Venting According to my doctor, my neuropathy is caused by stress.

[Deleted member 1465]

So sorry you guys have experienced the same thing I've gone through. I've been exceptionally healthy my entire life. This is the first year I've been to a doctor in decades. Severe peripheral neuropathy, muscle spasms over my entire body, balance issues, tinnitus, urinary retention and incontinence, blood pooling in my legs all came on suddenly during February this year.

Urgent Care doctor prescribed me a muscle relaxant, neurologist told me I don't eat enough salt, and GP told me I have anxiety. I denied each of these things, but that's all they left me with. Botox caused my extensive nerve damage. Being abandoned by the medical community during the one time I needed help destroyed me. It really did.

If none of us can be helped by doctors, what's left? Who's left? I've just learned to suffer silently as my muscles are eaten by the nerve damage and my teeth begin to decay.

Hugs to each of you suffering this. It's hell.

That's a very odd series of symptoms. Sounds neurological to me, but I'm not a doctor...er...but then seeing as the doctors are shit...what are we left with? Research, reading between the lines on the internet, self medication and supplements, telling doctors what we want them to prescribe, ie. bullying them.
It's ironic that doctors deal with symptoms and not causes, they don't see illness as a systemic affliction that affects a whole person, rather as a bunch of unrelated symptoms, each to be dealt with separately. Unfortunately, biology doesn't work like that.

 

[Deleted member 1768]

But when I look it up, stress is not listed as one of the causes for it on various sites. I'm actually the least stressed I've been in ages.
Diabetes was ruled out via a blood test.
It could be my drinking, but I dont drink enough for this kind of damage.
She did begin to offer a medication, but after she saw I was already on 4 medications ( apparently that's a lot for my age, I'm 24) she decided against it.
She didnt offer any other treatment.
I've only had this for a couple months, but it's already progressed to most of the day and now theres stabbing pains too.
According to my research, neuropathy progresses without treatment, to the point it can affect other stuff, like balance. It's already affecting my sleep which I said on the phone.
She just said to call back if it stops me from living a normal life, which sooner or later it will do.
I don't want to be dealing with this.
I already have PTSD, BPD, alcoholism, dyspraxia, asthma and chronic gastritis.
Hopefully this is something fatal.

I have had peripheral neuropathy for several decades, and I can guarantee stress has nothing to do with it. I recommend a simple blood test for B12 levels. Given your drinking it is a very important consideration. The name of that disorder is beri-beri. You can be tested for neuropathy, once beri-beri is eliminated and the results are conclusive. It is not a case of having to undergo testing when the situation is severe. Have you had an electromyogram? If not you should have one. I should let you know that there is nothing I know of which can alleviate the lancinating, cramping, burning, stabbing pain neuropathy brings. I have been on gabapentin, tegretol, and morphine. Nothing worked. But at least I have a definitive diagnosis unrelated to 'stress'. Good luck.

 

[tidalwxves]

But when I look it up, stress is not listed as one of the causes for it on various sites. I'm actually the least stressed I've been in ages.
Diabetes was ruled out via a blood test.
It could be my drinking, but I dont drink enough for this kind of damage.
She did begin to offer a medication, but after she saw I was already on 4 medications ( apparently that's a lot for my age, I'm 24) she decided against it.
She didnt offer any other treatment.
I've only had this for a couple months, but it's already progressed to most of the day and now theres stabbing pains too.
According to my research, neuropathy progresses without treatment, to the point it can affect other stuff, like balance. It's already affecting my sleep which I said on the phone.
She just said to call back if it stops me from living a normal life, which sooner or later it will do.
I don't want to be dealing with this.
I already have PTSD, BPD, alcoholism, dyspraxia, asthma and chronic gastritis.
Hopefully this is something fatal.

I'm sorry to hear this, are you in the position to get a second opinion and more treatment options? It can be exhausting not only to get a diagnosis but then to get on the proper plan for care is a whole other battle. At least you know what the issue is, I hope you can get help now that you are aware

 

[Deleted member 1768]

Sounds like I already posted in this thread
But my ear problems are getting worse by the day, everything is spinning and everyday sounds hurt like hell, and of course I got the standard answer of 'Its in your head, you need to deal with your anxiety and it will go away, that will be 50 dollars thank you'.
And Im forever salty about that
When I received my 'diagnosis', I tossed it in the trash and cried myself to sleep for 5 days.
Loathe doctors :D They wouldnt know illness if it struck them in the face with a brick

You have just described Meniere's disease. Have you had a dye-injected ct scan of your head?

 

[spider2020]

Maybe if I paid privately they would care, after all money is money?

You may have more chance to a correct diagnosis and therapy, but maybe you could go broke before reaching any goal.
My personal advice is try to find a "review" of a doctor or clinic before spending your money: if you do, do it wisely if you can. Someone call it "doctors shopping". My pathology is running fast and affecting my mobility, I just have a doctor which is theoretically near, but I'm affected by simple movement and car's vibrations.

I remember a story from one user about almost dying due to medical neglect, because doctors wouldnt believe she had a specific dangerous condition and left her alone in the emergency unit.
And now I despise doctors, even though some of them are probably compassionate, but I met only jerks so...

Do you remember the name of this user?
It looks like my latest recent experience, from which I'm thraumatized.
I'm opening the ctb option and let that ready if my final moves produces zero to nothing or my pathology runs out of control: I have little help from family, even during flareups and the "coronavirus" psychosis has caught the mind of specialists, E.R. doctors and nurses in particular. No places for hospitalization despite the coronavirus impact has gone to zero: these "bed cuts" are both an effect of the will of saving money from politicians and stupid emergency law with no real project behind, no common sense, no sense of real risk/benefit ratio.

 

[BridgeJumper]

You have just described Meniere's disease. Have you had a dye-injected ct scan of your head?

I have been taken to ER for the spinning, they told me Im dizzy because Im on drugs. Went to an ENT and he told me Im fine cause theres no inflammation in my ears. Finally went to a regular doctor and he gave me a script for some vertigo medication to shut me up.
Nobody cares :') When I get an attack Im entirely incapacitated

Do you remember the name of this user?
It looks like my latest recent experience, from which I'm thraumatized.
I'm opening the ctb option and let that ready if my final moves produces zero to nothing or my pathology runs out of control: I have little help from family, even during flareups and the "coronavirus" psychosis has caught the mind of specialists, E.R. doctors and nurses in particular. No places for hospitalization despite the coronavirus impact has gone to zero: these "bed cuts" are both an effect of the will of saving money from politicians and stupid emergency law with no real project behind, no common sense, no sense of real risk/benefit ratio.

No, I dont remember their name. Im bad at remembering. It was really bad though. They even left the devices in her room go off for a long time...

 

[RN12]

So sorry you guys have experienced the same thing I've gone through. I've been exceptionally healthy my entire life. This is the first year I've been to a doctor in decades. Severe peripheral neuropathy, muscle spasms over my entire body, balance issues, tinnitus, urinary retention and incontinence, blood pooling in my legs all came on suddenly during February this year.

Urgent Care doctor prescribed me a muscle relaxant, neurologist told me I don't eat enough salt, and GP told me I have anxiety. I denied each of these things, but that's all they left me with. Botox caused my extensive nerve damage. Being abandoned by the medical community during the one time I needed help destroyed me. It really did.

If none of us can be helped by doctors, what's left? Who's left? I've just learned to suffer silently as my muscles are eaten by the nerve damage and my teeth begin to decay.

Hugs to each of you suffering this. It's hell.

how are you these days? i hope some healin happened over time?