any young people with chronic pain/health problems?

[TooConscious]

I have had hormone problems chromosome abnormality that wasn't addressed when I suspected I had it at 17 and sought help. Not till I was 28 did a gp finally listen to me.
No apologies from NHS though. And the blame is turned on you.
I believe their lack of help then led to my deteriorated mental being not to mention the health of a 90 year old at 30. World is hell.

 

[longingforfreedom]

Not as young as you. When it all kicked off I was 26. I'm 29 now.
I spent ten months bed bound and after a massive spinal operation I am simply housebound now (sitting and standing function returned) but I have neuropathic pain coursing through my legs 24/7 (as well as random fasciculations). Recently I developed interstitial cystitis from the corticosteroids I was taking to try help the neuropathic inflammation (it didn't even help). If I could click my fingers to get rid of one of them I honestly don't know which one I'd pick.
I can barely leave my house or concentrate on doing anything meaningful during the day. I lost my girlfriend, a lot of friends, my PhD, but most of all joy.
My life is just praying that the symptoms spontaneously resolve or someone drives their car through my bedroom wall and into me. Have had a 'death kit' assembled for nearly a year now.

I can relate. I lost everything and everyone too including friends and my girlfriend. I've got severe neuropathic pain in my pelvis and after a suicide attempt more nerve damage in my thigh/groin. I wanted to escape the pain, but SI kicked in and I called for help. Now I'm trapped in even more of a hell and no one understands. I wish I could just get assisted suicide. I'm terrified of living.

I have a rare complication from chronic Lyme disease where I'll need biweekly IVIG infusions for the rest of my life in order to prevent the myelin coating of my nerves from being eaten away by my body's faulty immunological reaction.

Oh and I also jumped off of a building a few months ago in a moment of distress and my back is beyond screwed.

I'm sorry to hear. I had a failed attempt too to end my suffering and now I've got more nerve damage plus other chronic illnesses that I was dealing with prior to the onset of the nerve condition that led me to suicide. I want to f-ing die so bad, but now I'm trapped. No other way out I fear.

 

[longingforfreedom]

Have dealt with chronic pelvic pain/pelvic floor dysfunction since the age of twenty, now 25. Had to drop out of college and began seeing urologists and physical therapists. I have many symptoms that seem rare and havent been studied, along with stomach issues, urgency in bladder and near constant urge to have a bowel movement, and now a rectal prolapse. The depression, anhedonia, anxiety, and hopelessness seems to intensify each passing year as I ponder all the wasted time of our so-called "youthful prime". Not much friends, not much independence, not any job, not any fun. The idea of this being permanent is dreadful thought, and i'd rather have the option of peaceful exit from this life and all its horrors.

Sounds like you might have ehlers-danlos syndrome or some other connective tissue disorder. I can empathize. I'm so sorry.

 

[NightmareTour]

23 and I've had neurological issues from brain damage for the past 10 years. On the plus side, I don't really remember what it was like to be "normal", but chronic pain and health issues can be exhausting. Not being able to do what other people your age are achieving with their lives and not being able to have independance takes a massive toll mentally too.

 

[Deleted member 25508]

i'm 25 and i have pots, chronic fatigue, some kind of non-specified arrhythmia, and ibs—which are all mostly invisible illnesses that people accuse me of not actually having. sometimes i feel fluish and i keep thinking i have covid, but it appears to be another symptom of the myriad of chronic health disorders i'm facing. today i rode passenger in a car and that was enough to make me feel like throwing up—my whole body became cold and my mind went practically blank. even after taking a nap, i still don't feel good. it's funny that the psychiatry industry thinks getting me "back to work" is going to fix me, when i feel so sick sometimes that i can barely get out of bed, let alone take care of myself or work a job. the whole system seems to be designed with that purpose in mind—doping someone up on enough drugs so they shut up and get back to work. we are living in the stone age as far as support for downtrodden and chronically sick people goes.

 

[longingforfreedom]

i'm 25 and i have pots, chronic fatigue, some kind of non-specified arrhythmia, and ibs—which are all mostly invisible illnesses that people accuse me of not actually having. sometimes i feel fluish and i keep thinking i have covid, but it appears to be another symptom of the myriad of chronic health disorders i'm facing. today i rode passenger in a car and that was enough to make me feel like throwing up—my whole body became cold and my mind went practically blank. even after taking a nap, i still don't feel good. it's funny that the psychiatry industry thinks getting me "back to work" is going to fix me, when i feel so sick sometimes that i can barely get out of bed, let alone take care of myself or work a job. the whole system seems to be designed with that purpose in mind—doping someone up on enough drugs so they shut up and get back to work. we are living in the stone age as far as support for downtrodden and chronically sick people goes.

I have POTS, chronic fatigue, Ehlers-danlos syndrome, raynauds, tremor and severe nerve damage in my pelvis and groin. It was hard enough before the nerve damage and now I really don't want to live
So, I understand. Big time. You can't get through to people. Unless, they experience it themselves.

 

[WaitForSleep]

i feel really alone. i'm 21 and have been having daily excruciating pain since i was 18, combined with multiple autoimmune diseases that give me fatigue and brain fog. i feel like i'm wasting my life and i miss how happy and healthy i used to be. my mom is in so much debt because of my medical conditions. i also have anxiety (it was SEVERE for a long time but it's actually improved) and depression. but my main reason for wanting to go is because of the physical pain. every decision i make is based off of it - i really want to move out but need to be close to doctors and specialists. i want a job but can barely get out of bed. i would have to get on disability which makes me feel guilty and this isn't what i wanted. i had a ton of scholarships and my college was basically paid for, i had to drop out and break up with my boyfriend because one of my conditions causes sexual pain too. i just want to be healthy.
it hurts :(

damn, I'm sorry you're in so much pain. it truly is awful. I'm also 21, have scoliosis which causes quite a bit of pain on a daily basis. I'm one degree away from surgery being an option, but I don't know if I'd even want to risk that (because of all that could go wrong). It's not my sole reason for wanting to ctb, but is definitely a contributing factor