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Z

Zepphersboss3348

Member
Sep 1, 2021
7
In case you haven't seen my history, hi, I'm starving to death of an "unknown illness" also known as SIBO that we refuse to test for now I guess. While SIBO is 100% treatable and curable, I've had it for over a year now and the only person who even suggested it was my physical therapist with no legal ability to order any tests to help.

Everything I eat causes pain hours later because my body isn't allowed to get any nutrients before the bacteria eats it all up and converts it to toxins that sit an ferment in my guts. I've been to the ER more than 8 times in the past year for the symptoms and each time they accuse me of faking for attention and being anorexic.

Anyway
I have no thyroid, and I'm sick of this, I'm starving to death anyway, I'm already in ketosis against my own will, I literally cannot digest the food I'm eating. I'm aware now that the thyroid plays a big role in how ketosis works on using up fat stores. So if I stop taking my thyroid supplements and give up on food, what kind of symptoms am I looking at? My hope was that it would lessen the projected month starving to death on less than 50 calories per day would do. I'm underweight as well but still in the triple digits.
 
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Wrennie

Wrennie

-
Dec 18, 2019
1,559
SIBO sounds torturous. As a fellow chronic sufferer of incurable illness I sympathize. 🤗

I don't know about starving without a thyroid, but I routinely starved for about a year with one, and now I have developed gallbladder failure as a result & they want to perform surgery (which I'm refusing. I'd rather be dead than to be cut apart again, personally.)
So yeah, organ failure is a big risk. I felt completely fine from an 'internal' standpoint for the longest time and then just one day I doubled over in agony after eating. The insidious thing about it is that unless you're getting routine ultrasounds, you'll have no idea it's happening until it's too late.
 
Shu

Shu

As above, So Below.
Jan 21, 2022
2,487
Have you ever tried a raw vegan diet?
 
W

woknows

Experienced
Dec 12, 2020
264
Raw vegan diet for someone who would need to make sure they do not have a lack of vitamins and minerals? God forbid.

I feel you. I had a bad experience with the health system.
 
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Shu

Shu

As above, So Below.
Jan 21, 2022
2,487
Raw vegan diet for someone who would need to make sure they do not have a lack of vitamins and minerals? God forbid.

I feel you. I had a bad experience with the health system.
What are you talking about lack of vitamins and nutrients? You think you get vitamins and nutrients from starch sugar and meat? look how healthy she is.

 
W

woknows

Experienced
Dec 12, 2020
264
@Hereforeternity you do not know what the hell you are talking about. A vegan diet does not and never will provide all the nutrients you need. Not to mention a raw diet, which is even worse.

I am suicidal and do not really care to cite the reasons and it does not make any difference with believers. But humans have been cooking food for a long time for a reason.
 
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Shu

Shu

As above, So Below.
Jan 21, 2022
2,487
This woman is 83 years old.

Dude, I've seen several people who suffered with numerous health problems cut out all processed foods cut out dairy and cut back on meat went toward a more plant based diet and their health improved drastically.
 
Z

Zepphersboss3348

Member
Sep 1, 2021
7
What are you talking about lack of vitamins and nutrients? You think you get vitamins and nutrients from starch sugar and meat? look how healthy she is.


Idk it's my understanding that sugar (carbs) from /any/ source is basically pure poison. I've stopped eating processed foods weeks ago and yeah, it's not helping. Probably just this country tbh, they're likely shoving as much carbs and sugar into their "fresh" fruits and vegs as humanly possible too. Sad thing is there are no foods that have 0% carbs and sugar, not even the ones directly from the earth itself. Our entire food supply is poison
 
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W

woknows

Experienced
Dec 12, 2020
264
I have never said you should eat processed foods or dairy, especially if you are lactose intolerant. Does not make the raw vegan diet any less preposterous.
 
Z

Zepphersboss3348

Member
Sep 1, 2021
7
SIBO sounds torturous. As a fellow chronic sufferer of incurable illness I sympathize. 🤗

I don't know about starving without a thyroid, but I routinely starved for about a year with one, and now I have developed gallbladder failure as a result & they want to perform surgery (which I'm refusing. I'd rather be dead than to be cut apart again, personally.)
So yeah, organ failure is a big risk. I felt completely fine from an 'internal' standpoint for the longest time and then just one day I doubled over in agony after eating. The insidious thing about it is that unless you're getting routine ultrasounds, you'll have no idea it's happening until it's too late.
Smart of you too, they tried to blame my gallbladder Years ago when I had a stomach deformity. None of them have a clue what they're doing and its shown very elegantly by how disturbed they get when we do our own research from the exact same peer reviewed sources they were supposed to write their dissertation on.
 
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Shu

Shu

As above, So Below.
Jan 21, 2022
2,487
@Hereforeternity you do not know what the hell you are talking about. A vegan diet does not and never will provide all the nutrients you need. Not to mention a raw diet, which is even worse.

I am suicidal and do not really care to cite the reasons and it does not make any difference with believers. But humans have been cooking food for a long time for a reason.
67 years old.
 
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W

woknows

Experienced
Dec 12, 2020
264
There so also videos of people living of sunlight and explanations of how the earth si flat.
 
_Seeking

_Seeking

I'm only here for this moment
Dec 16, 2021
205
I had SIBO, and regular doctors don't know anything about it. I didn't know what I had at the time, but food would make me feel terrible. When I would go a couple days without eating, I would feel so much better. When I tried to tell a doctor this, he suggested a month long inpatient psych stay to determine what was going on, he thought I was anorexic. I got out of there (it was put in my chart as me being non-compliant) and saw a functional medicine doctor who did a SIBO breath test and I was highly positive for hydrogen SIBO. I was put on Xifaxan, an antibiotic that stays in your gut, and I got better pretty quickly, but I have a connective tissue disorder that makes me susceptible to it returning, and have treated with herbs when I feel it coming back.

There are over the counter herbs that are not as good as antibiotics (I have taken Metagenics Candibactin AR/BR), but it just takes longer for them to work if you have a bad case, which it sounds like you do if it is bringing you to the ER. Also, google FODMAP diet, vegan is no good as you need to starve the little bastards of their food supply.

I don't know where you live, if you have access to either a functional doctor or a naturopath, they are more likely to know about SIBO as regular doctors will never believe food is causing such bad symptoms. Someone needs to perform a breath test to determine which bacteria are dominant (there is hydrogen, hydrogen sulfide, and methane dominant and knowing which one will help tailor the treatment to you). I don't know what your insurance is, or if you could drop your doctor and try to find another one.

I don't think SIBO will kill you all that easily, and starvation is a tough way to go, I think it would take too long to CTB that way. It is ridiculous that doctors have too much ego to listen to their patients or think that maybe they don't know everything. If you can find just one doctor to give you a SIBO breath test (I had mine done by Genova Diagnostics), that will tell them what is going on.

Feel free to PM me if you have any questions or want to talk. SIBO is a pain in the ass, but it is fairly easy to treat once they know what you have. The tough part is getting a doctor to listen to you and agree to test for it.
 
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motel rooms

motel rooms

Survivor of incest. Gay. Please don't PM me.
Apr 13, 2021
7,087
Dude, I've seen several people who suffered with numerous health problems cut out all processed foods cut out dairy and cut back on meat went toward a more plant based diet and their health improved drastically.

Do you even understand what SIBO is & which foods people who suffer from it can & can't eat?

https://www.healthline.com/health/sibo-diet#foods-to-eat

Also, google FODMAP diet, vegan is no good as you need to starve the little bastards (bacteria) of their food supply.
 
angiegirl30

angiegirl30

Student
Jan 20, 2022
112
In case you haven't seen my history, hi, I'm starving to death of an "unknown illness" also known as SIBO that we refuse to test for now I guess. While SIBO is 100% treatable and curable, I've had it for over a year now and the only person who even suggested it was my physical therapist with no legal ability to order any tests to help.

Everything I eat causes pain hours later because my body isn't allowed to get any nutrients before the bacteria eats it all up and converts it to toxins that sit an ferment in my guts. I've been to the ER more than 8 times in the past year for the symptoms and each time they accuse me of faking for attention and being anorexic.

Anyway
I have no thyroid, and I'm sick of this, I'm starving to death anyway, I'm already in ketosis against my own will, I literally cannot digest the food I'm eating. I'm aware now that the thyroid plays a big role in how ketosis works on using up fat stores. So if I stop taking my thyroid supplements and give up on food, what kind of symptoms am I looking at? My hope was that it would lessen the projected month starving to death on less than 50 calories per day would do. I'm underweight as well but still in the triple digits.
This sounds like pure hell. If I was you, I would get a new doctor as soon as possible. If you can, get a Gastroenterologist. They deal with the stomach and intestinal tract. In the meantime, try a lactose free and maybe a gluten free diet to see if it helps alleviate your symptoms. Also take vitamin B-12. It's preferable in SIBO to have vit. B12 injections but this would have to do until you saw a doctor. Also try a probiotic. It may help rebalance the bacteria in your gut. Preferably a doctor will treat you with antibiotics in addition to all of this. And please please please, do not stop your thyroid meds. You will just cause yourself a shitload of problems if you do.
I had SIBO, and regular doctors don't know anything about it. I didn't know what I had at the time, but food would make me feel terrible. When I would go a couple days without eating, I would feel so much better. When I tried to tell a doctor this, he suggested a month long inpatient psych stay to determine what was going on, he thought I was anorexic. I got out of there (it was put in my chart as me being non-compliant) and saw a functional medicine doctor who did a SIBO breath test and I was highly positive for hydrogen SIBO. I was put on Xifaxan, an antibiotic that stays in your gut, and I got better pretty quickly, but I have a connective tissue disorder that makes me susceptible to it returning, and have treated with herbs when I feel it coming back.

There are over the counter herbs that are not as good as antibiotics (I have taken Metagenics Candibactin AR/BR), but it just takes longer for them to work if you have a bad case, which it sounds like you do if it is bringing you to the ER. Also, google FODMAP diet, vegan is no good as you need to starve the little bastards of their food supply.

I don't know where you live, if you have access to either a functional doctor or a naturopath, they are more likely to know about SIBO as regular doctors will never believe food is causing such bad symptoms. Someone needs to perform a breath test to determine which bacteria are dominant (there is hydrogen, hydrogen sulfide, and methane dominant and knowing which one will help tailor the treatment to you). I don't know what your insurance is, or if you could drop your doctor and try to find another one.

I don't think SIBO will kill you all that easily, and starvation is a tough way to go, I think it would take too long to CTB that way. It is ridiculous that doctors have too much ego to listen to their patients or think that maybe they don't know everything. If you can find just one doctor to give you a SIBO breath test (I had mine done by Genova Diagnostics), that will tell them what is going on.

Feel free to PM me if you have any questions or want to talk. SIBO is a pain in the ass, but it is fairly easy to treat once they know what you have. The tough part is getting a doctor to listen to you and agree to test for it.
In case you haven't seen my history, hi, I'm starving to death of an "unknown illness" also known as SIBO that we refuse to test for now I guess. While SIBO is 100% treatable and curable, I've had it for over a year now and the only person who even suggested it was my physical therapist with no legal ability to order any tests to help.

Everything I eat causes pain hours later because my body isn't allowed to get any nutrients before the bacteria eats it all up and converts it to toxins that sit an ferment in my guts. I've been to the ER more than 8 times in the past year for the symptoms and each time they accuse me of faking for attention and being anorexic.

Anyway
I have no thyroid, and I'm sick of this, I'm starving to death anyway, I'm already in ketosis against my own will, I literally cannot digest the food I'm eating. I'm aware now that the thyroid plays a big role in how ketosis works on using up fat stores. So if I stop taking my thyroid supplements and give up on food, what kind of symptoms am I looking at? My hope was that it would lessen the projected month starving to death on less than 50 calories per day would do. I'm underweight as well but still in the triple digits.
 
M

mineko

Member
Jan 13, 2021
28
Sibo really sucks and I'm sorry that you're dealing with it. Even if you can't get a doctor to listen to you, or do a breath test, you can still self treat with diet and herbal antibiotics.
Go to the treatment section for diet and herbal antibiotics. Hope this helps.
 
D

downndone2

Living in misery
Jan 23, 2022
1,270
Between meals have healthy smoothies with Greek yogurt, almond milk, fruits, veggies
 
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Shu

Shu

As above, So Below.
Jan 21, 2022
2,487
im just trying to be helpful. It's not even about being fully vegan just incorporating more plants and stuff. Idk. I just know tons of people who went to a vegan diet and have healed tons of problems. Idk. I don't know what I'm talking. Please stop quoting me and act like I never commented. Thanks.
Maybe the vegan dirt woukd make it worse. Sorry.
 
Last edited:
W

woknows

Experienced
Dec 12, 2020
264
Not all countries are as strict with the use of antibiotics. I would rather get them myself than some doctor who did not even care to really find the root cause to decide if it is worth a try. Not that I recommend people self-medicating, unfortunately, sometimes it's the only way. It was an uphill battle to get tested for vitamin deficiencies. An idiot of my doctor would rather prescribe me medication for psychiatric conditions. Getting vitamins helped me a lot. And no, over-the-counter vitamins are not as effective as getting shots or vitamins you can only get with a prescription. For one thing vitamins, you get only with prescription are regulated and the rest are not.
I also had bowel movement issues. I solved those with Ayurveda medicine. From the doctors, I got nothing useful. One month of that medicine has helped me get regular bowel movements again.
unfortunately, if you have something not usual, you are fucked.
 
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M

myopybyproxy

flickerbeat \\ gibberish-noise
Dec 18, 2021
864
im just trying to be helpful. It's not even about being fully vegan just incorporating more plants and stuff. Idk. I just know tons of people who went to a vegan diet and have healed tons of problems. Idk. I don't know what I'm talking. Please stop quoting me and act like I never commented. Thanks.
Maybe the vegan dirt woukd make it worse. Sorry.
everyone is different - some may find that an all carnivore diet, keto, paleo, raw vegan etc have changed their lives for the better. that doesn't mean what worked for them will work for everyone. this can be applied to meds, therapy, exercise, daily routine, socialisation etc. there is no one 'right' way to live. there are probably more than one 'right' ways even for the same person.

may you and everyone else who seeks it find the right way for you to live, if you've not already done so - based on your recommendation, it seems a raw vegan diet has helped you?
 
Z

Zepphersboss3348

Member
Sep 1, 2021
7
I had SIBO, and regular doctors don't know anything about it. I didn't know what I had at the time, but food would make me feel terrible. When I would go a couple days without eating, I would feel so much better. When I tried to tell a doctor this, he suggested a month long inpatient psych stay to determine what was going on, he thought I was anorexic. I got out of there (it was put in my chart as me being non-compliant) and saw a functional medicine doctor who did a SIBO breath test and I was highly positive for hydrogen SIBO. I was put on Xifaxan, an antibiotic that stays in your gut, and I got better pretty quickly, but I have a connective tissue disorder that makes me susceptible to it returning, and have treated with herbs when I feel it coming back.

There are over the counter herbs that are not as good as antibiotics (I have taken Metagenics Candibactin AR/BR), but it just takes longer for them to work if you have a bad case, which it sounds like you do if it is bringing you to the ER. Also, google FODMAP diet, vegan is no good as you need to starve the little bastards of their food supply.

I don't know where you live, if you have access to either a functional doctor or a naturopath, they are more likely to know about SIBO as regular doctors will never believe food is causing such bad symptoms. Someone needs to perform a breath test to determine which bacteria are dominant (there is hydrogen, hydrogen sulfide, and methane dominant and knowing which one will help tailor the treatment to you). I don't know what your insurance is, or if you could drop your doctor and try to find another one.

I don't think SIBO will kill you all that easily, and starvation is a tough way to go, I think it would take too long to CTB that way. It is ridiculous that doctors have too much ego to listen to their patients or think that maybe they don't know everything. If you can find just one doctor to give you a SIBO breath test (I had mine done by Genova Diagnostics), that will tell them what is going on.

Feel free to PM me if you have any questions or want to talk. SIBO is a pain in the ass, but it is fairly easy to treat once they know what you have. The tough part is getting a doctor to listen to you and agree to test for it.
I'd Love more information. I've spoken to numerous GI doctors but I Already know the stigma the condition carries so going to a third and explaining it will almost certainly get the same response. I asked one and they claimed they dont do sibo testing anymore. Then the second didnt say one way or another whether they offer it at all but still didnt give me one, didnt give an explanation why other than she wanted other tests to be rerun first which made me hellishly sick the last time I took them so it was essentially a soft blocked refusal. When I tried to find an online retailer to send one, the only sites I could find didnt deliver to my state, like my state and Arkansas in specific many of these sites just wont ship to. If you have literally ant sources on getting that fucking test please for the love of god send them my way, I'll happily give you the info of my doctors but I dont think it will help, I'm more likely to get antibiotics from urgent care but i would /really/ enjoy the kind made specifically for this type of infection. The last time I had it beat was in july when I took 3 antibiotics for a UTI that just cleared me right the fuck out, but the son of a bitch slowly seeped back in around december and now it's in the fullest force it ever has been. It seems like regardless of what I do it is going to keep coming back, I had bariatric surgery and that probably made pockets for them to hide in the biofilm, likely nothing that can be done about it and it will probably always be recurrent. I've already adjusted my diet accordingly, no carbs or sugar, as of right now I ear exclusively meats, nuts, and some cooked vegetables. I'm aware fruit is only going to feed those little bastards and just going vegetarian Is not enough. I already take probiotics and noe I'm taking a ton of other digestion aids whenever I eat to try and help, charcoal seems to be the best help but since I already take a lot of other unrelated medications I cannot rely on it since I have to take it 2 hours apart from those other meds. I'm finally "technically" underweight and pretty much all I do now is sleep. It's kinda based in that regard.
 
W

woknows

Experienced
Dec 12, 2020
264
Sounds awful. I am sure someone can send you antibiotics. But it does not seem like it is going to solve the problem permanently. Maybe you should visit the surgeon that has performed the bariatric procedure and see if he will be more receptive.
 

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