can someone inform me or know something about (drug induced) peripheral neuropathy??

[RN12]

Hello,

i took paroxetin for 5 months in 2020, stopped (after 30day taper) after that i had withdrawal so i reinstated and all kind of neurological symptoms started.
The most severe is in my legs. I'm off meds now for 12 months!! still going through hell 24/7

i cant barely walk from the neuropathy in my lower legs. They feel frozen most of the time like i stand in the snow. it's painfull. And when i walk more then 3 minutes it become unbearable. And i have more neuropathy and fibro pains all over.

The SSRI i took is in the list of medicin that can cause peripheral neuropathy. I have all the symptoms, stinging, biting, freezing, squeezing and shit. Im just surviving the days and its no life at all.
Before i had a wonderfull life, nice job, good marriage, a lot of friends and party's it's al gone and ruined. While the drug only prescribed for some work stres, what a joke!!!

But now im left with this hell condition. Im going to neurologist soon. But dont know what i expect about it because theres no cure for this. (yes other antidepressants, but big pharma can f*ck themselve. Can this ease over time?? in the years

If i'm left in this condition for the rest of my life i want to die. My family will be devastated, and deep inside i dont want to ctb
but i suffer 24/7 without relief. Mental symptoms from the drug withdrawal where hell but are becoming a little better my mind is a little more clear.
But physical is worse over time. 8 months ago i could walk 15 minutes then 10 and now only 3.

If i walk my legs will freeze like hell from the neuropathy :( i think it's rare cant find many people on forums

thanks for help

 

[Idontrecognizemyself]

Hi hello, I am so sorry to hear your story. What a mess. SSRI withdrawals are the worst experience without the long term consequences, I can't imagine what you've been going through. I think you are right in having low expectations for the appointment, there's not a lot to do with peripheral neuropathy. Aside from medications, the doctor may recommend things like heating or icing the effected area, or possibly occupational therapy as it sounds like your symptoms are extremely debilitating. I wish I had better news for you, but I like to know not to get my hopes up before stuff like that.

That being said, it can get better. It's different for everyone, but I would not be surprised if it eased slowly. I've had PN the past year in my entire right side (not as bad as you, I've had the numbness & stinging), DRs were characteristically unhelpful ("may go away, maybe permanent! Oops! "). I still have it but I've had a lot of sensation return/ normalize, now I mostly notice it in the palm of my hand and the sole of my foot (areas of high innervation = slower recovery) If I had to gauge my progress I would say maybe in another year it will be unnoticeable? Hoping you find a compassionate provider and find the relief you are looking for, one way or another

 

[RN12]

Hi hello, I am so sorry to hear your story. What a mess. SSRI withdrawals are the worst experience without the long term consequences, I can't imagine what you've been going through. I think you are right in having low expectations for the appointment, there's not a lot to do with peripheral neuropathy. Aside from medications, the doctor may recommend things like heating or icing the effected area, or possibly occupational therapy as it sounds like your symptoms are extremely debilitating. I wish I had better news for you, but I like to know not to get my hopes up before stuff like that.

That being said, it can get better. It's different for everyone, but I would not be surprised if it eased slowly. I've had PN the past year in my entire right side (not as bad as you, I've had the numbness & stinging), DRs were characteristically unhelpful ("may go away, maybe permanent! Oops! "). I still have it but I've had a lot of sensation return/ normalize, now I mostly notice it in the palm of my hand and the sole of my foot (areas of high innervation = slower recovery) If I had to gauge my progress I would say maybe in another year it will be unnoticeable? Hoping you find a compassionate provider and find the relief you are looking for, one way or another

thank you for your message. It warms my heart that you take the time to write this story for me. Thank you!

yes i hope i can ease with time. I dont have test done yet but i have all the symptoms of PN and the medicin is in the list that can cause DruginducedPN so...
But i hope the test are clean and negativ. I heard from more withdrawal people that their test came back negativ for nerve damage even if they had symptoms. I dont know why it doesnt show up by most people in WD.

I hope i have a nice neurologist on the appointment who can give me good advice.

I dont want to try medicine to be honest like gabapentin and stuf.. but for some people it works wonders..
did you take something? And did your PN started out of the blue??

Its debilitating by me because its in the lower legs and every step activates it more

thankyou