Discord chat for those suffering with chronic pain or illnesses?

[PrincessInWhite]

would anyone be interested in this? to be clear, this chat would be for those of us struggling with at least one physical illness. Migraines, Endo, IC, IBS, Crohns, CRPS, lupus, arthritis, etc etc.

This would take place on discord so there can be NO TALK OF METHODS or of SS on this chat or else we'd risk getting shut down. I ask that all such discussions take place via message here. Do not draw more negative attention to the site on discord please

Is anyone interested in this?
would anyone be interested in this? to be clear, this chat would be for those of us struggling with at least one physical illness. Migraines, Endo, IC, IBS, Crohns, CRPS, lupus, arthritis, etc etc.

This would take place on discord so there can be NO TALK OF METHODS or of SS on this chat or else we'd risk getting shut down. I ask that all such discussions take place via message here. Do not draw more negative attention to the site on discord please

Is anyone interested in this?
Bump?

Bump?

 

[PrincessInWhite]

would anyone be interested in this? to be clear, this chat would be for those of us struggling with at least one physical illness. Migraines, Endo, IC, IBS, Crohns, CRPS, lupus, arthritis, etc etc.

This would take place on discord so there can be NO TALK OF METHODS or of SS on this chat or else we'd risk getting shut down. I ask that all such discussions take place via message here. Do not draw more negative attention to the site on discord please

Is anyone interested in this?
would anyone be interested in this? to be clear, this chat would be for those of us struggling with at least one physical illness. Migraines, Endo, IC, IBS, Crohns, CRPS, lupus, arthritis, etc etc.

Bump?

Bringing this up again hoping anyone is interested I was just diagnosed with a chronic illness today (IC) and would love community

 

[NodusTollens]

Sorry to hear about your recent diagnosis, I can understand why you want to create a type of support group.

I don't know how I feel about chatting on discord, I'm a little apprehensive about it myself, but I like the idea.

But I do have a chronic illness, Endo (& uterine fibroids, yay); & chronic physical pains (following a back injury) that affects mobility.

Endo in conjunction with the chronic pain, basically guarantees that I'm not walking or moving for a 2 weeks/month.

 

[PrincessInWhite]

Sorry to hear about your recent diagnosis, I can understand why you want to create a type of support group.

I don't know how I feel about chatting on discord, I'm a little apprehensive about it myself, but I like the idea.

But I do have a chronic illness, Endo (& uterine fibroids, yay); & chronic physical pains (following a back injury) that affects mobility.

Endo in conjunction with the chronic pain, basically guarantees that I'm not walking or moving for a 2 weeks/month.

thank you so much for your response! <3 I totally get the apprehension. We can talk on here as well until/if you're ever comfortable joining a server! I am so sorry you are dealing with both of those things, i hear endo is an absolute BITCH. I was just diagnosed with IC today :( BIG hugs to you, i am here if you ever want to chat! <3

 

[NodusTollens]

I had to look up IC, I didn't know it had those types of symptoms. I'm sorry you have to experience that, it sounds rough.

Thanks, might have to take you up on that. :)

 

[Cleopatra123]

Thank you Princess for starting this. I really don't know exactly what discord means here, but I would certainly appreciate the communication. I rarely have anyone to speak to. I'm a retired nurse, 74. I was diagnosed with Chronic Fatigue Syndrome in my 30s after a never ending EBV infection, but I'd had an almost unknown infection in my 20's. It's been a long slow progression. I managed 2 children, and parttime work, although always fighting some physical manifestation,, progressive organ problems, procedures, operations, until my last heart valve replacement until 7 years ago. Since then, down a deep pit of disabilities. A stroke, kidney disease, digestive problems, pains from sudden bizarre inflammations, ME (Myalgic encephalitis). I don't recognize myself anymore. Each day I'm surprised, upset to find myself awake again, to face another day of pains, weakness, trembling, stomach aches, etc, etc. etc, and sequestered lonely for what was once life and meaning. The truth is, now that I am in an absurd situation, I don't like having to hear these words, write them down, so I will stop. I keep wondering what to do about it, and as I think day by day gets harder and more disabling. Right now there looms the possibility of another stroke that could make me a living vegetable, like the poor people I was a nurse for, intolerable. It makes one wonder all kinds of things about human existence.

 

[Hunter7786]

Bringing this up again hoping anyone is interested I was just diagnosed with a chronic illness today (IC) and would love community

how are you doing? i have IC as well. it's brutal

 

[Cleopatra123]

how are you doing? i have IC as well. it's brutal

Thank you Princess for starting this. I really don't know exactly what discord means here, but I would certainly appreciate the communication. I rarely have anyone to speak to. I'm a retired nurse, 74. I was diagnosed with Chronic Fatigue Syndrome in my 30s after a never ending EBV infection, but I'd had an almost unknown infection in my 20's. It's been a long slow progression. I managed 2 children, and parttime work, although always fighting some physical manifestation,, progressive organ problems, procedures, operations, until my last heart valve replacement until 7 years ago. Since then, down a deep pit of disabilities. A stroke, kidney disease, digestive problems, pains from sudden bizarre inflammations, ME (Myalgic encephalitis). I don't recognize myself anymore. Each day I'm surprised, upset to find myself awake again, to face another day of pains, weakness, trembling, stomach aches, etc, etc. etc, and sequestered lonely for what was once life and meaning. The truth is, now that I am in an absurd situation, I don't like having to hear these words, write them down, so I will stop. I keep wondering what to do about it, and as I think day by day gets harder and more disabling. Right now there looms the possibility of another stroke that could make me a living vegetable, like the poor people I was a nurse for, intolerable. It makes one wonder all kinds of things about human existence.

I feel EXACTALY as you do, mentally and physically. That's why we're here right? Can't explain it to anyone else. So I ask, why is there no one in our situations posting in the Partner Megathread. Are we OK with progressing on painfully, suffering, having lost all meaning of life and can't recognize ourselves anymore. Are we OK with winding up in diapers, eating baby food, maybe living on a respirator, lifeless, being kept alive to make more money for the pathetic medical establishment, when absolutely nothing is left of life but ruin. Are these words, and speaking here going to change anything? There have been these types of forums before, everyone tells their story, sad, sad, sad and sadder, and then there's no more to say. But, is there something we could do together to help each other; after all, nothing is easy alone.

 

[Livingvsdying25]

Im interested in something like this if it's still a thing

 

[Cleopatra123]

I feel EXACTALY as you do, mentally and physically. That's why we're here right? Can't explain it to anyone else. So I ask, why is there no one in our situations posting in the Partner Megathread. Are we OK with progressing on painfully, suffering, having lost all meaning of life and can't recognize ourselves anymore. Are we OK with winding up in diapers, eating baby food, maybe living on a respirator, lifeless, being kept alive to make more money for the pathetic medical establishment, when absolutely nothing is left of life but ruin. Are these words, and speaking here going to change anything? There have been these types of forums before, everyone tells their story, sad, sad, sad and sadder, and then there's no more to say. But, is there something we could do together to help each other; after all, nothing is easy alone.

Ditto, a nurse once too by the way, which made it all the more poignant, to see, and assist, the forcible keeping of people in endless misery alive.

 

[suicidalloser]

what's the difference this site has a chat room, req one for it?

 

[Cleopatra123]

what's the difference this site has a chat room, req one for it?

Can you tell how to access the chat line for this site please.

 

[Sweet Tart]

I have Type 1 diabetes and am interested in joining, if possible.

 

[suicidalloser]

Can you tell how to access the chat line for this site please.

on the left margin. "Chat"

 

[Jolene79]

I find comfort right now in talking about my wish to no longer be here tbh. I'm suffering so severely I'm beyond the chat about pushing on and through all this misery. I feel comfort seeing other people here have similar situations ( not that I wish that on anyone).

 

[Cleopatra123]

I have Type 1 diabetes and am interested in joining, if possible.

Why not? Had a close friend with same and it's a very depressing situation. I'm sorry for your suffering.
The only help available is a group called "Death with Dignity". They are trying in numerous states to make laws that will make it more possible to get medical assistance. They were in my state last year, and were voted down, I don't understand how people cannot understand the constant suffering and losses so many people undergo with no cure and treatment, devoid of life or help.

 

[Sweet Tart]

Why not? Had a close friend with same and it's a very depressing situation. I'm sorry for your suffering.
The only help available is a group called "Death with Dignity". They are trying in numerous states to make laws that will make it more possible to get medical assistance. They were in my state last year, and were voted down, I don't understand how people cannot understand the constant suffering and losses so many people undergo with no cure and treatment, devoid of life or help.

Thank you for understanding! Tho it is not necessarily a terminal illness, it is a maddening one, having to manually do the work of a major organ 24/7 while working with only part of the information the organ had before my immune system attacked it, lol.

I'm very interested in learning more about Death with Dignity. I literally just responded to another post about my ctb plans being stalled by lack of options for a death with dignity. I'm going to research this organization. I love the idea of getting involved with advocacy around this topic.

 

[liljeep]

Yes, of course. I have PCOS, hypothyroidism, and an unknown issue that causes severe muscle spasms in my lumbar back. Please PM me the link if you already made the server.

 

[Cleopatra123]

Thank you for understanding! Tho it is not necessarily a terminal illness, it is a maddening one, having to manually do the work of a major organ 24/7 while working with only part of the information the organ had before my immune system attacked it, lol.

I'm very interested in learning more about Death with Dignity. I literally just responded to another post about my ctb plans being stalled by lack of options for a death with dignity. I'm going to research this organization. I love the idea of getting involved with advocacy around this topic.

Perhaps we can get a group together. They are always looking for help, people to testify at state lawmakers.

 

[Cleopatra123]

I feel EXACTALY as you do, mentally and physically. That's why we're here right? Can't explain it to anyone else. So I ask, why is there no one in our situations posting in the Partner Megathread. Are we OK with progressing on painfully, suffering, having lost all meaning of life and can't recognize ourselves anymore. Are we OK with winding up in diapers, eating baby food, maybe living on a respirator, lifeless, being kept alive to make more money for the pathetic medical establishment, when absolutely nothing is left of life but ruin. Are these words, and speaking here going to change anything? There have been these types of forums before, everyone tells their story, sad, sad, sad and sadder, and then there's no more to say. But, is there something we could do together to help each other; after all, nothing is easy alone.

There is a group, Death with Dignity, that petitions state governments for death with dignity. Perhaps we can, as some sort of group, offer our stories to them. They have recently been successful in changing the law in Washington. Also, I do recall reading about groups of elderly and or chronically ill people to attempt a group cbt.

 

[HD72]

Sorry to hear about your recent diagnosis, I can understand why you want to create a type of support group.

I don't know how I feel about chatting on discord, I'm a little apprehensive about it myself, but I like the idea.

But I do have a chronic illness, Endo (& uterine fibroids, yay); & chronic physical pains (following a back injury) that affects mobility.

Endo in conjunction with the chronic pain, basically guarantees that I'm not walking or moving for a 2 weeks/month.

I don't want to have to learn to navigate a whole new system. I can barely figure this site out. And I don't want to have to worry about what I say. I'm tired of having to watch what I say and being yelled at for wanting to leave here. I think there could be a better place for this than discord or whatever it's called