sick from work when I first got it, along with the anxiety that just ends up feeding it.