Denied Medical Care

[NeverMatteredAnyway]

I dont want to end my life. I just cant stand being inside my head anymore. Ive had acoustic trauma, its like inside my ears are filled with water balloons trying explode inside my head. Sounds hurt. The tinnitus is blaring loud 24/7 and the pressure is unbearable especially when I bend down. I spoke to an ENT unofficially and he says he thinks I have a perilymph fistula. And that I need to get to a neuro ENT. But I am denied Medical Care and desperately want to see the right doctor. I've found a neuro ENT and have bought health insurance I cannot afford, only have 5 grand, its a grand a month, now 4 grand to my name, 3 grand after I pay rent, with a 4000 dollar deductable, and I'm desperate and praying to God, a God I don't believe in that he will bill me for the deductible so I can get care and the surgery I need to fix this. I have chosen how I will end my life if I do not get care. First choice is a gun to just fucking blow my head off since I can't stand being inside it anymore anyway, but I don't have a gun and the paperwork and hoops seem overwhelming so I've decided to jump from the Golden Gate Bridge. I'm afraid of heights and I don't want to do it, but I live with feeling like my head wants to explode and I can't think and I can't clean my apartment, I can't bend down I can't run on the treadmill my head feels like it's going to explode and there's not one person helping me, I am entirely alone. Maybe this is supposed to be what breaks me. Ive fought my entire life, but never anything that didnt get better. I cant escape how I feel inside my head. I keep watching The Bridge. I have zero quality of life now, and its hard to think clearly. Someone at my job thought it was funny to hurt me. Someone did this to me. Im so goddamn sad. I just want to be normal again.

 

[BasedGod]

That's so sad, i'm so sorry. I've heard stories of how bad tinnitus can get. I really hope you get the help you need.

 

[NeverMatteredAnyway]

Thank you for your kind words. Its not even the blaring loud tinnitus, its the PRESSURE. Its feels like there's water balloons inside my head trying to explode. When i bend down or cry or get worked up, it becomes unbearable. I feel like I want someone to film me jumping and everyone who said no to me when I begged for help would have their names attached to it publicly. Maybe crooked workers comp ins adjusters would be forced to re evaluate their terrible lives.

 

[faust]

I think they can help you with the problem although it is very expensive. Just try to find the right doctor.
You can even start your crowdfunding campaign in order to get some funds back.
This is not guaranteed, but sometimes it is helpful.
Anyway, you do not deserve to suffer and I am so sorry the pain is ruining your life...
Giving you a hug

 

[NeverMatteredAnyway]

That's so sad, i'm so sorry. I've heard stories of how bad tinnitus can get. I really hope you get the help you need.

What I wrote next was to you, I dont think I hit reply I just wrote

 

[k75]

I'm so sorry. What country are you in?

 

[SpaceForGrace]

I can only imagine your suffering. I hope you find some help, or release and relief from it soon, however form that may come, and that you no longer have to be in pain.

 

[NeverMatteredAnyway]

I think they can help you with the problem although it is very expensive. Just try to find the right doctor.
You can even start your crowdfunding campaign in order to get some funds back.
This is not guaranteed, but sometimes it is helpful.
Anyway, you do not deserve to suffer and I am so sorry the pain is ruining your life...
Giving you a hug

Thank you for saying that, thank you for the hug, my heads all over the place, Im scared of running out of money. The Dr I chose is PRICY af. But I figure, if someone needs to operate through my eardrums I want someone who does it everyday. I work, but lol realistically 1000 a month before deductable, copays etc. And then theres nothing for if my job lets me go. This happened at work. I dont discuss it there, I pretend my head isnt screaming and trying to explode and I sit there, chatting w clients as they come in. I live in a state they can fire you for any reason. Whats crowdfunding? I was thinking of trying to start a gofundme, but if I say what happened like where I work n who I work for, theyll fire me.

 

[NeverMatteredAnyway]

I'm so sorry. What country are you in?

Im in the US

I can only imagine your suffering. I hope you find some help, or release and relief from it soon, however form that may come, and that you no longer have to be in pain.

Thank you. This wont be forever. It cant be. Thank you

 

[k75]

Im in the US

Are you unable to get Medicaid? Is relocating a possibility for you?

When I had cancer, my insurance didn't feel my diagnostic tests and upcoming treatment were medically necessary. I moved to a different state with better healthcare, and the difference was amazing. Ever since, I've been able to get everything I needed for all of my health issues. If anything like that is a possibility for you, it's drastic but I recommend it.

 

[JSauter]

I also have to kill myself because of hospital bills. The USA is a shithole.

 

[NeverMatteredAnyway]

Are you unable to get Medicaid? Is relocating a possibility for you?

When I had cancer, my insurance didn't feel my diagnostic tests and upcoming treatment were medically necessary. I moved to a different state with better healthcare, and the difference was amazing. Ever since, I've been able to get everything I needed for all of my health issues. If anything like that as a possibility for you, it's drastic but I recommend it.

I just read the first 3 lines you wrote, didnt think your tests and treatment were necessary? Ugh. Thats just sick. I messed up on the paperwork I think. Desperation. Not thinking clearly. Said I wanted a ppo at any cost, to skip needing a referral. Im desperate to get it fixed. Wasnt thinking clearly.

I also have to kill myself because of hospital bills. The USA is a shithole.

Did they help you at least? I dont give a shi* about the bills. I want to be fixed. Im scared at a grand a month plus extras, its going to turn into, decide between health ins n rent/car ins. Then im fkn homeless, lost everything hoping for dr to fix my head

 

[k75]

I just read the first 3 lines you wrote, didnt think your tests and treatment were necessary? Ugh. Thats just sick. I messed up on the paperwork I think. Desperation. Not thinking clearly. Said I wanted a ppo at any cost, to skip needing a referral. Im desperate to get it fixed. Wasnt thinking clearly.

It was a nightmare. I couldn't believe it, because how could something that led to a cancer diagnosis not be medically necessary??? They never did pay any of those bills and it was astronomical.

One thing you could do is visit a hospital and meet with a social worker. They can help navigate insurance problems and figure out how to quickly do paperwork correctly and advise you on your best options. I found that really helpful, and they're generally extremely nice. There are also insurance agencies, but I have no experience using those. I don't know if it would be worth your time to try or not.

I'm just trying to think of things that can help you, because it sounds like you just really need relief and treatment and want a fighting chance.

 

[NeverMatteredAnyway]

It was a nightmare. I couldn't believe it, because how could something that led to a cancer diagnosis not be medically necessary??? They never did pay any of those bills and it was astronomical.

One thing you could do is visit a hospital and meet with a social worker. They can help navigate insurance problems and figure out how to quickly do paperwork correctly and advise you on your best options. I found that really helpful, and they're generally extremely nice. There are also insurance agencies, but I have no experience using those. I don't know if it would be worth your time to try or not.

I'm just trying to think of things that can help you, because it sounds like you just really need relief and treatment and want a fighting chance.

And thats exactly what I should have done. Gotten better advice about ins. I think its too late now, pretty sure. Its not even come through yet. Ive never made a good choice in the midst of desperation. Id do anything to get fixed. I dont want to have to choose between care and homelessness. Insurance or rent

And thats exactly what I should have done. Gotten better advice about ins. I think its too late now, pretty sure. Its not even come through yet. Ive never made a good choice in the midst of desperation. Id do anything to get fixed. I dont want to have to choose between care and homelessness. Insurance or rent

Ya, and how can tests and treatment for cancer not be medically necessary? Only necessary for life!

 

[k75]

And thats exactly what I should have done. Gotten better advice about ins. I think its too late now, pretty sure. Its not even come through yet. Ive never made a good choice in the midst of desperation. Id do anything to get fixed. I dont want to have to choose between care and homelessness. Insurance or rent

I don't think it's too late. You should at least try, the sooner the better I think. You're not stuck.

 

[NeverMatteredAnyway]

And thats exactly what I should have done. Gotten better advice about ins. I think its too late now, pretty sure. Its not even come through yet. Ive never made a good choice in the midst of desperation. Id do anything to get fixed. I dont want to have to choose between care and homelessness. Insurance or rent

Ya, and how can tests and treatment for cancer not be medically necessary? Only necessary for life!

I can only imagine your suffering. I hope you find some help, or release and relief from it soon, however form that may come, and that you no longer have to be in pain.

Hi, I replied to you, but I think its on hold for a moderator to approve. Not sure why or even if its what I wrote to you being not shown

I don't think it's too late. You should at least try, the sooner the better I think. You're not stuck.

I hope not. Its SO much money per month. Idk how they think I can afford it. Theyve delayed the metal no die net another 2 years so jumping death is available another 3-4 yrs. Pisses me off they'd rather spend a trillion bucks on a metal net to break every bone in a sufferers body n not let them die than just send ppl to whatever dr they need. We all know how BROKE sf is. (Joke)

 

[JSauter]

I just read the first 3 lines you wrote, didnt think your tests and treatment were necessary? Ugh. Thats just sick. I messed up on the paperwork I think. Desperation. Not thinking clearly. Said I wanted a ppo at any cost, to skip needing a referral. Im desperate to get it fixed. Wasnt thinking clearly.

Did they help you at least? I dont give a shi* about the bills. I want to be fixed. Im scared at a grand a month plus extras, its going to turn into, decide between health ins n rent/car ins. Then im fkn homeless, lost everything hoping for dr to fix my head

No, they didn't. I don't have anymore money for another procedure and I can't work in this condition.

 

[NeverMatteredAnyway]

I don't think it's too late. You should at least try, the sooner the better I think. You're not stuck.

Thank you for saying that. I hate living in limbo. I get scared being optimistic bc being told no is even more painful.

 

[faust]

Thank you for saying that, thank you for the hug, my heads all over the place, Im scared of running out of money. The Dr I chose is PRICY af. But I figure, if someone needs to operate through my eardrums I want someone who does it everyday. I work, but lol realistically 1000 a month before deductable, copays etc. And then theres nothing for if my job lets me go. This happened at work. I dont discuss it there, I pretend my head isnt screaming and trying to explode and I sit there, chatting w clients as they come in. I live in a state they can fire you for any reason. Whats crowdfunding? I was thinking of trying to start a gofundme, but if I say what happened like where I work n who I work for, theyll fire me.

Yes, gofundme is actually a crowdfunding platform, so you are in the right place. Please, take care of yourself

 

[NeverMatteredAnyway]

No, they didn't. I don't have anymore money for another procedure and I can't work in this condition.

Im scared of that myself. What abt a gofundme?

 

[faust]

Im scared of that myself. What abt a gofundme?

Actually you will have to share that with e.g. your facebook friends and send the link to your campaign wherever you can like in groups, pages, etc.

 

[NeverMatteredAnyway]

Yes, gofundme is actually a crowdfunding platform, so you are in the right place. Please, take care of yourself

Ty, they blocked this msg, ? Im new here, not really sure why. Ty for your response

 

[faust]

Ty, they blocked this msg, ? Im new here, not really sure why. Ty for your response

Not sure if it is blocked. I have a catastrophic connection sometimes so after posting anything cannot be sure it is posted

 

[Persil]

I understand you perfectly. I also have perilymph fistula and doctors did the surgery to prevent fluid leakage. Sadly, my ear is already damaged. As a consequence I have high frequency hearing loss, tinnitus and vertigo. My quality of life is also almost zero. The earlier you do this surgery and prevent further ear damage, the better.

 

[NeverMatteredAnyway]

Im so so so sorry to hear that. I wish I could do something to help both of us. Im dying to see a real dr. Youre the only person Ive met who has this/knows what it is. My life is over, and literally no one cares or is helping and I feel trapped and insane. Why didnt the surgery help you?

 

[Persil]

Same here... My family say me things like: "There are people paralyzed down from the neck" or "You'll get used to it" but it's debilitating condition. Additionaly I was born as premature so I'm hearing impaired. I need to use hearing aids. Now when I'm not wearing them I hear nothing except this stupid sound. Surgery didn't help me because it was done too late. This injury is most commonly found with divers and requires instant medical treatment. There are two articles about it: here and here.

 

[Lady Lazarus 2020]

I dont want to end my life. I just cant stand being inside my head anymore. Ive had acoustic trauma, its like inside my ears are filled with water balloons trying explode inside my head. Sounds hurt. The tinnitus is blaring loud 24/7 and the pressure is unbearable especially when I bend down. I spoke to an ENT unofficially and he says he thinks I have a perilymph fistula. And that I need to get to a neuro ENT. But I am denied Medical Care and desperately want to see the right doctor. I've found a neuro ENT and have bought health insurance I cannot afford, only have 5 grand, its a grand a month, now 4 grand to my name, 3 grand after I pay rent, with a 4000 dollar deductable, and I'm desperate and praying to God, a God I don't believe in that he will bill me for the deductible so I can get care and the surgery I need to fix this. I have chosen how I will end my life if I do not get care. First choice is a gun to just fucking blow my head off since I can't stand being inside it anymore anyway, but I don't have a gun and the paperwork and hoops seem overwhelming so I've decided to jump from the Golden Gate Bridge. I'm afraid of heights and I don't want to do it, but I live with feeling like my head wants to explode and I can't think and I can't clean my apartment, I can't bend down I can't run on the treadmill my head feels like it's going to explode and there's not one person helping me, I am entirely alone. Maybe this is supposed to be what breaks me. Ive fought my entire life, but never anything that didnt get better. I cant escape how I feel inside my head. I keep watching The Bridge. I have zero quality of life now, and its hard to think clearly. Someone at my job thought it was funny to hurt me. Someone did this to me. Im so goddamn sad. I just want to be normal again.

This breaks my heart. I am so, so sorry that you are suffering horribly. Virtual hug to you!

 

[Jean4]

Can I ask did you try ObamaCare? It paid for all my surgeries and everything else.

 

[Polly]

Jean, you are the only person I know who has found success using Obamacare.

perhaps you can tell us how better to use the system.

Basically I find the people are faced with a choice between unaffordable premiums and co-pays or are offered the privilege of paying a low monthly premium ti an insurance company with such a high deductible that they can't afford to seek medical treatment, thus essentially not being insured at all.

 

[Jean4]

Jean, you are the only person I know who has found success using Obamacare.

perhaps you can tell us how better to use the system.

Basically I find the people are faced with a choice between unaffordable premiums and co-pays or are offered the privilege of paying a low monthly premium ti an insurance company with such a high deductible that they can't afford to seek medical treatment, thus essentially not being insured at all.

I'm in New York and went through the exchange. Called them and they gave me multiple choices. I was on it for 3 years. Got Medicare. My co pays and what not on Medicare, I can't afford it. Obamacare paid for my oxygen 100 percent. I cannot afford my oxygen on Medicare. I have to pay 20 percent. Obamacare covered all my meds. Medicare pays for none of my asthma pumps and meds.

Obamacare. My 2 month long hospitalization in isolation $500. Can't imagine Medicare.

Paying a tad bit more than the $167 they take from my disability check for Medicare is worth it in the long run.