BlazingBob
I'm still here b/c of my dogs
- Oct 28, 2021
- 602
Just wondering how many others are dealing with debilitating exhaustion.
Last edited:
I've had a ton of tests and seen over 40 doctors. No answers. Of course a lot of them said it's depression but none of the treatments worked including TMS, ketamine infusions, talk therapy, SSRIs, etc. I have two hallmarks of CFS/ME which are completely unrefreshing sleep and PEM. Like if I do even a little too much I'm screwed for days. My mom has it.Yep, this is my only reason for wanting to CTB. I have ME/CFS (chronic fatigue syndrome) and it's completely ruined my life. 12% of people with the condition die by suicide and I'm surprised it's not more. People who haven't experienced fatigue so all-encompassing that you can't live your life can never understand what it's like.
Have you had any medical tests done? You might have ME/CFS too in which case you're fucked bc there's no cure, but there are a bunch of other conditions that cause fatigue which can be treated so might be worth asking your doctor for some blood tests if you haven't already.
Since you have PEM and have had symptomatically similar conditions ruled out it does unfortunately sound likely to be ME/CFS. So sorry to hear this, your situation sounds so difficult. This illness strips you of everything that makes life worth living. I've also experienced RLS as part of opioid withdrawal and it was awful - can't imagine living with it permanently.I've had a ton of tests and seen over 40 doctors. No answers. Of course a lot of them said it's depression but none of the treatments worked including TMS, ketamine infusions, talk therapy, SSRIs, etc. I have two hallmarks of CFS/ME which are completely unrefreshing sleep and PEM. Like if I do even a little too much I'm screwed for days. My mom has it.
I have severe, refractory, idiopathic RLS, which definitely causes exhaustion. RLS is torture. Luckily for that I'm seeing one of the top specialists in the country if not world so my bases are covered on that front. He checked my iron and a bunch of other things and everything was fine.
I've tried so many things and spent myself into destitution and have nothing to show for it except worsening symptoms and absolutely painful, debilitating exhaustion. I used to run six to eight miles several times a week, lift weights, play sports, travel. Now just getting out of bed takes a herculean effort. I've been housebound for 5 years since I had to quit my job as a professor at a small private university. If I don't pull my shit together very soon I'm going to be living on the streets. I have nowhere and no one I can turn to. I get treated like complete dog shit where I'm currently living.
Just tonight my 22 year old car took a dump. I'm running out of money and majorly stressed out over how much it's going to cost to fix. I'd love to be working if I could. I've had enough and it's just not worth living like this. No kids, never been married, family of origin are a bunch of assholes. I'm just done. Sorry for the rant.
Exactly! Thanks for your response. You summed up my dilemma quite well. It sounds like we're in the same (sinking) boat. I'm sick of watching life go by while I sit here and rot. I'll be single and alone forever because I just don't have the energy, or money, to date or sustain any kind of relationship. Golf was a huge outlet. I've tried. Like you said all the things that make life worth living are stolen. I didn't know about the 5 year mark. If true that has came and went in my case. I'm planning on partial suspension or a nitro exit bag. The thought of hell still scares the crap out of me.Since you have PEM and have had symptomatically similar conditions ruled out it does unfortunately sound likely to be ME/CFS. So sorry to hear this, your situation sounds so difficult. This illness strips you of everything that makes life worth living. I've also experienced RLS as part of opioid withdrawal and it was awful - can't imagine living with it permanently.
I've also spent thousands on treatments that haven't helped, seen one of the UK's leading fatigue specialists and I take 30 supplements a day with no improvements. Currently trying the Perrin osteopathic technique and the Optimum Health Clinic program (which seems like expensive bullshit so far) and just started low dose naltrexone which is supposed to help. I've been ill 4 years and if I reach 5 years with no improvements I'm committing suicide because that's supposed to be the point of no return in terms of hope for recovery.
I also used to love the gym and exercising was the main way I managed my mood/mental health struggles, and that coping mechanism is gone now. Main thing I've learned is to embrace rest and stop trying to push through it because all that does is permanently lower your baseline of functioning. I've had to shake the idea of exercise as something that can help with life's problems - it is for most people but not for us any more. Selling my beloved exercise bike a few months ago felt like giving up on ever getting better but acceptance is important I guess. Good luck with it all. Wouldn't wish this on my worst enemy.
Yeah, not being able to sustain a relationship is another big loss with this illness. I'm lucky I've managed to maintain some friendships but dating is out of the question, as is working. Been slogging away at my degree part time for years and even if I do miraculously finish it I won't be able to have any kind of career so struggling to see the point. Exit bag seems like a good painless method from what I've read. Doubt I'd be able to pull it off logistically so I'm going down the heroin overdose route when my time comes. Death scares me too but not as much as the pain I'll leave my family with. That's the main thing keeping me here atm. Big mental hurdle to get over.Exactly! Thanks for your response. You summed up my dilemma quite well. It sounds like we're in the same (sinking) boat. I'm sick of watching life go by while I sit here and rot. I'll be single and alone forever because I just don't have the energy, or money, to date or sustain any kind of relationship. Golf was a huge outlet. I've tried. Like you said all the things that make life worth living are stolen. I didn't know about the 5 year mark. If true that has came and went in my case. I'm planning on partial suspension or a nitro exit bag. The thought of hell still scares the crap out of me.
I'm dealing with it - tired from and tired of.Just wondering how many others are dealing with debilitating exhaustion.
Can relate, been dealing with constant physical and mental fatigue for a few months now since another episode of depression began. Barely being able to work, not taking care of myself properly etc makes me want to pull the plug. Just feel like a burden to coworkers and my family, especially since I was hospitalized recently for an attempt (cutting) and supposed to be getting better. I'll try to switch meds and see if anything can help for now