Stillnotsure
Experienced
- Dec 18, 2018
- 245
I'm having a bone marrow biopsy on January 2nd to check for Mastocytosis. I'm a chronic disease sufferer commonly referred to as a unicorn in the medical world because my diseases aren't well known and diagnosable among everyday doctors.
The nurse called me to give me pre-procedure instructions. It's done under general anesthesia. Going through my information she brushes over my advanced health care directive and DNR wrongfully assuming I didn't have one. The conversation was as follows....
Nurse: "And of course you don't have a DNR or advanced care directive, you're too young."
Me:"Actually I do have one, I'm a DNR."
Nurse:".....You're crazy!"
Me: stunned pause..... "Well chronic disease is hell."
Nurse: .... recovering some mumbles, " You're right, I don't know what you're going through." Judgement still dripping from her voice.
I'm so wounded by her reaction. Age is not a disease. Being young does not prevent me from having one. I have the foresight to spare my family a hard decision by deciding for them I do not wish to be resuscitated. I. Fact, everything would be easier if everyone had one, making their wishes known. When I go, let me go. How dare she pass judgment on me. How dare she invalidate my suffering. If I could post a slew of those angry face emojis that are red here I would.
I'm going to go cry now.
Thanks for listening.
The nurse called me to give me pre-procedure instructions. It's done under general anesthesia. Going through my information she brushes over my advanced health care directive and DNR wrongfully assuming I didn't have one. The conversation was as follows....
Nurse: "And of course you don't have a DNR or advanced care directive, you're too young."
Me:"Actually I do have one, I'm a DNR."
Nurse:".....You're crazy!"
Me: stunned pause..... "Well chronic disease is hell."
Nurse: .... recovering some mumbles, " You're right, I don't know what you're going through." Judgement still dripping from her voice.
I'm so wounded by her reaction. Age is not a disease. Being young does not prevent me from having one. I have the foresight to spare my family a hard decision by deciding for them I do not wish to be resuscitated. I. Fact, everything would be easier if everyone had one, making their wishes known. When I go, let me go. How dare she pass judgment on me. How dare she invalidate my suffering. If I could post a slew of those angry face emojis that are red here I would.
I'm going to go cry now.
Thanks for listening.