
Samsal112
Student
- Dec 20, 2021
- 179
I am so sorry to hear about your chronic journey, but you are one heck of a fighter! I have the same thing going on. I do believe I have SIBO and have an appointment tomorrow with a dietician to go over the tests. GI doctors were never any help and diagnosed me with IBS. I believe I had gastritis due to stress, caffeine, and eating poorly, but rather than tackle the gastritis, all the tests I took were looking for some obstruction. After 2 years of being so sick, I started researching and I came up with the exact same thing you did! GI issues can cause a myriad of symptoms, but because our health system is so specialized, no one caught it. I ended up having my gallbladder out which has made everything worse. I was bedridden for 6 months. But, I believe my GI is causing my vision problems, neurological problems, sleep problems, fatigue, and nervous system issues. I also read that a lot of depression and even autoimmune diseases are caused by our poor microbiome. I had read about the schizophrenia as well and suggested that on benzobuddies, but that did not go over so well with the platform. It is great to hear someone say the exact same thing I have been saying all along!On a side note, the person who started the Inert Gas Exit Bag Megathread, @TiredHorse, ended up affording euthanasia or AS in a country where that is legal. So if you're well off you may very well be able to find peace without the struggle of doing it all by yourself.
I was living comfortably until my injury, now I'm hopeless and suffering physical pain which is no big deal on it's own, but all the stress and anxiety of losing everything, which I know at this point in life I won't be able to get past.
My GI symptoms. I'm fairly certain it all started when I was prescribed Ciproflox for I don't even remember what for anymore. It started off as IBS-C and I had an extreme pain event where i just felt horrible. I ended up becoming lactose intolerant and had trouble digesting food. I also started piling up symptoms, body and hand pain, inability to focus, anxiety, etc... I was tested for Chrons, Celiac and GERD and had my blood tested for pretty much everything with all my tests coming back normal. I couldn't really function. I did have pretty much all the symptoms of Leaky Gut Syndrome. And things only got worse. I started having bone pain and ended up seeing a Rheumatologist. One she started throwing around things like Raynauds and Lupus, I decided that they wouldn't be able to diagnose or help fix anything.
I bought a Vitamix and ended up blending my food so I could absorb nutrients. I ended up going through various elimination diets for 2-4 weeks at a time. I ended up going with kind of a combination between the Stanford University SIBO and either John Hopkins or Mayo Clinic SIBO diets, eliminating things that weren't on either of them until I started improving. After a while, I was able to drink milk again and things started getting better until I could add regular food. I still had to be careful of what I ate, but got better over the years.
A LOT of symptoms unrelated to typical GI issues can be caused by Enteric system disorders. It's called the 2nd Brain for good reason. Just minor biome issues can cause all sorts of problems with many people. It's possible that a number of people here are suffering from Enteric System Disorders that don't even display as GI issues. Nervous system disorders, mood and emotional disorders, immune system disorders, food allergies... I even read a study that suggested that one cause for a type of schizophrenia seemed to be Enteric related. There is still not a lot known about what healthy gut bacteria is actually supposed to look like and treatments like FMT, a treatment literally thousands of years old, which I believe would have helped me have become outlawed so Big Pharm can patent bacterial treatments.
You really need to research legitimate studies on all of your symptoms on medical sites and universities because there is a lot of published research that is not known by many GIs. Individually search Stanford, Cornell, NIH, Pubmed, etc... with various search terms looking for studies. You may not understand a lot of the genetic or specific medical terminology, but there are always sections that will be readable.
If it's not a legitimate published scientific study, do not even bother with it. There is plenty of homeopathy, naturopathy and supplement manufacturer garbage and scams online. If you're considering taking ANY supplement, pretty much every one has been studied by at least one teaching medical university with legitimate scientific findings.
I am sadden to hear of your illness, but I am appreciative that I got to meet here :)