I feel like endometriosis is killing me

[Tulip<3]

11 years of severe pain. Not just TOTM, all through the month.
It's wearing me down, more and more. Trying new treatments, over and over again. Pain not improving (or just minimally) and getting mental health side effects because the only treatments we have is hormonal (or surgery, and decent surgery is hard to access).

This latest one is the one that has destroyed me. A drug that puts you into induced menopause. It works great for the pain. But it triggered a severe mental health episode and I've had to stop it. But as it's wearing off, my pain is coming back. And I can't do it. I don't have the strength or ability to cope with it right now. I just can't. Endometriosis is one of the main factors that has put me here.

What is the point of existing when your own body puts you in so much pain, every day that you don't want to be alive? I've lost hope that doctors can help me. I've tried fucking everything.

I want palliative care. As in, give me morphine. Let me continue to take morphine and accept that it will damage me long-term, but help me live with less pain and better quality of life. It should be my choice. I don't care about a long life. I would rather have a shorter life that is better. But doctors won't let a 30 year old woman choose this. I'm a prisoner in my body and I feel like this disease is killing me.

 

[venin]

11 years of severe pain. Not just TOTM, all through the month.
It's wearing me down, more and more. Trying new treatments, over and over again. Pain not improving (or just minimally) and getting mental health side effects because the only treatments we have is hormonal (or surgery, and decent surgery is hard to access).

This latest one is the one that has destroyed me. A drug that puts you into induced menopause. It works great for the pain. But it triggered a severe mental health episode and I've had to stop it. But as it's wearing off, my pain is coming back. And I can't do it. I don't have the strength or ability to cope with it right now. I just can't. Endometriosis is one of the main factors that has put me here.

What is the point of existing when your own body puts you in so much pain, every day that you don't want to be alive? I've lost hope that doctors can help me. I've tried fucking everything.

I want palliative care. As in, give me morphine. Let me continue to take morphine and accept that it will damage me long-term, but help me live with less pain and better quality of life. It should be my choice. I don't care about a long life. I would rather have a shorter life that is better. But doctors won't let a 30 year old woman choose this. I'm a prisoner in my body and I feel like this disease is killing me.

I'm so sorry to hear this…

I just read the 11 years of pain part, I'm tired.
That sounds horrible…

Why is sugery hard to access? Financial reasons?

 

[Myexit]

Hi Tulip, I suffered several years of extreme pain from endometriosis in my early 20's. I was often told it was all in my head or even worse told go to STD clinic and get checked.
Eventually had ultrasound which picked up some abnormalities, had laparoscopy which found the fiberiods.
I had offer of laser treatment, surgery or zoladex injections, zoladex is hormonal and can induce early menopause.
I chose the zoladex as I never wanted children, did go through a stage of menopause but my periods did come back.
The zoladex worked wonders and have never been bothered again by endometriosis.
I know how it feels and I send you hugs and hope you find a treatment and relief from the pain soon. x

 

[FuneralCry]

That must be really awful and tiring what you have to go through, it's cruel how people suffer so much all through no fault of their own. But anyway I wish you the best.

 

[Tulip<3]

I'm so sorry to hear this…

I just read the 11 years of pain part, I'm tired.
That sounds horrible…

Why is sugery hard to access? Financial reasons?

It really is exhausting. There is a lack of specialist surgeons, but also they don't want to do too many surgeries because in itself can cause adhesions and inflammation which can make the disease grow, so it's a catch 22 with surgery

Hi Tulip, I suffered several years of extreme pain from endometriosis in my early 20's. I was often told it was all in my head or even worse told go to STD clinic and get checked.
Eventually had ultrasound which picked up some abnormalities, had laparoscopy which found the fiberiods.
I had offer of laser treatment, surgery or zoladex injections, zoladex is hormonal and can induce early menopause.
I chose the zoladex as I never wanted children, did go through a stage of menopause but my periods did come back.
The zoladex worked wonders and have never been bothered again by endometriosis.
I know how it feels and I send you hugs and hope you find a treatment and relief from the pain soon. x

I'm so glad zoladex helped you! That is what I have been put on recently but unfortunately it's triggered a severe mental health episode for me, so I'm having to stop it.

That must be really awful and tiring what you have to go through, it's cruel how people suffer so much all through no fault of their own. But anyway I wish you the best.

Thank you I really appreciate your kindness

 

[Spiritual survivor]

It really is exhausting. There is a lack of specialist surgeons, but also they don't want to do too many surgeries because in itself can cause adhesions and inflammation which can make the disease grow, so it's a catch 22 with surgery

I'm so glad zoladex helped you! That is what I have been put on recently but unfortunately it's triggered a severe mental health episode for me, so I'm having to stop it.

Thank you I really appreciate your kindness

I used to buy this product on Amazon for fibroids and ovarian cysts, have u tried anything like that? Often there is natural remedies for stuff we just don't know about it. For some reason my issue went away by itself but I suffered at times with lower abdominal pain assuming it was because of my age, but maybe it was other things. I'm afraid of the doctors that practice the standard medicine now b/c there may be alternatives but u just aren't aware. I started doing coconut oil pulling for my teeth and that helps to keep gums healthy and reduces teeth problems due to modern diet. As an example.

 

[Tulip<3]

I used to buy this product on Amazon for fibroids and ovarian cysts, have u tried anything like that? Often there is natural remedies for stuff we just don't know about it. For some reason my issue went away by itself but I suffered at times with lower abdominal pain assuming it was because of my age, but maybe it was other things. I'm afraid of the doctors that practice the standard medicine now b/c there may be alternatives but u just aren't aware. I started doing coconut oil pulling for my teeth and that helps to keep gums healthy and reduces teeth problems due to modern diet. As an example.

I've tried a lot of stuff, including vaping CBD. Helps a little with the pain but these things only go so far. Do you remember the thing you used to take for fibroids?

 

[Pizarnikishere]

I'm so sorry you're going through all that, I have PCOS. Have you tried myo inositol and chiro inositol?

 

[Spiritual survivor]

I've tried a lot of stuff, including vaping CBD. Helps a little with the pain but these things only go so far. Do you remember the thing you used to take for fibroids?

Amazon product ASIN B00MU5JOAK.

It doesn't taste like anything, I ordered the liquid stuff. I didn't use it much b/c it just sort of went away on its own for some reason. Maybe I had a mild issue but they did do an exam and told me I have cysts. Suggested that I get a mirena IUD I was like nah. Also suggested surgery but I ended up being fine and it just stopped hurting. I still have no explanation as to why I'm not suffering as much as I did b4. Literally right after they diagnosed me with this the symptoms just went away. It was weird. On occasion I'll have some ovary pain sometimes but it doesn't last and is pretty mild in my case. I'm 46 yrs old so I'm probably not as effected by hormones now as I once was. Hormone fluctuations can bring on issues for us wen we are younger.