Ive been depressed and miserable most of my life but my macular dystrophy diagnosis basically is putting me over the edge. it feels like life is telling me to not even try
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myusername890, Hopeindeath! and Fragile
i'm fearing my geneticist appointment in a couple of months and i've been procrastinating on medical tests for this reason, the moment that they confirm my fears it will be over.
last year i was told that i may have multiple sclerosis or a degenerative genetic condition, i'm not living with one or the other.
i'm fearing my geneticist appointment in a couple of months and i've been procrastinating on medical tests for this reason, the moment that they confirm my fears it will be over.
last year i was told that i may have multiple sclerosis or a degenerative genetic condition, i'm not living with one or the other.
Yep ! I'm not even depressed or miserable, but I have two rare genetic diseases (EDS and Addison's disease) that are chronic, untreatable, but will not kill you - "just" turn your life into a waking nightmare....if I was healthy I would not make all those ctb plans ! Since both conditions have been getting worse and worse over the last years I think it's soon time to end it ! Hugs to everyone here on SS who has to live with physical suffering.....
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ihatemylife, WearyWanderer, Arvinneedstodie and 5 others
i'm fearing my geneticist appointment in a couple of months and i've been procrastinating on medical tests for this reason, the moment that they confirm my fears it will be over.
last year i was told that i may have multiple sclerosis or a degenerative genetic condition, i'm not living with one or the other.
MS can be awful or it can be liveable. There are treatments available. If you have MS feel free to PM me about HSCT- chemo and stem cell treatment that is halting MS from developing in many cases.
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