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Unlucked

Unlucked

Student
Jul 10, 2019
189
I live in Canada, and I would like to share why I will CBT soon. I am a transgender female who had a botched double jaw surgery in Korea. The surgeon moved my upper maxilla into my maxillary sinus cavity, he basically shoved my jaw all the way to the top under my orbitals, into my airway. My airway is like 3.0 mm now the size of a toddler. I feel like I'm slowly suffocating every night.

The worst part is, during these episodes of suffocation and extreme dizziness, I got go to the emergency room and they test my sp02 level with the oxymeter, and it reads 100 or 99+ but the issue is, even if my oxygen was low it wouldn't read properly because I have dark skin on the oxygen pulse reader.

The worst part is that the doctors won't even consider the before and afters that show my airway obstruction and keep claiming that I'm normal and all the structures are in tact. The ENT that I saw didn't even take a look at my before and after CT scans and made his conclusions based on internal imagining camera. But that doesn't show how narrow my airway is in mm.

I only have 1 nasopharyngeal airway that I've been shoving in my nose all by myself to keep the suffocation at bay. Despite having symptoms of hypoxia at night. Especially when the airway relaxes and collapses on itself, and I am usually awake for all of it.

Even with these scans that show all the proof the doctors won't do anything... I'm getting contradictory diagnosises from the doctors in Canada and that scare me from the emergency room They are acting like everything is normal but its not. My breathing is labored 24/7 even with the tube in. And I have no special lubricant for this tube so I've been shoving it in by myself just to breathe.

They won't give me another nasopharyngeal airway despite the fact that i need that or my respiration goes out of control..

So far I've been close to suffocating every night since last month, and the only thing that helps is using the nasopharyngeal tube which they won't give me, but yet doctors in korea gave me it.

Here are my scans which somehow aren't enough for the doctors to conclude I even have a problem, yet they are so evident in the scans.

I will CBT soon if the doctors don't acknowledge it and at least give me a supply of tubes, they are literally doing nothing. I've been sent home from the emr 4 times because of their stupid pulse oxymeter despite the scans clearly showing my airway is obstructed and not only that shortened to such extreme levels. Even with breathing through just my mouth I feel hypoxic because my upper jaw was moved up where the top jaw should have been... my face is anatomically abnormal now, it looks inhumanly short in person.

My transition is over. I no longer look like a girl, I even cut my hair after this ordeal. I live in alberta by the way.

Thought I'd share. This is my final straw for CBT, and maybe a cry for help, since no one is helping me even though my lifeline between suffpcation rn is a tube, that no ENT will give me, nor is he acknowledging that my problem is even physiological. Theyre trying to make it seem psychological inspite of these scans. Im not getting healthcare and slowly suffocating. I am only 24 years old. This surgery was meant to be gender affirming but I just ended up deformed and on top of that I can't breathe. I do not know why Canada is like this. In korea they found this out right away and even suggested a palate surgery to undo and expand my airway. I am truly frightened I will be forced to cbt soon due to the prolonged breathing episodes.

Lateral 230120 Lateral 230202 Image 1 Image 1
 
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GasMonkey

GasMonkey

Nitrogen Master Race
May 15, 2022
1,878
Do you use a sleep apnea machine?
 
Grav

Grav

Elementalist
Jul 26, 2020
817
This may not be an option, but is there a way to go to Korea and get the recommended procedure?
 
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WhiteRabbit

WhiteRabbit

I'm late, i'm late. For a very important date.
Feb 12, 2019
1,722
When did you have this done? The breathing issues sound rough and scary. From what I can see in the images, your face looks proportionate. It doesn't look weird to me.
 
L

lionetta12

Just a random person
Aug 5, 2022
1,274
I live in Canada, and I would like to share why I will CBT soon. I am a transgender female who had a botched double jaw surgery in Korea. The surgeon moved my upper maxilla into my maxillary sinus cavity, he basically shoved my jaw all the way to the top under my orbitals, into my airway. My airway is like 3.0 mm now the size of a toddler. I feel like I'm slowly suffocating every night.

The worst part is, during these episodes of suffocation and extreme dizziness, I got go to the emergency room and they test my sp02 level with the oxymeter, and it reads 100 or 99+ but the issue is, even if my oxygen was low it wouldn't read properly because I have dark skin on the oxygen pulse reader.

The worst part is that the doctors won't even consider the before and afters that show my airway obstruction and keep claiming that I'm normal and all the structures are in tact. The ENT that I saw didn't even take a look at my before and after CT scans and made his conclusions based on internal imagining camera. But that doesn't show how narrow my airway is in mm.

I only have 1 nasopharyngeal airway that I've been shoving in my nose all by myself to keep the suffocation at bay. Despite having symptoms of hypoxia at night. Especially when the airway relaxes and collapses on itself, and I am usually awake for all of it.

Even with these scans that show all the proof the doctors won't do anything... I'm getting contradictory diagnosises from the doctors in Canada and that scare me from the emergency room They are acting like everything is normal but its not. My breathing is labored 24/7 even with the tube in. And I have no special lubricant for this tube so I've been shoving it in by myself just to breathe.

They won't give me another nasopharyngeal airway despite the fact that i need that or my respiration goes out of control..

So far I've been close to suffocating every night since last month, and the only thing that helps is using the nasopharyngeal tube which they won't give me, but yet doctors in korea gave me it.

Here are my scans which somehow aren't enough for the doctors to conclude I even have a problem, yet they are so evident in the scans.

I will CBT soon if the doctors don't acknowledge it and at least give me a supply of tubes, they are literally doing nothing. I've been sent home from the emr 4 times because of their stupid pulse oxymeter despite the scans clearly showing my airway is obstructed and not only that shortened to such extreme levels. Even with breathing through just my mouth I feel hypoxic because my upper jaw was moved up where the top jaw should have been... my face is anatomically abnormal now, it looks inhumanly short in person.

My transition is over. I no longer look like a girl, I even cut my hair after this ordeal. I live in alberta by the way.

Thought I'd share. This is my final straw for CBT, and maybe a cry for help, since no one is helping me even though my lifeline between suffpcation rn is a tube, that no ENT will give me, nor is he acknowledging that my problem is even physiological. Theyre trying to make it seem psychological inspite of these scans. Im not getting healthcare and slowly suffocating. I am only 24 years old. This surgery was meant to be gender affirming but I just ended up deformed and on top of that I can't breathe. I do not know why Canada is like this. In korea they found this out right away and even suggested a palate surgery to undo and expand my airway. I am truly frightened I will be forced to cbt soon due to the prolonged breathing episodes.

View attachment 105356View attachment 105357View attachment 105358View attachment 105359
I've never had a botched private surgery before, only public health one. But if Canadian health care is like free scandinavian ones where I live, I understand why they act that way. I had CT scans and the radiologists wrote in the report what exactly was wrong with my foot and the surgery that public health professionals here performed on me and they ignored it and just said there's nothing wrong lol. Went to a private surgeon with the CT scans and he said yeah that's maltreatment and we just have to remove the issue which you clearly see in the CT, it fixed all my issues and I was suddenly able to walk again 10 minutes after the surgery and was no longer wheelchair bound like I had been for 1 year due to stubborn and incompetant public surgeons who just kept denying me surgery for no reason. I hope you get a new surgery somewhere good and that you make sure that they are competant within this specific field. I was lucky enough to be recommended my private foot surgeon by my foot therapist since most of his maltreatment patients would go to him and I luckily had a lot of money saved up so I was able to save my foot.
 
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Unlucked

Unlucked

Student
Jul 10, 2019
189
I've never had a botched private surgery before, only public health one. But if Canadian health care is like free scandinavian ones where I live, I understand why they act that way. I had CT scans and the radiologists wrote in the report what exactly was wrong with my foot and the surgery that public health professionals here performed on me and they ignored it and just said there's nothing wrong lol. Went to a private surgeon with the CT scans and he said yeah that's maltreatment and we just have to remove the issue which you clearly see in the CT, it fixed all my issues and I was suddenly able to walk again 10 minutes after the surgery and was no longer wheelchair bound like I had been for 1 year due to stubborn and incompetant public surgeons who just kept denying me surgery for no reason. I hope you get a new surgery somewhere good and that you make sure that they are competant within this specific field. I was lucky enough to be recommended my private foot surgeon by my foot therapist since most of his maltreatment patients would go to him and I luckily had a lot of money saved up so I was able to save my foot.
I wrote a long thing to my family doctor to ask for help....
When did you have this done? The breathing issues sound rough and scary. From what I can see in the images, your face looks proportionate. It doesn't look weird to me.
I had this done in South korea. if only they did all those movements UNDER my nasal cavity. Not inside of it...
 
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Fwompje

Fwompje

life is cruel and time heals nothing
Feb 23, 2023
190
I live in Canada, and I would like to share why I will CBT soon. I am a transgender female who had a botched double jaw surgery in Korea. The surgeon moved my upper maxilla into my maxillary sinus cavity, he basically shoved my jaw all the way to the top under my orbitals, into my airway. My airway is like 3.0 mm now the size of a toddler. I feel like I'm slowly suffocating every night.

The worst part is, during these episodes of suffocation and extreme dizziness, I got go to the emergency room and they test my sp02 level with the oxymeter, and it reads 100 or 99+ but the issue is, even if my oxygen was low it wouldn't read properly because I have dark skin on the oxygen pulse reader.

The worst part is that the doctors won't even consider the before and afters that show my airway obstruction and keep claiming that I'm normal and all the structures are in tact. The ENT that I saw didn't even take a look at my before and after CT scans and made his conclusions based on internal imagining camera. But that doesn't show how narrow my airway is in mm.

I only have 1 nasopharyngeal airway that I've been shoving in my nose all by myself to keep the suffocation at bay. Despite having symptoms of hypoxia at night. Especially when the airway relaxes and collapses on itself, and I am usually awake for all of it.

Even with these scans that show all the proof the doctors won't do anything... I'm getting contradictory diagnosises from the doctors in Canada and that scare me from the emergency room They are acting like everything is normal but its not. My breathing is labored 24/7 even with the tube in. And I have no special lubricant for this tube so I've been shoving it in by myself just to breathe.

They won't give me another nasopharyngeal airway despite the fact that i need that or my respiration goes out of control..

So far I've been close to suffocating every night since last month, and the only thing that helps is using the nasopharyngeal tube which they won't give me, but yet doctors in korea gave me it.

Here are my scans which somehow aren't enough for the doctors to conclude I even have a problem, yet they are so evident in the scans.

I will CBT soon if the doctors don't acknowledge it and at least give me a supply of tubes, they are literally doing nothing. I've been sent home from the emr 4 times because of their stupid pulse oxymeter despite the scans clearly showing my airway is obstructed and not only that shortened to such extreme levels. Even with breathing through just my mouth I feel hypoxic because my upper jaw was moved up where the top jaw should have been... my face is anatomically abnormal now, it looks inhumanly short in person.

My transition is over. I no longer look like a girl, I even cut my hair after this ordeal. I live in alberta by the way.

Thought I'd share. This is my final straw for CBT, and maybe a cry for help, since no one is helping me even though my lifeline between suffpcation rn is a tube, that no ENT will give me, nor is he acknowledging that my problem is even physiological. Theyre trying to make it seem psychological inspite of these scans. Im not getting healthcare and slowly suffocating. I am only 24 years old. This surgery was meant to be gender affirming but I just ended up deformed and on top of that I can't breathe. I do not know why Canada is like this. In korea they found this out right away and even suggested a palate surgery to undo and expand my airway. I am truly frightened I will be forced to cbt soon due to the prolonged breathing episodes.

View attachment 105356View attachment 105357View attachment 105358View attachment 105359
I feel so much for you... It's so botched! God how absolutely horrible that you are not being listened to, they're just leaving you... I really hope and wish that you could go to another country to get a second opinion,, perhaps the Canadian healthcare system has too many prejudices.

This is so awful to hear about, this sounds like hell.

Wishing you the best with everything.
 
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Unlucked

Unlucked

Student
Jul 10, 2019
189
Do you use a sleep apnea machine?
No I don't but I have a sleep study booked so hopefully I get one...because I can't breathe on my own at night rn. But honestly I just want a lifetime supply of naropharyngeal airways because thats what solves this. And I can take them out for about 1 hour before I start feeling hypoxic again.
 
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FuneralCry

FuneralCry

Just wanting some peace
Sep 24, 2020
43,391
That sounds really horrific what you have to endure, it's just so incredibly unfair how you have to suffer like this. This world undeniably is such a hellish place.
 
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I

iwantdeath6969

Member
Oct 17, 2022
82
this is horrifying, it's so unfair that they're forcing you to keep living through this hell even though there is physical proof that you need help. i'm also transgender and grew up in alberta, i know how fucking awful the healthcare is there especially for trans people, i really hope someone takes you seriously and you can get surgery to fix your airway
 
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hunterthompson

hunterthompson

Member
Feb 12, 2023
12
Please stop going to ER doctors. These are overworked, understaffed hospitals and in your province Im not shocked they're treating a trans patient this way. You need to get yourself a GP, bring in the scans and ask for a referral to a surgeon or a specialist who deals with your airways. I know nothing about this so I'm not sure what they'd be called but your doctor will know.

ER is typically for emergency medicine and treatment. It's near impossible to go in with something like this and be treated appropriately. A family doctor will take the time to listen to you and although they won't know what to do (most likely) they can get you a referral to someone who does. In Alberta both of those doctors are free. You may be able to ask for an Rx for those tubes from a family doctor if it's something a pharmacy can order in for you.

Don't give up hope until you've exhausted all of your options. As it seems you still have a ton of options left. If one doctor is flippant and doesn't care, find another. Advocate for yourself. I have chronic pain and before I took it into my own hands and forced doctors to care I was being blown off by most physicians. Be firm with them and explain your dire situation. If it gets to a point where no one can help you and this is irreversible (I doubt it) then CTB makes sense, but certainly not now, you're not ready.
 
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Unlucked

Unlucked

Student
Jul 10, 2019
189
Please stop going to ER doctors. These are overworked, understaffed hospitals and in your province Im not shocked they're treating a trans patient this way. You need to get yourself a GP, bring in the scans and ask for a referral to a surgeon or a specialist who deals with your airways. I know nothing about this so I'm not sure what they'd be called but your doctor will know.

ER is typically for emergency medicine and treatment. It's near impossible to go in with something like this and be treated appropriately. A family doctor will take the time to listen to you and although they won't know what to do (most likely) they can get you a referral to someone who does. In Alberta both of those doctors are free. You may be able to ask for an Rx for those tubes from a family doctor if it's something a pharmacy can order in for you.

Don't give up hope until you've exhausted all of your options. As it seems you still have a ton of options left. If one doctor is flippant and doesn't care, find another. Advocate for yourself. I have chronic pain and before I took it into my own hands and forced doctors to care I was being blown off by most physicians. Be firm with them and explain your dire situation. If it gets to a point where no one can help you and this is irreversible (I doubt it) then CTB makes sense, but certainly not now, you're not ready.
I actually got referred to an ENT and he said that my breathing issues may not even be physiological, that scares me.... I dont want them to label this as psychological when its not. My airway is constricted, and I can't breathe without the tube. I only get about 4 hours of oxygen with the tubing out before my body starts attacking me for air. The ENT just rushed through the appointment and said my dizziness is probably not even connected. IF the ENT is saying that, then no one will take me seriously or help me.

So do I see another ENT? what should I do, who else deals with airways if not the ENT. And this one was reffered to me in emerg and he only saw me for like 5 minutes and didn't even bother to look at my before and after CTS... so what now?

Not only that I think I'm experiencing condylar resorption, my jaws are going inwards and I notice the change almost daily, I think by the end of this I'll be completely deformed.
 
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stoopid

stoopid

from hell
Feb 27, 2023
183
What the fuck, sorry that's fucked up.
I never ever heard anything like that, for real, I sit here like wtf.

Is there any chance that it's possible to fix that ? Maybe in Europe?
 
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Unlucked

Unlucked

Student
Jul 10, 2019
189
What the fuck, sorry that's fucked up.
I never ever heard anything like that, for real, I sit here like wtf.

Is there any chance that it's possible to fix that ? Maybe in Europe?
Im not sure... I think I might be gone soon, I cant take the suffocation episodes anymore.
 
Unlucked

Unlucked

Student
Jul 10, 2019
189
Im going to try to take the tube out, and let my body naturally deplete of oxygen till im close to death and try to get help... but im scared, im scared.
 
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hunterthompson

hunterthompson

Member
Feb 12, 2023
12
I actually got referred to an ENT and he said that my breathing issues may not even be physiological, that scares me.... I dont want them to label this as psychological when its not. My airway is constricted, and I can't breathe without the tube. I only get about 4 hours of oxygen with the tubing out before my body starts attacking me for air. The ENT just rushed through the appointment and said my dizziness is probably not even connected. IF the ENT is saying that, then no one will take me seriously or help me.

So do I see another ENT? what should I do, who else deals with airways if not the ENT. And this one was reffered to me in emerg and he only saw me for like 5 minutes and didn't even bother to look at my before and after CTS... so what now?

Not only that I think I'm experiencing condylar resorption, my jaws are going inwards and I notice the change almost daily, I think by the end of this I'll be completely deformed.
Yes, you see another.

I described how to get in touch with someone through a GP. You're still going through emerg which honestly won't help.
 
Al_stargate

Al_stargate

I was once a pretty angel
Mar 4, 2022
746
Sorry you have to deal with this, just goes to show how crazy the plastic surgery world is. They advertise it as basically risk free, when in reality every surgery is a huge risk, aestheticaly and functionally. I had a stupid nose job that ruined the aesthetic of my nose and that's the reason im here.
 
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C_F

C_F

Experienced
Jul 31, 2019
241
It's awful not being believed. I'm so sorry.
 
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WaitingToGo

WaitingToGo

Experienced
Feb 18, 2023
233
What a shocking time you are having. Truly horrific. I'm trans too and had quite a few procedures done but I was so careful to choose surgeons with a near perfect track record. The scariest one was FFS. The surgeon did an amazing job on me but I did find out later that he had a patient die on him during the op. Not sure why or what happened but it brought it home to me just what risks we take.
Could you not get the surgeon who messed up to fix the problem or do you not trust him/her
In any case I hope you get sorted. :hug:
 
Unlucked

Unlucked

Student
Jul 10, 2019
189
Yes, you see another.

I described how to get in touch with someone through a GP. You're still going through emerg which honestly won't help.
Talking to the the GP. So hopefully he listens to me...
 
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nopride86

nopride86

Student
Mar 16, 2022
135
Holy shit.

Honestly I would look for reputable maxillofacial surgeons in the US. You don't need cosmetic surgery, you would need complete reconstruction.

Never underestimate the power of a story like this, send letters and messages to people and include those photos. There has to be someone with a brain out there, someone to know that this is no way to live.
(In the US right now I have my eye on Dr. Steinbacher in Connecticut, but I'm sure there's many more out there.)

In truth, so many people have failed you up to this point with their negligence and incompetence, people who we are always told to trust. None of this is your fault yet you're forced to deal with their consequences. I'm so sorry this has happened and it's totally understandable if you'd rather cross over than attempt more uncertain procedures. Regardless of how you choose to go about this, I hope you find peace because you deserve peace.
 
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Unlucked

Unlucked

Student
Jul 10, 2019
189
Holy shit.

Honestly I would look for reputable maxillofacial surgeons in the US. You don't need cosmetic surgery, you would need complete reconstruction.

Never underestimate the power of a story like this, send letters and messages to people and include those photos. There has to be someone with a brain out there, someone to know that this is no way to live.
(In the US right now I have my eye on Dr. Steinbacher in Connecticut, but I'm sure there's many more out there.)

In truth, so many people have failed you up to this point with their negligence and incompetence, people who we are always told to trust. None of this is your fault yet you're forced to deal with their consequences. I'm so sorry this has happened and it's totally understandable if you'd rather cross over than attempt more uncertain procedures. Regardless of how you choose to go about this, I hope you find peace because you deserve peace.
Thank you for your kind words. The problem is I'm poor and have no money... I spent the last of my life savings on ffs. Can someone talk to me on the phone as I go. I think my time is soon.

Last emerg visit doctor said it's all psychological and dismissed everything. I have a document with everything in it, I will leave it beside me and hope someone finds it and investigates. I think im going soon. I don't want to die, but I don't think I can suffocate again more than once. Once is enough.
 
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Unlucked

Unlucked

Student
Jul 10, 2019
189
Holy shit.

Honestly I would look for reputable maxillofacial surgeons in the US. You don't need cosmetic surgery, you would need complete reconstruction.

Never underestimate the power of a story like this, send letters and messages to people and include those photos. There has to be someone with a brain out there, someone to know that this is no way to live.
(In the US right now I have my eye on Dr. Steinbacher in Connecticut, but I'm sure there's many more out there.)

In truth, so many people have failed you up to this point with their negligence and incompetence, people who we are always told to trust. None of this is your fault yet you're forced to deal with their consequences. I'm so sorry this has happened and it's totally understandable if you'd rather cross over than attempt more uncertain procedures. Regardless of how you choose to go about this, I hope you find peace because you deserve peace.
Do you know of any who I could message. Maybe they would help me out on a compassionate basis. I really don't have the money but I think I developed empty nose syndrome from this. I'm suffocating everyday.
 
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nopride86

nopride86

Student
Mar 16, 2022
135
Do you know of any who I could message. Maybe they would help me out on a compassionate basis. I really don't have the money but I think I developed empty nose syndrome from this. I'm suffocating everyday.
Honestly I don't, but I see "social media miracles" aka pro bono work from time to time. Easier said than done.
Here's the thing, you can either suffocate from this affliction or suffocate from the huge debt. I'm sure you have debt already from the first procedure too, which is god awful. First step would just be to have literally any doctor confirm that this is BAD. Once you get that, more specialists should pay attention. Tbh, most doctors are a bunch of egotistical quacks. I'll keep my eyes out to see if any pages that I follow would be open to hearing about this, though.

In the meantime, I hope you are okay tonight and a step closer to finding your peace. You are loved and you deserve care ❤️
Last emerg visit doctor said it's all psychological and dismissed everything.
Btw this ^^ is exactly the typical bullshit that Docs say when they arent qualified enough to do their fucking job. Shame on them.
 
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Shadowlord900

Shadowlord900

Seeker of Darkness
Sep 29, 2022
918
Oh my god I feel for you for how apathetic and awkward doctors can be. I had to lie to my GP by over-exaggerating my symptoms and saying the meds didn't work in order to finally get an endoscopy, and I would have never found out I had coeliac disease and continue to accidentally damage my small intestines with gluten foods if I didn't lie to get that endoscopy.

You'd think from the scans you've showed, someone must actually know how to properly help you. I'm completely baffled as to how no one's tried to properly treat you yet.

But if you've yet to try to get help from a GP, I wouldn't recommend lying the first time around, only if they're unwilling to properly help you and you have no other options would I resort to lying.
 
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Unlucked

Unlucked

Student
Jul 10, 2019
189
Oh my god I feel for you for how apathetic and awkward doctors can be. I had to lie to my GP by over-exaggerating my symptoms and saying the meds didn't work in order to finally get an endoscopy, and I would have never found out I had coeliac disease and continue to accidentally damage my small intestines with gluten foods if I didn't lie to get that endoscopy.

You'd think from the scans you've showed, someone must actually know how to properly help you. I'm completely baffled as to how no one's tried to properly treat you yet.

But if you've yet to try to get help from a GP, I wouldn't recommend lying the first time around, only if they're unwilling to properly help you and you have no other options would I resort to lying.
Even with the scans they just justify it and say I can breathe through my mouth. I don't even think most doctors can comprehend what was anatomically done, they just act like I have to adjust to a narrow breathing canal, and I'll be fine. Like wtf. ENTS are the worst honestly, I've heard of them dismissing people with ENS syndrome and others like me who killed themselves because their nasal passages are obliterated and the nerves in their nose don't signal that theyre getting air anymore leading to constant suffocation/ and endless fight or flight in their body. I heard of an ens patient who just flipped and killed his ENT.

It's ridiculous how bad it is. So far I've been perscribed benzos and ondanzetron for nausea, 2 benzos a day max my doctor said because he doesnt want me addicted. My suffocation episodes last around 5 hours before my body fatigues. So I think it should help, temporarily... and then usually I get no sleep becauee I wake up gasping for air and constant heart palpitations.

Unironically the benzos don't get rid of the feelings of suffocation itself, just the feelings of fear.

At least I kind of have a taste of what SN will be like because I'm suffocating 24/7 with dizziness and vertigo. I think my family doctor is smarter than the actual ent though, he knew what empty nose syndrome was before I even asked him, so I'm thinking he knows how serious this is. I Told him i feel like I'll kill myself if I have to suffocate again.
 
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general bacon

general bacon

Member
Mar 3, 2023
27
Thank you for your kind words. The problem is I'm poor and have no money... I spent the last of my life savings on ffs. Can someone talk to me on the phone as I go. I think my time is soon.

Last emerg visit doctor said it's all psychological and dismissed everything. I have a document with everything in it, I will leave it beside me and hope someone finds it and investigates. I think im going soon. I don't want to die, but I don't think I can suffocate again more than once. Once is enough.
I'm so very sorry this is happening to you. It's not fair at all. I truly hope you can figure something out. It's heartbreaking that so far no one will do anything. I wish I could do something for you. If you want to chat at all my DMs are open. I don't know our time differences, I'm in the US (MST time zone).
 
Shadowlord900

Shadowlord900

Seeker of Darkness
Sep 29, 2022
918
Even with the scans they just justify it and say I can breathe through my mouth. I don't even think most doctors can comprehend what was anatomically done, they just act like I have to adjust to a narrow breathing canal, and I'll be fine. Like wtf. ENTS are the worst honestly, I've heard of them dismissing people with ENS syndrome and others like me who killed themselves because their nasal passages are obliterated and the nerves in their nose don't signal that theyre getting air anymore leading to constant suffocation/ and endless fight or flight in their body. I heard of an ens patient who just flipped and killed his ENT.

It's ridiculous how bad it is. So far I've been perscribed benzos and ondanzetron for nausea, 2 benzos a day max my doctor said because he doesnt want me addicted. My suffocation episodes last around 5 hours before my body fatigues. So I think it should help, temporarily... and then usually I get no sleep becauee I wake up gasping for air and constant heart palpitations.

Unironically the benzos don't get rid of the feelings of suffocation itself, just the feelings of fear.

At least I kind of have a taste of what SN will be like because I'm suffocating 24/7 with dizziness and vertigo.
o__O What kind of negligent doctor would give a patient benzos who's suffering from symptoms similar to sleep apnea!?!?

Do you know what kind of benzos you're using and how late you use them in the day? If you can, please try to avoid using benzos too late in the day. Benzos should never be given to people who suffer from breathing problems that aren't being properly treated. That can cause respiratory depression, and is one of the very, very few ways you can actually CTB from benzos alone without the help of other deadly drugs like barbiturates or opioids.
 
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GasMonkey

GasMonkey

Nitrogen Master Race
May 15, 2022
1,878
Airway problems are the worst shit.

I broke my nose hard at 9 or 10yo and everything went downhill from there. I started to have a stuffy nose most of the time, mouth breathing, rhinosinusitis, headaches, mood changes, tired, affected the development of my face and made it asymmetric, I started to develop a depressive personality, neuroticism, some years later I got depression, etc.

I wonder how everything would have turned out in an alternate timeline where that didn't happen.
 
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Unlucked

Unlucked

Student
Jul 10, 2019
189
Airway problems are the worst shit.

I broke my nose hard at 9 or 10yo and everything went downhill from there. I started to have a stuffy nose most of the time, mouth breathing, rhinosinusitis, headaches, mood changes, tired, affected the development of my face and made it asymmetric, I started to develop a depressive personality, neuroticism, some years later I got depression, etc.

I wonder how everything would have turned out in an alternate timeline where that didn't happen.
There's so many nerves in the nasal canal, and it's all tied to the autonomic nervous system.... if something goes haywire there it's pretty much like blocking a dog's sense of smell or plucking out a cats whiskers. It regulates so much.
 
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